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Author Topic: Hi I'm New!!  (Read 2675 times)
orlamk
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« on: December 02, 2012, 06:35:22 AM »

Hi just wanted to introduce myself. I am a student dietitian and I am interested to learn more about how renal patients cope with dialysis diet, daily life etc. And I am also interested in what you think of your healthcare and how I can learn from you how to be a better dietitian :)
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Rerun
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Going through life tied to a chair!

« Reply #1 on: December 02, 2012, 08:24:07 AM »

Hi Orlmak, and welcome to IHD.  Well, we all have dietitians on here.  We need them to help us on our renal diet.  I suggest you take a month, just one month, and follow it yourself so you have some idea how hard it is. 

You can read lots and lots on here to help you become the best dietitian.  Thank you for wanting to be that person.

Hope you come here often and also tell your patients about us. 

Rerun, Moderator        :welcomesign;
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lmunchkin
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"There Is No Place Like Home!"

« Reply #2 on: December 02, 2012, 11:52:31 AM »

Welcome Orlamk.  Iam married to one who has this disease.  I tried this Renal diet.  It is not very good, so hubby and I do what makes us happy.  We eat anything we want, but he is very good about moderation.  His labs are great, plus, doing Hemo at home, less restrictions as to what he eats.

Hope you post often.

God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
cattlekid
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« Reply #3 on: December 02, 2012, 03:18:15 PM »

Oh yes, and I suggest that the month in question be a month that begins on Thanksgiving and ends around Christmas, just to make things harder.  And make sure to pack your schedule full of events that focus on food with hosts that don't quite understand what the renal diet is or what it entails.  Then add to the mix a bunch of relatives who tell you " just one little bite won't hurt".  And make sure that you are working full time and block out time on your schedule where a dialysis patient would be dialyzing and possibly travelling to and from dialysis.  I suggest about 16 hours a week.  No and cooking or food shopping during those times.   Also, no cheating and allowing a spouse, parent or roommate to food shop or cook either.

Then come back and tell me all about how to follow the renal diet. 

 :banghead;

Hi Orlmak, and welcome to IHD.  Well, we all have dietitians on here.  We need them to help us on our renal diet.  I suggest you take a month, just one month, and follow it yourself so you have some idea how hard it is. 

You can read lots and lots on here to help you become the best dietitian.  Thank you for wanting to be that person.

Hope you come here often and also tell your patients about us. 

Rerun, Moderator        :welcomesign;
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sullidog
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« Reply #4 on: December 02, 2012, 06:34:29 PM »

don't complain about what we patients aren't doing right, then refuse to help us, rather tell us what we aren't doing and then help us with how to do better, I'm not saying you are going to be one of those, but I have had this problem in the past.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
Sydnee
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« Reply #5 on: December 02, 2012, 06:48:04 PM »

Welcome,
I think it is great you are here. Maybe your clients/patients will get better help than Ed (my husband) and I have.

I am pre-dialysis and Ed has been on for almost one year now. On top of that we have 4 wonderful children oldest 17 to 6.
When Ed went on dialysis we asked questions but the answers were not workable especially with our life.
Ed works 12 hour days, does PD, and helps raise our 4 kids. There is SO much more to his life than dialysis but his dietitian does not seem to care.

One thing I would say is look at the whole person not just that they are a dialysis patient.
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After a hard fight to not start I started dialysis 9/13
started on PD
hoping for home hemo starting to build a fistula 1/14
cause PKD diagnosed age 14

Wife to Ed (who started dialysis 1/12 and got his kidney 10/13)
Mother to Gehlan 18, Alison 16, Jonathan 12, and Evalynn 7. All still at home.
www.donate2benefit.webs.com
treesx4
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« Reply #6 on: December 02, 2012, 09:15:45 PM »

Hello! I am new as well. I am lucky enough not to have to restrict food or water yet. I hope you do well @ your job. Both of the dietitians I have worked with sucked! They are not friendly and seem to just want to sit around and talk to the nurses. Be friendly to patients and take the time to honestly sit down and listen to them. Good luck!!!
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April 2011..2 biopsy's
April 2011..In hospital one week, had PD cath. put in.
June 2001..Started PD @ home
July 2011...PD cath. wrapped around my Bowels and was resting on my liver, had to have it repositioned.
August 2011..Had PD cath removed, Diaphragm had a hole and fluid was on my lungs.
August 2011..Had Ash Splint put in my chest..started Dialysis with DCI.
November 2011...In hospital for on week due to P.E...new dialysis machine and I didn't get my Heparin and it caused clots in my lungs.
December 2011..Had chest cath. replaced due to leak.
Feb. 2012...had access put in my arm...
May 2012...had chest cath. ripped out...no pain meds at all.

"Then your salvation will come like the dawn, and your wounds will quickly heal. Your godliness will lead you forward, and the glory of the LORD will protect you from behind." Isaiah 58:8
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