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Author Topic: I am new to this thing called dialysis.  (Read 5313 times)
cookie
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« on: January 24, 2007, 03:39:49 PM »
 I would like to introduce myself.  My name is Caroline.  My husband has recently been told by his nephrologist that he needs to start dialysis.  He has lost most kidney function (about 8% left) due to diabetes. He is sixty-five, and I will be his support person through this.  He has made the decision to try peritoneal dialysis for many reasons.  It was a hard deision, and we hope he has made the right one.  I am anxious to learn from those of you who have more experience at this.  I am glad to have found this site.  We live in New England.  I hope at a future time to get my husband to post.  It is a bit much for him now.  As much as we knew this was coming someday, it still feels like a kick in the stomach when it happens.  I plan to retire next year , and we are hoping things willgo smoothly so that we will be able to travel.
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Cookie
Rerun
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« Reply #1 on: January 24, 2007, 03:47:38 PM »
Welcome to the site Cookie.  I feel you have chosen the right dialysis method and the right website for answers.  Please go to the Dialysis:  Home Dialysis  http://ihatedialysis.com/forum/index.php?board=25.0  for the most information on PD.  We have several members on PD.  Hope all goes well.

          :welcomesign;


Rerun / Moderator
« Last Edit: January 24, 2007, 05:32:38 PM by Rerun » Logged
Sluff
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« Reply #2 on: January 24, 2007, 03:49:35 PM »
Welcome Cookie and Husband,

We are glad you found this site because it will help you in many ways as you find your husband needing dialysis.

IHD has become sort of a Beacon in the night as there is so much information and answers to questions.

It's great to read your introduction which gives me a chance to steer you in the right direction if you already haven't found your way around Here's a great place to start, Site rules http://ihatedialysis.com/forum/index.php?board=34.0

Hope you find your way around, but if you have any questions just ask and I'm here to help anyway I can.



Sluff, Moderator
« Last Edit: January 24, 2007, 03:51:26 PM by sluff » Logged
jbeany
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« Reply #3 on: January 24, 2007, 06:44:25 PM »
Welcome, cookie!  IHD will be a big help to you and your husband both.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
CRG59
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I am the infant and my donor is to the left!
« Reply #4 on: January 24, 2007, 07:33:39 PM »
Caroline,

Welcome to IHD. You will find all the information you need to know at this site.  You are not alone and I hope that you can make the adjustment to what life throws at you!
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tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #5 on: January 24, 2007, 08:06:26 PM »
Hi and  :welcomesign;

See You Around     :cuddle;


Tamara xxx ooo
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
anja
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« Reply #6 on: January 24, 2007, 08:25:28 PM »
 :welcomesign;  Cookie and Hubby~  From someone else who chose PD and glad of it! Thanks to this site, I knew I had choices, not just the one that was offered to me~ hemodialysis.  You will be glad you found this site as we are glad you joined the community.
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Zach
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« Reply #7 on: January 24, 2007, 08:28:12 PM »
Welcome to the community.
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
glitter
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« Reply #8 on: January 24, 2007, 08:50:03 PM »
dialysis came to my husband abruptly-I am his caregiver too,and these people here on this site are great-they have taught me so much. :welcomesign;
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Jack A Adams July 2, 1957--Feb. 28, 2009
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RCC
nephrectomy april13,2006
dialysis april 14,2006
Joe Paul
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« Reply #9 on: January 24, 2007, 10:43:09 PM »
Welcome Cookie, good to have you aboard.
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Wattle
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« Reply #10 on: January 24, 2007, 11:29:57 PM »
 :welcomesign;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
MJB
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« Reply #11 on: January 25, 2007, 08:47:48 AM »
Welcome Cookie :welcomesign;
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Mike

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shay_pcb
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« Reply #12 on: January 25, 2007, 02:56:46 PM »
 :welcomesign;
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boxman55
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« Reply #13 on: January 25, 2007, 05:36:34 PM »
Hi Cookie, I am also a diabetic it is not easy to deal with both dialysis and diabetes but this site sure helps alot. Good luck and stick around  - Boxman55
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
del
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« Reply #14 on: January 25, 2007, 06:53:43 PM »
hi Cookie  :welcomesign;.  I know what you mean about feeling like being kicked when you know dialysis has to start.  Hubby was told by the nephrologist in 1987 that he would need dialysis or a transplant in 2-10 years.  Well, he went 10 years right to the month.  Even though we knew it was going to happen it wasn't easy when it did.
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Don't take your organs to heaven.  Heaven knows we need them here.
angieskidney
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« Reply #15 on: January 25, 2007, 11:27:50 PM »
I chose Peritoneal Dialysis as well til I no longer had a choice due to Peritonitis.  :welcomesign;

