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Author Topic: Help me before I read another fifty articles on kidney disease!  (Read 9187 times)
jbeany
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Cattitude

« Reply #25 on: April 13, 2013, 12:05:26 PM »

 :welcomesign; 

I can't possibly give you any more references that someone hasn't already listed...except maybe "Cooking for David," which is full of recipes that are both dialysis and diabetic safe.  It is a whole other challenge when you have to combine the two diets into one!  When I started, I swore the only two things that were save to eat for both diets were cardboard and applesauce.

Now I think I need to start a post where we can all decide what the best job in the world would be....
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

skg
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« Reply #26 on: April 13, 2013, 12:59:51 PM »

:welcomesign; 

I can't possibly give you any more references that someone hasn't already listed...except maybe "Cooking for David," which is full of recipes that are both dialysis and diabetic safe. 
Thanks for the suggestion. I'll have to track it down.

It is a whole other challenge when you have to combine the two diets into one!  When I started, I swore the only two things that were save to eat for both diets were cardboard and applesauce.

Applesauce ... IDK ... lots of carbs there! :)

But cardboard, definitely. Major component of my diet. :)

Maybe it's a sign of something when the bowel prep solution for a colonoscopy doesn't taste that bad to you ....

cheers,
skg
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cariad
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« Reply #27 on: April 14, 2013, 10:14:16 AM »

Heavy stuff is definitely interesting, and I think this very population is quite interesting, too. Not sure about the Ph.D. versus book versus minutiae, though. They all have their attractions, and drawbacks. What would you do with a Ph.D. if you got one? (That you couldn't do without one?)
Aw, that's sweet of you to ask. Ph.D would give me legitimacy and a world of contacts that would be closed to me otherwise. I just don't think I have the time right now, and I'm already a "non-traditional" student. (non-traditional of course being a great euphemism for 'old') :) If I choose to write a book, I can skip all the pre-lim grilling and the IRB agro (though I believe in IRBs and feel I should not avoid that part.)
Colonoscopy was early, but not too bad otherwise. Except whatever anesthetic they gave me made me cough the whole time and I've got a sore throat now as a result. The results were good -- everything clear -- so it should be a while before I need one again.

Then saw the nephrologist later in the day -- my creatinine is slightly better, but he said it was time to get in touch with a transplant center regardless. So, which one is a question to resolve quickly.
Hooray for the improved creat and for getting that colonoscopy done, with no concerns. It sounds like you will have much of the pre-transplant eval testing done before you ever go talk to any of them, which is great. The testing can hold the process up for months.
I hope your throat has fully recovered and that you find your dream transplant hospital soon. Keep us updated on how this all goes!
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
lmunchkin
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"There Is No Place Like Home!"

« Reply #28 on: April 15, 2013, 04:22:28 PM »

Sorry Im late, but welcome to IHD!  Lots of support here as Im sure you already know!

Again welcome & God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
iKAZ3D
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06/08/2013

« Reply #29 on: April 28, 2013, 08:22:28 PM »

The problem with Diabetic related Renal Failure is it is that fast. It can happen in a matter of weeks believe it or not. I would demand transplant evaluations ASAP. Avoid Dialysis at all costs. Dialysis will interfere with your job too much. Such a cool job as that deserves all the time it needs!

Good luck! I hope you don't need to go down our slippery slope!
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August 16th, 1996 - Born in Sacramento, CA; Born with Posterior Urethral Valves
September 2008 - Large Reconstruction, bladder augmented, stoma placed and ureters fixed
September 2010 - Needed emergency hip surgery for Slipped Capital Femoral Epithysis
September 2010 - Started Dialysis without refusal (Big mistake)
Summer/Fall 2011 - "Inactivated" on the Inactive Transplant List
October 2012 - Activated on the transplant list
November 30th, 2012 - Surgeons threatening to not to a transplant based on weight
April 25th, 2013 - Lost 25 pounds (97kg), however developed highly resistant bladder bacteria, Inactivated from list until eradicated
May 15th, 2013 - Finally cleared of the bacteria, reactivating on list imminent.
May 24th, 2013 - Reactivated on the list!
June 8th, 2013 - Transplant!
June 19th, 2013 - Dialysis Catheter officially removed and returned home from the hospital!
June 21st, 2016 - Sleeve Gastrectomy
March 11th, 2019 - Revision to Gastric Bypass
skg
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« Reply #30 on: April 28, 2013, 09:12:43 PM »

Thx for the advice.  I have the first meeting with transplant team on Wednesday. Hoping it goes well.

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