I Hate Dialysis Message Board
Welcome,
Guest
. Please
login
or
register
.
November 25, 2024, 02:48:28 PM
1 Hour
1 Day
1 Week
1 Month
Forever
Login with username, password and session length
Search:
Advanced search
532606
Posts in
33561
Topics by
12678
Members
Latest Member:
astrobridge
I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: Home Dialysis
Break from dialysis
0 Members and 1 Guest are viewing this topic.
« previous
next »
Pages:
[
1
]
Author
Topic: Break from dialysis (Read 3996 times)
Tío Riñon
Full Member
Offline
Posts: 193
Break from dialysis
«
on:
September 13, 2013, 04:02:58 AM »
While I am generally happy with PD as my modality for dialysis, I've noticed when people are talking about hemodialysis (whether home, in-center, or nocturnal) that they talk about doing the process 3-5 times per week. This means that they get 2-4 days where they don't have to deal with being hooked up to a machine. I'm jealous! I wish that I could look forward to at least one day each week where I don't have to haul out my supplies and be hooked up to the cycler, be awakened by alarms, or carefully drag my tubing moving from room to room. I'd treasure a little freedom.
I know that I can survive at least a day without dialysis since I've had to do it a few times when traveling internationally. What I'd like to know is whether or not anyone on PD
regularly
takes a day off and if so, does your nephrologist condone it.
Also, I don't want to switch modalities. I chose PD for some specific reasons over HD. I just want to know if I can get a break like those on HD.
«
Last Edit: September 13, 2013, 04:06:26 AM by Tío Riñon
»
Logged
Joe
Elite Member
Offline
Gender:
Posts: 1166
Re: Break from dialysis
«
Reply #1 on:
September 13, 2013, 06:08:12 AM »
Talk to your Neph Tio. I would think if you have a good enough clearance, and you are behaving otherwise, you might be able to get away with it.
Logged
Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
amanda100wilson
Elite Member
Offline
Gender:
Posts: 1202
Re: Break from dialysis
«
Reply #2 on:
September 13, 2013, 07:22:26 AM »
It will also probably depend on whethet you have residial renal function. Once you don't you tend to feel pretty crappy if you miss days.
Logged
ESRD 22 years
-PD for 18 months
-Transplant 10 years
-PD for 8 years
-NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.
Always look on the bright side of life...
JLM
Full Member
Offline
Gender:
Posts: 297
Re: Break from dialysis
«
Reply #3 on:
September 14, 2013, 08:33:13 AM »
One has to know just how well your kidneys are doing their natural job before even considering "taking a day off" from dialysis. Of course that's just my humble opinion.
Logged
I'm just where God wants me to be, not one step ahead nor one step behind.
Simon Dog
Administrator/Owner
Elite Member
Offline
Gender:
Posts: 3460
Re: Break from dialysis
«
Reply #4 on:
September 23, 2013, 08:21:44 AM »
I am a former PD patient currently on the Baby K every other day schedule home hemo treatment.
While the days off I get with HD are nice, I found it MUCH easier dealing with PD every day than dealing with hemo every other day. I would gladly give up my "days off" for the convenience of PD.
If you want to live a long life, the proper question for your neph is not "can I get away with less?" but "what treatment is optimal for me?".
Logged
Grumpy-1
Full Member
Offline
Gender:
Posts: 466
Make me the person my dog thinks I am
Re: Break from dialysis
«
Reply #5 on:
September 23, 2013, 09:07:26 AM »
I was on PD for 3 years and would love to go back, but infections took that option away. Doing any type of dialysis daily is much better than skipping a day or two. WHY - it is more like how your kidneys function. It is easier on your body. Grumpy
Logged
Make me the person my dog thinks I am
Simon Dog
Administrator/Owner
Elite Member
Offline
Gender:
Posts: 3460
Re: Break from dialysis
«
Reply #6 on:
December 03, 2013, 08:15:38 AM »
Do not be mislead by the 3 day gap you get once a week in traditional 3x/week hemo - your body pays a price (numerous studies show an increase in mortality and morbidity with 3x compared to every other day treatment). I do traditional home hemo (baby K) and my doc prescribed every other day treatment for optimal results. I refuse to space it out an extra day even when convenient - in fact, I had to do two sequential days when traveling to avoid a 2 day gap.
The real question is do you value convenience over your health? If you place a higher priority on your health, keep asking your team what is best, not what you can get away with.
Logged
amanda100wilson
Elite Member
Offline
Gender:
Posts: 1202
Re: Break from dialysis
«
Reply #7 on:
December 03, 2013, 02:36:19 PM »
Believe me, PD is a lot less onerous than any form of hemo. At least with PD you get to do it while you sleep, assuming you use a cycler. If you do not use a cycler, maybe you should give this a try. it really is the least onerous option. Remember the saying 'the grass is always greener....'
Logged
ESRD 22 years
-PD for 18 months
-Transplant 10 years
-PD for 8 years
-NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.
Always look on the bright side of life...
jmallory
Newbie
Offline
Gender:
Posts: 15
Re: Break from dialysis
«
Reply #8 on:
December 07, 2013, 01:06:15 PM »
For the past year on Pd I've taken off one or two days a month with no problems that I can physically detect. The doctor has never spoken against it.
I do have renal function and do 5 cycles of 1.5 dialysate at 2 litters a cycle. Your best recourse is to ask your doc. Before I started Pd a doctor told me that I may not have to do Pd every night. Because I was peering.
Good luck!
Logged
Jill Mallory
Pre-op kidney transplant with related donor. On peritoneal dialysis since September 2012.
Wat76
Full Member
Offline
Gender:
Posts: 185
This Too Shall Pass
Re: Break from dialysis
«
Reply #9 on:
December 13, 2013, 08:49:40 AM »
Don't tell my Neph, however, I take most weekends off. My Neph told me I could skip every now and again. I still have urine and my clearances are great. I have no swelling and stick to my diet, except for Thanksgiving, I ate everything I wanted to eat. My phosphorous went up a little but not much. So, check with your Neph, you may be surprised at the answer. The most I have skipped is 4 days. I actually felt better off dialysis than I do on dialysis.
Logged
PKD: PD started in February 2011.
Live, Laugh and Love daily.
Pages:
[
1
]
« previous
next »
Loading...