Will your husband be doing Fresenius or Baxter? There is the night time cycler which made my life so easy I didn't even mind not having a kidney! Boy wish I could do Peritoneal again lol.
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diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
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« Reply #16 on: January 26, 2007, 12:59:08 AM »
Welcome to our caring and sharing community.  This is just the place for you to be.  I love to see family members and loved ones taking the initiative to do all they can to help the one with renal failure.  There is so much information here.  First of all, check out the sections that can directly help.  Do not hesitate to ask questions.  Also, when it gets a bit much, this is a good place to vent.  You see, we understand exactly what you are going through.  We even have a section where loved ones and caregivers can express their particular perspective on things.  So welcome.  Here is a hug from our group -  :grouphug;

Bajanne/Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
cookie
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« Reply #17 on: February 24, 2007, 02:04:19 PM »
 I submitted an indtroduction before, but I guess it did not get through.  My husband has just started on Peritoneal Dialysis. He has had a rough beginning with drain problems and an infection.  I have gained a lot by the posts on this site.  I am my husband's support person through this process which can be discouraging.  We hope thins will get better real soon !!





EDITED: Merged threads - Sluff, Moderator
« Last Edit: February 25, 2007, 01:36:26 AM by sluff » Logged
Cookie
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« Reply #18 on: February 24, 2007, 02:19:37 PM »
Hello Cookie,

Glad you're here.  I am amazed at all the info and advise from the wonderful people on this site. Welcome!

Kelli
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Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
angieskidney
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« Reply #19 on: February 24, 2007, 02:27:28 PM »
 :welcomesign; I loved it better than HD! Hope he is doing better now! Any questions just ask ;)
« Last Edit: February 25, 2007, 01:27:32 PM by angieskidney » Logged
FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
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« Reply #20 on: February 24, 2007, 03:08:35 PM »
 :welcomesign; Hopefully PD will get better for him!! I love it!!
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Bajanne
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« Reply #21 on: February 24, 2007, 03:28:51 PM »
Welcome to our community, Cookie!  I am so glad to took the time out to join us. I can't help saying how much I appreciate it when loved ones show such an interest as to check out websites like this.  And I know that this is a very helpful website - not only for information (I know that you can get lots of that on the 'Net) but for the caring support, especially from people who know EXACTLY what you are going through.  There is lots to read here, so get going.  But dont' just read.  Please keep us up to date on your husband's progress.
And when you want to rant and/or vent, there is a section which was developed especially for spouses, caregivers and loved ones.
We have a chatroom that is very easy to access.  When you come into the forum, just scroll down and see who is in the chat room and click on the link, or you can just click and go there and wait for someone to join you.
For the romantic in you, there is our sister site, Renal Romance.
My caring thoughts and prayers are with you and your husband.

Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
Ohio Buckeye
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« Reply #22 on: February 24, 2007, 03:47:43 PM »
Hi Cookie.
Welcome to the IHD Family.
Hope things improve soon for your husband and you.
I'm on PD.  I remember at first getting more alarms then I do now.
Hope you find lots of helpful info here.
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Joe Paul
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« Reply #23 on: February 25, 2007, 12:15:42 AM »
Welcome  Cookie, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
billoggblog
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« Reply #24 on: February 25, 2007, 12:10:48 PM »
Hi Cookie, and  :welcomesign; I am on Automated peritoneal dialysis (over night on a machine).  I first started on manual PD, but after a short time I found it difficult to maintain a nearly-normal life, but I find APD suits me better.  If after a while you find PD difficult to handle, you have this option to think about.
The good this about this site is................... Their are many Aspects to the same Problem........and, if you wait long enough you'll get them ALL here.

Good Luck,
Bill.
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Yesterday is History..........Tomorrow is Mystery..........
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