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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: Transplant Discussion
2 years post kidney transplant
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Topic: 2 years post kidney transplant (Read 4417 times)
Ladybag
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2 years post kidney transplant
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on:
October 08, 2013, 08:42:14 AM »
Hi All,
I received my kidney transplant a little over 2 years ago but the past 9 months or so I have just not felt right my creatine is good 1.4 but I throw up all the time and back and stomach pain seem to rule my life. No one has any idea why I feel like this. Has anyone ever had any issues? To be honest I feel how I felt on dialysis Tired, barfing, stomach and back pain.
EDITED: Moved to Correct Topic - Rerun, Moderator
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Last Edit: October 11, 2013, 03:31:05 PM by Rerun
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IGA Nephropahty Dec. 2007
ESRD May 2010
PD Cathiter May 2010
Dialysis June 2010
Kidney Transplant April 13, 2011
Poppylicious
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Re: 2 years post kidney transplant
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Reply #1 on:
October 11, 2013, 10:26:54 AM »
Hi Ladybag, Sorry I have no answers for you (assume your meds have been ruled out as the cause?) but I just wanted to say how lovely to see you again. I hope you get some answers.
*huggles*
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- wife of kidney recepient (10/2011) -
venting myself online since 2003
(personal blog)
grumbles of a dialysis wife-y
(kidney blog)
sometimes i take pictures
(me, on flickr)
Everything was beautiful, and nothing hurt.
MooseMom
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Re: 2 years post kidney transplant
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Reply #2 on:
October 11, 2013, 10:35:53 AM »
That seems very strange.
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
Deanne
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Re: 2 years post kidney transplant
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Reply #3 on:
October 11, 2013, 11:52:40 AM »
This sounds awful. Has some sort of infection been ruled out? Is your creatinine stable? Did you have any medication changes in the past year? I'm guessing these questions were already addressed right from the beginning. Have you tried diet changes to rule out allergies, like going on a dairy-free diet for a couple of weeks to see if anything changes, or a wheat-free diet for a couple of weeks, etc. Is it constant or does it happen most at a particular time of day?
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Deanne
1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Ladybag
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Re: 2 years post kidney transplant
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Reply #4 on:
October 11, 2013, 12:21:30 PM »
Thank you guys so much for responding and welcoming me back. I have been to every doctor possible and no one can tell me a thing except for my liver is showing signs of Hepotacellular Disease. But they wont do anything until my liver function changes which is ridiculous to me, why wait for something bad. No meds have changed, no infections. I do have a lot of stress ( I have not come to terms with dialysis I still have all of my stuff in my room cause I did peritoneal and on top of that my dad is still fighting thyroid cancer and going through his second round of radiation.) I am not sure if it is stress or the liver issue or something more at this point. I have pain where my liver is located and it feels puffy in my stomach if that makes any sense.
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IGA Nephropahty Dec. 2007
ESRD May 2010
PD Cathiter May 2010
Dialysis June 2010
Kidney Transplant April 13, 2011
Ladybag
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Re: 2 years post kidney transplant
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Reply #5 on:
October 11, 2013, 12:23:27 PM »
OH!! I never had issues with my liver until about a year after my transplant and the meds im on.
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IGA Nephropahty Dec. 2007
ESRD May 2010
PD Cathiter May 2010
Dialysis June 2010
Kidney Transplant April 13, 2011
jeannea
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Re: 2 years post kidney transplant
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Reply #6 on:
October 11, 2013, 05:08:52 PM »
I'm sure we're all on something that could affect the liver. And just because "most people" don't have a problem doesn't mean you can't. I know you said every doctor. There has to be some doc left to try. Infectious disease? Gall bladder? It seems mean to make you suffer. They should at least offer you Zofran ODT for the nausea. If you're actually vomiting then you are screwing up your electrolytes and maybe some med levels. That's not good for you and you need help. I know it's really really hard but if you don't help you no one will. Go to your most sympathetic doctor and start begging for help. Someone has to have a good idea for where you can get a second opinion.
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appleface
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Re: 2 years post kidney transplant
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Reply #7 on:
December 07, 2013, 05:45:24 PM »
Quote from: Ladybag on October 11, 2013, 12:23:27 PM
OH!! I never had issues with my liver until about a year after my transplant and the meds im on.
It happens to me. The dr even wanted to put me on the liver transplant list. But after almost 3 years, my liver is getting better. Did all kind of tests trying to find out why - failed
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*kana*
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Re: 2 years post kidney transplant
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Reply #8 on:
December 24, 2013, 09:03:47 AM »
Do you get full really fast while eating? Do you mostly feel sick in the mornings around 3-4am? Bloated? I have gastroparesis and had those same symptoms for two years. It goes along w renal failure but nobody diagnosed me until I did some research and told them what I had and what tests I needed for a diagnosis. Best of luck
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PD started 09/08
PKD kidneys removed 06/17/09
Failed donor transplant-donor kidney removed,
suspected cancer so not used 06/17/09
Hemo 06/2009-08/2009
Liberty Cycler-11/09-5/13
Nx Stage-current tx
Diagnosed with SEP 2014
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