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Author Topic: Anyone else yell at their home PD machine?  (Read 6705 times)
MsMia
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« on: January 11, 2013, 11:40:59 PM »
Yes, I am grateful that I can do dialysis at home, yes I sometimes 'love' my machine, but lately I find myself yelling a string of profanities at the stupid piece of crap for alarming at me all night for no reason (ok so there is always a good reason, but at 2am I don't care what it is) Ever try to explain to a family member why you are yelling at an inanimate object that you are supposed to be 'grateful' for? "Oh mr Baxter machine, how I love the, but you better hope there isn't a bat next to you next time you scream at me to 'check patient line' at 2 o'clock in the morning"  :Kit n Stik;
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jbeany
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Cattitude
« Reply #1 on: January 12, 2013, 04:43:13 AM »
 ;D

Never did PD, but I did home hemo.  I named mine, so I could swear at it specifically...
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
amanda100wilson
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« Reply #2 on: January 12, 2013, 06:08:09 AM »
Do home haemo but what I shout at my machine is not too polite :shy;
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
natnnnat
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« Reply #3 on: January 12, 2013, 06:10:19 AM »
Gregory says terrible things to our modem.
Me, now I never swear at anything.  :angel; Not ever.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Desert Dancer
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« Reply #4 on: January 12, 2013, 08:55:41 AM »
The walls of my bedroom have absorbed more profanity than I care to remember. I smack my machine, too.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
MsMia
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« Reply #5 on: January 12, 2013, 01:53:01 PM »
 :thx; It's good to know I am not the only one!
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Jean
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« Reply #6 on: January 13, 2013, 02:34:39 AM »
I even give my toaster a stern warning daily, not to burn my toast. I am NOT to be messed with!!!
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One day at a time, thats all I can do.
billybags
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« Reply #7 on: January 13, 2013, 03:41:00 AM »
yes I think we all do. We even know when it  is going to alarm before it does, its like knowing your own body. Some times it makes banging noises and I know one of the  plastic tubes is knocking on the table and that annoys me, I have to get out of bed and move it. My husband who is on the machine is oblivious, I am the one who has to nudge him over when it does, so yes I do swear at it.
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Joe
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« Reply #8 on: January 13, 2013, 12:32:54 PM »
I certainly do! And it's usually for those wee hours of the morning alarms.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
Whamo
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« Reply #9 on: January 13, 2013, 07:40:31 PM »
 :urcrazy;
I don't talk to my machine.  But it irritates me to no end when it burrrs real loud and I'm trying to freaking sleep.
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smcd23
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The patient, the baby and the donor - October 2010

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« Reply #10 on: January 13, 2013, 09:48:09 PM »
Hubby punched a few machines right in the screen when he was doing PD. I was keeping track of their serial numbers on our kitchen white board because I swear we had the same one more than once. We probably saw a dozen machines in the time he was on PD. Would be nice if they could make something that was mechanically reliable and software that actually worked. That is the one thing I DO NOT miss one bit about PD. And I am so glad he always hooked up after our son was in bed.
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
tito
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« Reply #11 on: January 14, 2013, 08:55:53 AM »
I don't hit the machine, but I pull its tubes. I think the cassettes are often faulty. Then again, when I get a bag with a faulty frangible opening (too small), I am ready to throw the blasted contraption our the window.
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Adam_W
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Me with Baron von Fresenius
« Reply #12 on: January 18, 2013, 10:24:59 AM »
I would often yell at my NxStage machine, but now that I'm back in-centre, I have to be more careful what I say. I still talk to it though (as do alot of other people)
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Emerson Burick
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« Reply #13 on: January 18, 2013, 04:38:47 PM »
Absolutely. I used to refer to mine as "that shrieking bitch." I swear those things are designed for deaf old folks with one foot in the grave and the other on a greased fish.

