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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: Home Dialysis
Gotta Pee!
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Topic: Gotta Pee! (Read 3346 times)
drgirlfriend
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Gotta Pee!
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on:
March 10, 2013, 06:39:28 PM »
The Boyfriend is having increasing trouble with his bladder in the evening. Even though we have determined that it's mental and he's working on ignoring nature's call while he's preparing to connect, if the machine starts pulling too hard later the need to go is overwhelming. Which means waking me up and going thru the routine of disconnecting and re-connecting in the middle of the night. I finally found a job
so this 'not getting hooked up before 11' and 'waking me up at 3am' shit just isn't going to fly anymore.
Those of you who have something bedside to pee in: are you concerned about the cleanliness of that? Do you hand sanitize afterward? Has your pd nurse or Dr. ever said anything about it?
Thanks everyone!
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Boyfriend diagnosed with renal failure Feb. 2011. Cause unknown.
PD Catheter "installed" June 30, 2011.
Began CAPD August 11, 2011.
On transplant list 11/23/11.
Started Liberty Cycler 12/1/11.
Joe
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Re: Gotta Pee!
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Reply #1 on:
March 10, 2013, 06:47:06 PM »
Can you move the cycler so he can reach the bathroom without disconnecting? I have mine positioned so I have just enough tubing to reach my easy chair in the tv room and the bathroom, if I need it. If not, he can ask his team for extensions that will give him more line.
HTH
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
drgirlfriend
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Re: Gotta Pee!
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Reply #2 on:
March 10, 2013, 07:13:34 PM »
I think he feels better with the machine right by the bed, but I will suggest this to him. Thanks Joe!
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Boyfriend diagnosed with renal failure Feb. 2011. Cause unknown.
PD Catheter "installed" June 30, 2011.
Began CAPD August 11, 2011.
On transplant list 11/23/11.
Started Liberty Cycler 12/1/11.
MaryD
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Re: Gotta Pee!
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Reply #3 on:
March 10, 2013, 07:43:10 PM »
Congrats on the job!
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drgirlfriend
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Re: Gotta Pee!
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Reply #4 on:
March 11, 2013, 04:38:58 AM »
Thanks MaryD! It's exciting and scary to be working after a year and a half.
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Boyfriend diagnosed with renal failure Feb. 2011. Cause unknown.
PD Catheter "installed" June 30, 2011.
Began CAPD August 11, 2011.
On transplant list 11/23/11.
Started Liberty Cycler 12/1/11.
blondie1746
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Re: Gotta Pee!
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Reply #5 on:
March 11, 2013, 09:09:41 AM »
I am on the Baxter cycler and my cassettes have 18 feet of tubing from me to the machine and 18 feet from machine to my toilet where I drain. My machine sits right next to my bed and the way my room is arranged I can reach the toilet without disconnecting. And the tubing gives me flexibility in setting up the machine when I travel. I believe this is the standard cassette that comes with my machine.
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billybags
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Re: Gotta Pee!
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Reply #6 on:
March 11, 2013, 09:51:35 AM »
Get him one of those "men Pee" bottle things you can buy at the pharmacist. Getting disconnected from the machine is not such a good idea unless it is absolutely necessary. As long as he has hand sanitizer he should be OK. I always smile when our unit has an awareness day, how to wash your hands, how many times, how long for, follow all the cleanliness routine, you know the jist. What do men do in there sleep? They hold their
ba*** , they scratch things and then they put some gel on there hands and disconnect. There is no answer to this is there.
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highway61
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Re: Gotta Pee!
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Reply #7 on:
March 11, 2013, 05:26:44 PM »
When I was on PD, my wife came up with an ingenious idea, she bought a sturdy table on wheels for the cycler. In our house we have some steps to go down to get the the bathroom but I could roll the cycler close enough to have my tubing reach the bathroom.
It also made many other things more convenient since it was so mobile.
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KidneySinger
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Re: Gotta Pee!
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Reply #8 on:
March 15, 2013, 04:55:40 PM »
Disconnecting to pee is a terrible idea - forget the cleanliness of it. The risk of infection goes up dramatically if he is not going through the entire sterile procedure. You never want to connect and disconnect unless its and absolute emergency. Talk to your PD center. I would think that regardless of the make - you should have a long enough tube to reach. Mine is Baxter and comes standard with 18 feet - I can't imagine the others don't have it.
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3rd generation of Alports Syndrome: 1st generation: 4 uncles died in 20's - next generation: 2 uncles transplanted at 40, 1 died from cancer as result of rejection medication, other still alive at 65 with 20+ year transplant from sister (a carrier of Alports) but mulitple cancer surgeries through the years...looks like he is 85 years old.
1961: Blood and Protien in urine since birth
Doctors telling me kidneys would fail - every year for 50 years now! No hearing loss, just ringing
(Really think ace inhibitors and beta blockers since high school helped my surprising longevity - if you are NOT on an ace inhibitor, please ask your doctor why)
2012: GFR: 18 at present - on transplant list but they are going to have to convice me after seeing my uncles.
Preparing for dialysis
Younger brother on dialysis now for 2 years
Fistula Surgery at Mayo Clinic: failed
Going in for 2nd attempt at a fistula with different doctor - different vein
9/7/12 2nd attempt at fistula - WORKING! Mayo ruined 2 veins and St Vincents got one working!
Need additional surgery when fistual matures to bring closer to the skin.
GFR 17 - so plenty of time
WOW...just when I thought I had plenty of time - my GFR dropped to 13 in a month - guess I better get that fistula moved forward.
Moved it forward and have a thriving...thrilling fistual...BUT
Just when I did all that, I decided to go the PD route...so glad I did.
Now do PD every night and all seems to be going very well...for about a year.
Now on hemo dialysis at Mayo Clinic Jacksonville
Every Mon Wed and Friday for 4 hours at 400 pump speed.
Its really not that bad.....
theone
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Re: Gotta Pee!
«
Reply #9 on:
March 18, 2013, 10:07:56 PM »
Totally agree with some of the comments. Don't connect/disconnect all the time as it will increase your chance of getting infection.
Ask a plastic urinal from your nurse. And then have the urinal hang off a 5 gallon plastic bucket so it won't fall off.
I use urinal at the middle of night without disconnecting/connecting.
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