2 years post kidney transplant

[Ladybag]

Hi All,

I received my kidney transplant a little over 2 years ago but the past 9 months or so I have just not felt right my creatine is good 1.4 but I throw up all the time and back and stomach pain seem to rule my life. No one has any idea why I feel like this. Has anyone ever had any issues? To be honest I feel how I felt on dialysis Tired, barfing, stomach and back pain.

EDITED:  Moved to Correct Topic - Rerun, Moderator

[Poppylicious]

Hi Ladybag, Sorry I have no answers for you (assume your meds have been ruled out as the cause?) but I just wanted to say how lovely to see you again.  I hope you get some answers.

*huggles*

[MooseMom]

That seems very strange.

[Deanne]

This sounds awful. Has some sort of infection been ruled out? Is your creatinine stable? Did you have any medication changes in the past year? I'm guessing these questions were already addressed right from the beginning. Have you tried diet changes to rule out allergies, like going on a dairy-free diet for a couple of weeks to see if anything changes, or a wheat-free diet for a couple of weeks, etc. Is it constant or does it happen most at a particular time of day?

[Ladybag]

Thank you guys so much for responding and welcoming me back. I have been to every doctor possible and no one can tell me a thing except for my liver is showing signs of Hepotacellular Disease. But they wont do anything until my liver function changes which is ridiculous to me, why wait for something bad. No meds have changed, no infections. I do have a lot of stress ( I have not come to terms with dialysis I still have all of my stuff in my room cause I did peritoneal and on top of that my dad is still fighting thyroid cancer and going through his second round of radiation.) I am not sure if it is stress or the liver issue or something more at this point. I have pain where my liver is located and it feels puffy in my stomach if that makes any sense.

[Ladybag]

OH!! I never had issues with my liver until about a year after my transplant and the meds im on.

[jeannea]

I'm sure we're all on something that could affect the liver. And just because "most people" don't have a problem doesn't mean you can't. I know you said every doctor. There has to be some doc left to try. Infectious disease? Gall bladder? It seems mean to make you suffer. They should at least offer you Zofran ODT for the nausea. If you're actually vomiting then you are screwing up your electrolytes and maybe some med levels. That's not good for you and you need help. I know it's really really hard but if you don't help you no one will. Go to your most sympathetic doctor and start begging for help. Someone has to have a good idea for where you can get a second opinion.

[appleface]

OH!! I never had issues with my liver until about a year after my transplant and the meds im on.

It happens to me. The dr even wanted to  put me on the liver transplant list. But after almost 3 years, my liver is getting better.  Did all kind of tests trying to find out why - failed

[*kana*]

Do you get full really fast while eating?  Do you mostly feel sick in the mornings around 3-4am?  Bloated?   I have gastroparesis and had those same symptoms for two years.  It goes along w renal failure but nobody diagnosed me until I did some research and told them what I had and what tests I needed for a diagnosis.  Best of luck