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Author Topic: Travel to Czech Republic  (Read 2750 times)
tito
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« on: May 20, 2013, 11:56:24 AM »

I leave Wednesday for Prague and the Czech Republic. I am able to take this trip because we will be staying in one hotel in Prague, and for the last three days we're renting a car and driving to the spa towns on the German border. I've had the manual bags delivered to the Mandarin Oriental - I'll use them there, then load what's left for three days into the car.

It's a fantastic trip. We have private receptions at the US embassy, dinners with the musician accompanying us, Gareck Ohlsson. It's put on by the Terezin Music Foundation, and we will be going to the concentration camp of Terezin or Theresienstadt. The music foundation is trying to preserve the musical legacy of the people transported to Terezin, who were mostly artists, musicians, etc.

Baxter has been wonderful - no screw ups. The fluid arrived three days ahead of me.
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cosmo
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« Reply #1 on: May 20, 2013, 12:10:39 PM »

good news tito. hope you have a wonderful time!
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MaryD
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« Reply #2 on: May 20, 2013, 08:56:36 PM »

Sounds a wonderful trip
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Angiepkd
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« Reply #3 on: May 21, 2013, 07:41:28 AM »

This is so awesome!  Thank you for sharing.  It gives me hope to travel again.  Hope you have a great trip!
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
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May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
billybags
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« Reply #4 on: May 25, 2013, 02:16:18 AM »

Tito I hope you have a wonderful time. I envy you, can I come too.
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tito
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« Reply #5 on: June 02, 2013, 11:08:07 AM »

I'm back from Prague! It was an awesome trip. We stayed at the Mandarin Oriental in Mala Strana. Walked to the old Jewish Quarter and saw the synagogues. We walked on the famous Charles Bridge. Went up to Prague Castle and the St. Vitus church. Drove out to a glass gallery. And the most potent day was when we went to Terezin concentration camp, saw the cells, the gestapo interrogation rooms, the secret synagogue.

The trip had been organized by the Terezin Music Foundation, and Garrick Ohlsson the pianist gave a performance of a piece the foundation had had written for the Prague Spring Festival. Garrick also conducted a master class and attended a special dinner with us in the 15th century wine cellar of the Mandarin.

I did have some problems on the trip. One was finding time for five manual exchanges. Don't tell my nephrologist, but most days I got in three exchanges. Felt like crap sometimes. I have trouble walking anyway (a bothched hip replacement at the ''world famous'' Brigham and Women's Hospital in Boston - sciatic palsey), with lower energy, too, I had to take some cabs instead of walking, and had to skip a few events. I do feel like I went through the march to Terezin. Wouldn't have had trouble 30 years ago.

Baxter came through with flying colors (unlike México), and the hotel stored my nine boxes of ultrabags!

Travel is definitely possible on PD. I don't want to hear anybody say they'd like to travel but can't!!!
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billybags
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« Reply #6 on: June 03, 2013, 10:58:35 AM »

Sounds like you had a fantastic time. So pleased.
You have just got back in time, apparently they are having terriable weather in Berlin ,Czech and Austria, two months rain fell in two days, all the rivers have broken their banks and thousands of people have been evacuated.
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boswife
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us and fam easter 2013

« Reply #7 on: June 03, 2013, 12:13:05 PM »

Amazing!  how wonderful for you.... heck, im nervious about going 2 1/2 hours away w/nxStage :(  So wonderful when we get to hear these things! 
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im a california wife and cargiver to my hubby
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november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
tito
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« Reply #8 on: June 04, 2013, 08:27:18 AM »

Yes, Billybags - te weather was horrible. Rain every day. We saw a bit of flooding, but I guess it's really bad in Prague right now. Subways closed, streets blocked off. Lucky to be back.
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