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Author Topic: Where are they now?  (Read 36247 times)
YLGuy
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« Reply #50 on: May 06, 2013, 04:11:47 PM »
Quote from: YLGuy on May 05, 2013, 09:27:01 PM
:bump; tyefly??? Anyone? Anyone? Anyone?
I am friends with her on fb and when you click on her name this comes up: This account has been deactivated.
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willowtreewren
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My two beautifull granddaughters

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« Reply #51 on: May 06, 2013, 05:06:48 PM »
Yes, I miss Tyefly on Facebook.  :'(
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
natnnnat
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« Reply #52 on: May 06, 2013, 06:25:46 PM »
I hear from Kristina from time to time.  I got a lovely email note from her just the day before Gregory's transplant, so three months ago.  She was still maintaining her careful diet and not on dialysis. 
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
cariad
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What's past is prologue
« Reply #53 on: May 07, 2013, 01:55:04 AM »
Quote from: Sugarlump on May 06, 2013, 11:41:06 AM
I struggle on with haemo but am considering another trip to USA maybe in October. I loved it so much, have to come back, maybe for Vegas ???
We talk about an IHD Britain meet from time to time on here, so if it does materialize, I hope that you'd consider coming to that as well.

By the way, I moved to England last year. We're neighbours!  :waving;  :cheer: 
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Sugarlump
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10 years on and off dialysis
« Reply #54 on: May 07, 2013, 02:34:35 AM »
Quote from: cariad on May 07, 2013, 01:55:04 AM
Quote from: Sugarlump on May 06, 2013, 11:41:06 AM
I struggle on with haemo but am considering another trip to USA maybe in October. I loved it so much, have to come back, maybe for Vegas ???
We talk about an IHD Britain meet from time to time on here, so if it does materialize, I hope that you'd consider coming to that as well.

By the way, I moved to England last year. We're neighbours!  :waving;  :cheer:

Hello neighbour  :waving;
A IHD British meet would be really good. I do like to meet with people who get me, and my struggles...
And appreciate my warped sense of humour!!!!
Today is a non dialysis day. God I love non dialysis days.
Pottering about in the garden and going shopping in awhile.
 :bandance;  :bandance;  :bandance;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
MooseMom
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« Reply #55 on: May 07, 2013, 10:16:54 AM »
Quote from: natnnnat on May 06, 2013, 06:25:46 PM
I hear from Kristina from time to time.  I got a lovely email note from her just the day before Gregory's transplant, so three months ago.  She was still maintaining her careful diet and not on dialysis.

I'm really glad to hear this!!!  Please give her my best wishes and my congrats on still not being on D!  That's a tremendous accomplishment!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Poppylicious
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« Reply #56 on: May 08, 2013, 01:07:38 PM »
Quote from: Sugarlump on May 05, 2013, 05:01:34 PM
Just thought I'd drop in and say hi (in case ANYONE remembers me???) I had a transplant December 2010 (same week as Rich) though it only lasted 12 months sadly.
Back on HD and have been quite poorly for last 6 months. But still around... Still giving em hell...
A big hi to those I used to talk to, hope you are well.
 :waving;  :waving;  :boxing;
Oh my gosh, you're that crazy woman on my Fb who had a barbecue at the weekend and thus sent the sun home to bed for the rest of summer ... grrr ...

*grin*
Logged
- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Chris
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« Reply #57 on: May 08, 2013, 08:09:52 PM »
Quote from: Poppylicious on May 08, 2013, 01:07:38 PM
Quote from: Sugarlump on May 05, 2013, 05:01:34 PM
Just thought I'd drop in and say hi (in case ANYONE remembers me???) I had a transplant December 2010 (same week as Rich) though it only lasted 12 months sadly.
Back on HD and have been quite poorly for last 6 months. But still around... Still giving em hell...
A big hi to those I used to talk to, hope you are well.
 :waving; :waving; :boxing;
Oh my gosh, you're that crazy woman on my Fb who had a barbecue at the weekend and thus sent the sun home to bed for the rest of summer ... grrr ...

