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| | |-+  EPO shots - how many units do u get
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Author Topic: EPO shots - how many units do u get  (Read 4172 times)
lynnrlpd1
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« on: June 25, 2013, 07:48:35 PM »

How much in  epo epogen shots do you get a week.  I started at 10,000 and was increased to 12000 and now 14000.  Wondering what other people get that do pd
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Joe
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« Reply #1 on: June 25, 2013, 08:02:29 PM »

i just got switched to 8000 every other week. I was doing 8000 every week but my hgb level is at 11.2 as of my last labs.
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Jean
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« Reply #2 on: June 25, 2013, 11:36:09 PM »

How much do you pay for it, and does your hemoglobin go up and stay up??
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Joe
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« Reply #3 on: June 26, 2013, 05:58:41 AM »

It's covered under my medical insurance, but I understand it's about $2000 a vial. And no, my hemoglobin is a crazy roller coaster that reacts sharply to changes in my dosages. I'm planning on seeing it drop again with the change from weekly to every other week dosages.
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Tío Riñon
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« Reply #4 on: June 26, 2013, 06:26:58 AM »

I get 40,000 per week. Due to the high quantity, they have to use two syringes, so I get poked TWICE!  However, it appears to be working because my lab results are steady and within the acceptable range.
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billybags
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« Reply #5 on: June 26, 2013, 10:24:46 AM »

1000 micrograms of Epoetin Beta   every 2 weeks, hubby is on over night cycler. It has been a long slog getting the HB up to 10.5. Six months ago the HB was 7 and my husband was so tired. Apparently it takes a long while to kick in. The difference is amazing.

Henry P Snicklesnorter will be so proud of me for getting it right. OK Henry
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Jean
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« Reply #6 on: June 26, 2013, 04:05:04 PM »

I get 10,000 every other week, so it costs me $129.00 per month.
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Whamo
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« Reply #7 on: July 03, 2013, 10:16:09 AM »

I wish I was on epo shots again.  They have me on Zemplar 3 times a week, and I'm anemic.   It's a drag.  I don't have the energy to write or walk like I do on a regular basis.  They'll probably put me back on shots once they test my hemoglobin with the once a month doctor visits and blood tests, but until then, it's a drag.  The fight to stay healthy never ends.  :boxing; :boxing; :boxing; :boxing;
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cattlekid
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« Reply #8 on: July 03, 2013, 10:48:15 AM »

I was up to 25,000 units once a week right before I got my transplant.  It was a vial and a quarter weekly, two syringes.  Luckily, I had plenty of "flab" to "jab".  Never had to pay separately as in the US, injectable drugs are in the Medicare bundle.
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Jean
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« Reply #9 on: July 03, 2013, 06:27:29 PM »

I am not on D yet, and I live in the US, so is that way I am paying for it???
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Weggy
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« Reply #10 on: July 11, 2013, 03:38:19 PM »

I only had EPO when I started dialysis. I think I only received 10000 units every week. My hemoglobin recovered after about 4 doses. I haven't had any EPO since that time. My hemoglobin was 14.1 on my last labs. It has steadily increased from 12 over the last year without EPO. My iron on the other hand...ha, I can't keep that in line. I get an iron infusion every six months since I can't keep my iron levels stable.
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Sugarlump
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10 years on and off dialysis

« Reply #11 on: July 11, 2013, 04:40:50 PM »

I take 100 mcg of aranesp a week and 3 lots of iron. I also take folic acid and Vit B complex supplement,
My hb has finally hit 10!!!!  :2thumbsup;  :2thumbsup;
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
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