Icare
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« on: August 12, 2013, 04:09:04 AM » |
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Just overwhelmed today with watching all the pain and discomfort Connie is going through  . It is another drop in her health, ability to walk and breath. I praise God everyday I have her, Still it is difficult to watch her in such pain. I know Im rambling but just needed to vent! Glad and thankful for everyone on this site.  |
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obsidianom
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« Reply #1 on: August 12, 2013, 08:26:50 AM » |
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Hang in there. She needs you!!! It is hard to watch your spouse suffer. I have been there plenty too. Just keep taking care of her and let her know you will always be behind and in front and with her through this. Best of wishes.
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)
Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
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Icare
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« Reply #2 on: August 12, 2013, 09:19:31 AM » |
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Thank you for the encouragement!
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UkrainianTracksuit
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« Reply #3 on: August 12, 2013, 09:36:35 AM » |
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I wish I had something more meaningful to say but all I can do is send my best wishes.
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Jean
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« Reply #4 on: August 12, 2013, 11:14:10 AM » |
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We are glad you are here too, to vent your frustrations. We all do it from time to time. It is so hard to watch a loved one suffer. I am glad she has you.  |
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One day at a time, thats all I can do.
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willowtreewren
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« Reply #5 on: August 12, 2013, 03:21:53 PM » |
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 I wish it were better.
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.  |
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Icare
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« Reply #6 on: August 12, 2013, 04:57:32 PM » |
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It is now 8pm est and you all made my day with your concern and feedback. Palliative care is coming tomorow to help manage her pain. This will e a big relief for me. So thank you all for the support and kind word!  Kim |
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willowtreewren
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« Reply #7 on: August 12, 2013, 05:24:13 PM » |
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That's what this group is for.  I hope tomorrow is a much better day. Aleta |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011. |
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Angiepkd
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« Reply #8 on: August 12, 2013, 07:32:41 PM » |
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Caregivers are the best! Thank you for doing what you do for Connie. I am sure she appreciates it! As a patient, I am not always good at telling my hubby how much he means to me and that I realize it is hard for him. We become rather self-centered in dealing with all the medical stuff. Know that when we don't say it, we think it and love you for it. Hope things get better soon! Sending hugs and prayers for you both! |
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol! So far we are doing great!
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Poppylicious
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« Reply #9 on: August 14, 2013, 02:47:39 AM » |
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I hope the last couple of days have been better for you both. Sending oodles of *huggles*.
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Icare
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« Reply #10 on: August 14, 2013, 04:32:03 AM » |
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 getting better! Palliative care is coming to the house now to help Connie with her pain management. They said that they will get her pain under control. They are very nice and helpful. Thanks for the post Poppylicious!
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del
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« Reply #11 on: August 14, 2013, 06:04:30 PM » |
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Hope tomorrow is better.
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Don't take your organs to heaven. Heaven knows we need them here.
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Icare
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« Reply #12 on: August 15, 2013, 09:45:13 AM » |
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Del
Thanks for the post. Like your new toy but I don't miss the snow! Move from NE New York 7 years ago. Now in North Carolina.
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