*grin*

 :rofl; :rofl; :rofl; :rofl;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sugarlump
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10 years on and off dialysis
« Reply #58 on: May 09, 2013, 09:19:57 AM »
Quote from: Poppylicious on May 08, 2013, 01:07:38 PM
Quote from: Sugarlump on May 05, 2013, 05:01:34 PM
Just thought I'd drop in and say hi (in case ANYONE remembers me???) I had a transplant December 2010 (same week as Rich) though it only lasted 12 months sadly.
Back on HD and have been quite poorly for last 6 months. But still around... Still giving em hell...
A big hi to those I used to talk to, hope you are well.
 :waving;  :waving;  :boxing;
Oh my gosh, you're that crazy woman on my Fb who had a barbecue at the weekend and thus sent the sun home to bed for the rest of summer ... grrr ...

*grin*

Hello Poppy!!! Yes I am that woman. I had a bbq and put the kiss of death on the summer  8)
This weekend I am spending at Southwold (for a pampered weekend) and they are forecasting 60mph gales and rain!!!!

I like seeing your fb, even when i don't feel like talking, it's nice to know you are still out there... same with Rich and Chris. A comfort.

 :cuddle;  :cuddle;  :cuddle;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Poppylicious
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Posts: 3023


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« Reply #59 on: June 14, 2013, 06:06:17 AM »
Quote from: Sugarlump on May 09, 2013, 09:19:57 AM
Hello Poppy!!! Yes I am that woman. I had a bbq and put the kiss of death on the summer  8)
This weekend I am spending at Southwold (for a pampered weekend) and they are forecasting 60mph gales and rain!!!!

I like seeing your fb, even when i don't feel like talking, it's nice to know you are still out there... same with Rich and Chris. A comfort.

 :cuddle;  :cuddle;  :cuddle;

Awww, I've only just seen this Sugar.  It is nice knowing that there's a support network just a click away ... and I love reading your statuses which detail how much you seem to (naughtily) eat and drink!  *chuckles*

 ;D
Logged
- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #60 on: June 18, 2013, 12:04:06 AM »
Quote from: Poppylicious on June 14, 2013, 06:06:17 AM
Quote from: Sugarlump on May 09, 2013, 09:19:57 AM
Hello Poppy!!! Yes I am that woman. I had a bbq and put the kiss of death on the summer  8)
This weekend I am spending at Southwold (for a pampered weekend) and they are forecasting 60mph gales and rain!!!!

I like seeing your fb, even when i don't feel like talking, it's nice to know you are still out there... same with Rich and Chris. A comfort.

 :cuddle;  :cuddle;  :cuddle;

Awww, I've only just seen this Sugar.  It is nice knowing that there's a support network just a click away ... and I love reading your statuses which detail how much you seem to (naughtily) eat and drink!  *chuckles*

Oh yes chocolate profiteroles this weekend were my downfall.
They were absolutely heaven. Filled with cream and topped with a little chocolate fudge sauce and served with vanilla ice cream and more pouring cream....
Almost better than sex!!!  :cuddle;

 ;D






EDITED: Fixed quote tag errors-kitkatz,Moderator
« Last Edit: June 27, 2013, 04:44:38 PM by kitkatz » Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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Gender: Male
Posts: 9219


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« Reply #61 on: June 19, 2013, 10:50:09 PM »
Quote from: Sugarlump on June 18, 2013, 12:04:06 AM

Oh yes chocolate profiteroles this weekend were my downfall.
They were absolutely heaven. Filled with cream and topped with a little chocolate fudge sauce and served with vanilla ice cream and more pouring cream....
Almost better than sex!!!  :cuddle;

 ;D

 
 
 
How about pictures of this! ;D
I need some new chocolates to taste.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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