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Author Topic: KitKatz is better  (Read 6470 times)
creakinator
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« on: August 20, 2013, 01:28:32 PM »
I'm with her right now at the hospital.  She is much, much better.   She seems to be back to her normal self.   Hurrah!

The doctors finally have taken our concerns seriously and have really have taken good care of her her. 

Thanks for all of your good thoughts and prayers. 
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willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: August 20, 2013, 01:37:57 PM »
Wonderful news! Tell her we are rooting for her!  :2thumbsup; :yahoo;

 :grouphug; :flower; :grouphug; :flower;

Aleta
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Wife to Carl, who has PKD.
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Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Darthvadar
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« Reply #2 on: August 20, 2013, 02:02:15 PM »
I've just been in the fortunate position of having a chat with our Kitz on Skype!...

Wonderful to see her!... Great to chat....

Thank God for her recovery!....

Love to all....

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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« Reply #3 on: August 20, 2013, 02:48:46 PM »
Oh gosh, what a relief!  This is the best news I've had in days!  I'm really excited.  :yahoo;
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« Reply #4 on: August 20, 2013, 04:45:46 PM »
Please tell her Hello and hugs from Rerun!

             :bow;
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del
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« Reply #5 on: August 20, 2013, 05:51:53 PM »
 :bandance; :clap; Great news!!  :flower;
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« Reply #6 on: August 20, 2013, 06:06:55 PM »
Good to hear some great news!  Prayers she gets to go home soon and they get that low BP under control!   :clap;
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
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« Reply #7 on: August 20, 2013, 06:58:18 PM »
 :clap; :clap; :clap; :bandance; :bandance; :bandance;  Wonderful news!
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« Reply #8 on: August 20, 2013, 07:27:56 PM »
That's awesome.  I was so worried about her
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transplant - Oct 1, 1992- Apr 2001
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galvo
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« Reply #9 on: August 20, 2013, 09:27:27 PM »
So pleased! :cheer:
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« Reply #10 on: August 20, 2013, 11:15:15 PM »
Thank you, this made my day!  :yahoo;
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Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
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Her story ---> https://www.facebook.com/WantedKidneyDonor
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glitter
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« Reply #11 on: August 21, 2013, 03:41:09 AM »
awesome- had me worried too!  :bandance;
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billybags
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« Reply #12 on: August 21, 2013, 03:44:07 AM »
 :cheer: :cheer: :cheer: That is so good to hear.
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KarenInWA
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« Reply #13 on: August 21, 2013, 05:42:14 AM »
Thank you so much for this update! I now have a cousin who is fighting for her life in ICU due to a surgical complication from a routine surgery - and bad bad attention to detail on more than one dr's parts. Seeing news like this is encouraging and gives me hope for her.

Let's hear it for strong women!!!

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
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« Reply #14 on: August 21, 2013, 07:13:27 AM »
 :cheer: :clap; :beer1; :bandance; :2thumbsup; :laugh:
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« Reply #15 on: August 21, 2013, 07:32:41 AM »
That is good news and hope she can get out soon. The hospital food could kill us both! :sarcasm;
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
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Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

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2011/2012 in process of getting a guide dog
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thegrammalady
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« Reply #16 on: August 21, 2013, 09:55:03 AM »
Yea!!! Been following saga on Facebook.  Glad to hear things are much better.
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cdwbrooklyn
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« Reply #17 on: August 21, 2013, 12:03:32 PM »
Great!!!!!!!!! :yahoo; :clap;
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
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« Reply #18 on: August 21, 2013, 03:00:15 PM »
so glad you are doing better  :2thumbsup;
« Last Edit: August 21, 2013, 03:01:57 PM by pitagory » Logged
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« Reply #19 on: August 22, 2013, 05:20:07 AM »
 :bump;

 :thx; Awwwright KK, get this behind you!!! You got a lot of good times ahead of you  :cheer:
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« Reply #20 on: August 22, 2013, 07:12:38 AM »
Love you, Kit!!  Keep fighting the good fight.  We need you sense of humor back here!!     :rofl;    :cuddle;
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One of the Two Official Sisters of Kitkatz! ;-)
« Reply #21 on: August 22, 2013, 07:48:11 AM »
 :flower; UPDATE  :flower;

I really really really don't want to post this.....not after all of those wonderful messages but....

Christy called me at 7:30 this morning with an update. 

Bad news: They think that KK may have had a small heart attack really early this morning.  As a result, she may not be getting enough blood through her heart. They plan to run tests this AM to get more information about her heart health.  BOO!

Good news: She's awake and talking and doing well, except for some chest pains.  She doesn't remember too much of the last week or so but is talking "sanely" again.  Yah!

Please keep up the prayers and happy thoughts - they are helping!

Anne
(KK's little sis)
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cdwbrooklyn
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« Reply #22 on: August 22, 2013, 08:59:30 AM »
If it ain't one thing, its another.  My prayer goes out to KitKatz. 
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
anniede
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One of the Two Official Sisters of Kitkatz! ;-)
« Reply #23 on: August 22, 2013, 09:29:01 AM »
Quote from: cdwbrooklyn on August 22, 2013, 08:59:30 AM
If it ain't one thing, its another.  My prayer goes out to KitKatz.

Amen! 

She's been sick for 6 weeks now and the common pattern is "get better" --> "get sick" --> "get better" --> "get sick" .... rinse and repeat.  This process is hard on us all but doubly difficult for KK, who is facing setback after setback with the family "stubbornness".  Brave?  Crazy?  The jury is still out.

I know I personally hate getting everyone's hopes up and then dashing them to the ground when her BP tanks again or something else happens that sends her health spiral down again. As I told a family friend, "I know....I know...I only call with bad news.  Sorry."  ;-)

Anne
(kk's little sis)
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Darthvadar
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« Reply #24 on: August 22, 2013, 10:34:37 AM »
Oh no!!!!!!....

And I was SO confident after our Skype chat!...

Fingers crossed it's minor, and if she DOES turn out to have heart problems, better know now rather than when she's left hospital....

Please give her all my love, and tell her I said do NOT pay the bill for Cardiac services unless they prove that the big chunk of granite in her chest is actually a heart!... LOL....

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
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