I made it a lot better a couple of ways, though. First, I went into the preferences and set the volume as low as it would go. Then I took some of my bandages and gauze (which I never use) and taped a thick, sound-absorbing muffler across the speaker grill. Finally, I placed the cycler on top of a padded laptop sleeve to absorb more sound and to keep its vibrations from resonating that godawful hum through the furniture.
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Lexxtech18
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Be good to yourself when nobody else will.
« Reply #14 on: January 19, 2013, 08:25:22 AM »
Am I the only one who swears at their in-center machine?  :shy; No? Good. Didn't think so.  :rofl;
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Diagnosed with Bilateral Hypoplastic Kidney Disease - 1990
First Livinig Donor Transplant (from my mommy!) - October 3, 1996
Transplant Failed/Put on Hemodialysis - May 2005
Second Kidney Transplant (deceased donor) - July 2010
Transplant Failed/Restart In-Center Hemodialysis - February 2011
MsMia
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« Reply #15 on: January 28, 2013, 02:58:23 PM »
Quote from: Emerson Burick on January 18, 2013, 04:38:47 PM
Absolutely. I used to refer to mine as "that shrieking bitch." I swear those things are designed for deaf old folks with one foot in the grave and the other on a greased fish.

I made it a lot better a couple of ways, though. First, I went into the preferences and set the volume as low as it would go. Then I took some of my bandages and gauze (which I never use) and taped a thick, sound-absorbing muffler across the speaker grill. Finally, I placed the cycler on top of a padded laptop sleeve to absorb more sound and to keep its vibrations from resonating that godawful hum through the furniture.

 :thx; Great Ideas! I did finally find the volume and brightness settings which helped!
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MsMia
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« Reply #16 on: January 28, 2013, 03:07:08 PM »
Quote from: Lexxtech18 on January 19, 2013, 08:25:22 AM
Am I the only one who swears at their in-center machine?  :shy; No? Good. Didn't think so.  :rofl;

 :flower; Oh yeah, I yelled at my Hemo machine too! Luckily my hemo nurse was amazing and thought it was funny
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wbdoug
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« Reply #17 on: January 29, 2013, 02:34:03 PM »
On many occasions my walls have rattled because of my maschine. I've even slapped it around a couple of time to get it to work properly.
As far as the noise goes, after relocating it three times I found the perfect place for it. In the closet with the door closed!!!
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8/3/2011 PD Cath installed
Life keeps interfering with my plans
geoffcamp
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« Reply #18 on: January 29, 2013, 07:54:48 PM »
Oh heck yes!!  When I was on PD years ago I taught that machine every cuss word in the book!!!  LOL. Felt good to yell at it!!!!  G.
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Geoffrey Campbell
Diagnosed with ESRD at 26
Transplanted in 1999 rejected 2001
In center hemodialysis since late 2001 3X a week 4 hours late evening 3rd shift
Joe
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« Reply #19 on: January 30, 2013, 09:59:22 AM »
Quote from: geoffcamp on January 29, 2013, 07:54:48 PM
Oh heck yes!!  When I was on PD years ago I taught that machine every cuss word in the book!!!  LOL. Felt good to yell at it!!!!  G.

It is very therapeutic.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
JLM
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« Reply #20 on: January 31, 2013, 08:26:20 AM »
I tend to converse with it, "Now, we have to be friends....I will keep you looking pretty and give you  plenty of liquids to keep you hydrated, and you keep doing your job.   BUT if you go on strike I will (and can) have you replaced with a younger model.  And I don't care if I have to call in the middle of the night.  UNDERSTAND!!!!!!!!!!!!!!!!!!!!"  'Nuff said.........
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I'm just where God wants me to be, not one step ahead nor one step behind.
Whamo
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« Reply #21 on: January 31, 2013, 11:22:08 AM »
I talk with my machine all the time, but my house alarm has a sexier voice.
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MsMia
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« Reply #22 on: January 31, 2013, 01:18:20 PM »
Ha Ha Ha    :clap;   I love all of these responces! We could all use a good laugh. Right?   :rofl;
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JLM
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« Reply #23 on: February 03, 2013, 05:06:56 AM »
I have found out when "Crap Happens" ya gotta laugh.....otherwise yer gonna cry.....   Trust me on this one!!!!
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I'm just where God wants me to be, not one step ahead nor one step behind.
Ricksters
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« Reply #24 on: February 12, 2013, 04:54:12 PM »
I yell at my Baxter all the time when it does not co-operate with me...Sometimes I think it has a mind of it's own....specially during the middle of the night when it beeps and tells me to "check my position"...If it minded it's own business it wouldn;t matter what my position is!

Ricki
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