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Author Topic: Hello Everybody  (Read 3137 times)
lamillinger913
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« on: February 21, 2007, 06:28:35 AM »

Hi, my name is Lee Anne, and I'm happy to be a new member here. What a cool site.

A few quick stats. I'm female, 50, living in Royal Oak, Michigan, a northern suburb of Detroit. I'm married and have one daughter, 19, a student at Western Michigan Univ.

I first started having kidney trouble when I was about 22 ... a scarlet fever infection gradually began to destroy my kidneys. I was treated with medication for a couple years, then got a transplant in 1980, just before I had to start dialysis. It was an unrelated cadaver donor.

I lived well with that kidney until a few years ago, when it gradually began to fail. In the summer of 2005, it totally crapped out. I retained a lot of fluid, resulting in high BP (220/110) and basically congestive heart failure. The slightest exertion left me out of breath. I ended up in the emergency room. Started hemodialysis a couple days later. I've been on dialysis ever since. I use a fistula ... and it works well most of the time.

I still work full-time, as a writer for a marketing company, producing training materials for the folks who sell Ford cars and trucks.

I've been a blogger for a number of years, writing first on my personal site, "such small hands."  This summer I started a blog for dialysis-friendly recipes that I find all over the place. That's called "Eating Well on Dialysis." Like most of you, the diet restrictions drive me crazy, so I created this site to help me save and share good food that's also low-potassium, low-phosphorus, etc.

That's all I really have time to share right now. I hope to get to know you all as we talk.
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Lee Anne

"For I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers, neither height nor depth nor anything else in all creation will be able to separate us from the love of God that is in Christ Jesus our Lord."

such small hands http://lamillinger.typepad.com/
Eating Well on Dialysis http://lamillinger.typepad.com/eating_well_on_dialysis/
Sluff
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« Reply #1 on: February 21, 2007, 06:37:36 AM »

Welcome lamillinger913,

It's great to have you here at IHD.

I hope you enjoy our recipe section here > http://ihatedialysis.com/forum/index.php?board=32.0

Will be looking forward to your posts it sounds like you have many years of experiences to share.


Sluff, Moderator



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carolyn77531
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« Reply #2 on: February 21, 2007, 06:53:45 AM »

 :welcomesign;
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lamillinger913
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« Reply #3 on: February 21, 2007, 06:57:50 AM »

Oh yeah ... I should add that I'm listed for transplant here in Michigan, in Ohio (Toledo) and Wisconsin (U of W). My daughter was tested to see if she could be a donor, but I have antibodies from my previous transplant and we had a positive crossmatch. She was soo disappointed, the darling. I give her credit just for wanting to try. My husband also is getting checked out to see if he can donate ... but I fear his borderline high BP will rule him out. I've been listed in Michigan about 2 years and about 1 year in Ohio and Wisconsin.
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Lee Anne

"For I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers, neither height nor depth nor anything else in all creation will be able to separate us from the love of God that is in Christ Jesus our Lord."

such small hands http://lamillinger.typepad.com/
Eating Well on Dialysis http://lamillinger.typepad.com/eating_well_on_dialysis/
nextnoel
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« Reply #4 on: February 21, 2007, 07:00:12 AM »

Welcome to IHD! :welcomesign;
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I can't reach the hill like I used to, but I'm not at a standstill yet!
Joe Paul
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« Reply #5 on: February 21, 2007, 08:39:46 AM »

Welcome lamillinger913, good to have you abaord.
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"The history of discovery is completed by those who don't follow rules"
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kelliOR
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« Reply #6 on: February 21, 2007, 04:30:28 PM »

Hi lamillinger913,

Nice to meet You!  Kelli
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Denied PKD for years (Boy, was I good at it!)
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Bajanne
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« Reply #7 on: February 21, 2007, 05:30:40 PM »

Welcome to our community!  This is just the place for you to be.  I would like to read your blogs.  Where can I find them?  I am sure that you are going to enjoy being a part of this site which has become a real family.  Looking forward to hearing from you.

Bajanne / Moderator
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lamillinger913
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« Reply #8 on: February 21, 2007, 05:56:21 PM »

Thanks for the welcome, everyone! I can see we each have some amazing stories and I am just beginning to get into some of them. Just learning my way around.

Bajanne, I figured out how to incorporate links to my blogs in my signature. It takes me a while to get with the technical stuff, but I'm getting there!  ;)
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Lee Anne

"For I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers, neither height nor depth nor anything else in all creation will be able to separate us from the love of God that is in Christ Jesus our Lord."

such small hands http://lamillinger.typepad.com/
Eating Well on Dialysis http://lamillinger.typepad.com/eating_well_on_dialysis/
Rerun
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Going through life tied to a chair!

« Reply #9 on: February 21, 2007, 09:56:12 PM »

Hello lamillinger913, and welcome to our site.  It sounds like you had your transplant for about 25 years!  You did wonderfully!  They DO positive crossmatch transplants.  Read Jill's story in the Transplant Section.  http://ihatedialysis.com/forum/index.php?topic=1319.0

I think they are just getting lazy and the can make more money from us if we are on dialysis! 

Thank you for joining our site.  I'll have to take a look at your recipe site.


Rerun, Moderator
« Last Edit: February 21, 2007, 09:58:32 PM by Rerun » Logged

anja
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« Reply #10 on: February 21, 2007, 10:15:07 PM »

 :welcomesign;  lamillinger913, to our great community!
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Wattle
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« Reply #11 on: February 22, 2007, 12:32:40 AM »

 :welcomesign;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
shay_pcb
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« Reply #12 on: February 22, 2007, 12:37:23 AM »

That's great that you have a site jsut for dialysis-friendly recipes! There needs to be more patients like you!!  :welcomesign; to IHD!!
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angieskidney
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« Reply #13 on: February 22, 2007, 03:32:45 AM »

Hi and  :welcomesign;

I live right near you but across the boarder!! ;)
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
del
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« Reply #14 on: February 22, 2007, 07:39:23 AM »

 :welcomesign; You will like it here.
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MJB
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« Reply #15 on: February 22, 2007, 10:12:40 PM »

Hey Lamillinger913

Welcome to IHD.

Mike

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Mike

1994-1998 CCPD
1998-2002 Transplant
2002-2004 In-Center Hemo
2004-2006 Transplant
April 2006 NxStage System One
September 2006 NxStage PureFlow
billoggblog
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« Reply #16 on: February 23, 2007, 07:30:26 PM »

Hi and  :welcomesign; I had a quick look at your site, looks interesting!! added it to my favorites list to have a good read later.
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Yesterday is History..........Tomorrow is Mystery..........
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