Living life

[Icare]

My wife was worried about going to dialysis this morning because she lived like a normal person this weekend. Please understand that transplant or other options are not available to her. She put on 8 liters  but had a great weekend! We have decided to live life. If you are healthy enough to get a kidney this wouldn't be smart. But we know we're we are headed and with the Lords help we are going to enjoy the trip! She is 56 and we have had many conversation about the future. So we have decided to make all the memories we can in the time she has left!! Thank you Boswife for the insight and encouragement.

[boswife]

awww, im so glad i popped on here and saw this as...............' living life', sharing time together making memories 'at this time' especially,  is as important as *just* staying alive.   We did everything bos little heart desired during this last year.  It would barly get out of his mouth and we were there   I Live off these memories now, and i truly believe it extended his life and made it rich.  Love and be loved, and enjoy.. And,im so glad your having conversations.  Thats one place i fell short. I 'let' him talk, but didnt encourage it as it would make me cry and i didnt want to do that to him.  I wanted to not believe parts of what were going on, and i know he was worried about them.  I just kept reassuring him that i dont have worries because God is good and didnt want him to worry.  Well, i was right, God IS good, and i say Blessings to you Icare.. Your doing so right by your wife.  lotta love there

[obsidianom]

Is there any chance you could do home dialysis with freqent shorter sessions like Nxstage? That could give her more freedom as the increase fluid from "living it up' would be easier to manage and she would feel BETTER. Most people on Nxstage see a dramatic improvement compared to 3 day per week in center. Life becomes easier to live .   Hang in there.

[Icare]

Your suggestion is appreciated but my wife is diabetic, didn't control here sugar for along time and has really bad neuropathy. Has been on dialysis for seven years and has many other medical issues. That is why we are just enjoying the time we have left. We know that the next treatment may be her last but we can't dwell on that! We have each day the Lord provides to make memories that will last till I join her at the marriage supper of the Lamb!! Many people don't talk about what the end will bring. my wife and I have had some very candid conversations. We know her medical condition is not good but we also know I could get hit by a train tomorow. I guess I just want everyone to know that if you are given lemons, Make lemonade! Life's to short to chase after another day!