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Author Topic: How long does drain pain usually last  (Read 3119 times)
Deanne
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« on: September 16, 2013, 04:16:15 PM »

If you started PD with drain pain, how long did it take before you no longer experienced pain? A week? Two weeks? A month? Or was it permanent? I've seen a bunch of messages that say it goes away with time, and some say that for some people it always hurts. I seem to have good nights and bad night and am just trying to set my expectations.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Joe
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« Reply #1 on: September 16, 2013, 05:40:01 PM »

When I first started PD, I was doing manuals. During training I had drain pain like you wouldn't believe. It was so intense that I was afraid I would have to go over to Hemo and give up on PD. Fortunately, it eased up after the first week and by the second week I was not feeling any pain at all. I do still have an occasional run in with it, but when I do I pinch or clamp off my drain line and jiggle a bit to move the catheter end around and break the suction it has developed to my peritoneum. Once I got the method down, I can break it almost immediately.

Good luck!
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Fox_nc
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« Reply #2 on: March 17, 2014, 10:52:18 PM »

 :bump;

This my 3rd time on PD but first issue with drain pain. Feels like a tiny crab is in there pinching me to make sure I'm paying attention. Plus side is it normally happens when I'm dry, down side, it hurts  >:(

Deanne, did yours stop?
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Being normal is not necessarily a virtue. It rather denotes a lack of courage. -- from the movie Practical Magic
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