I Hate Dialysis Message Board
Welcome, Guest. Please login or register.
October 21, 2024, 04:40:56 PM

Login with username, password and session length
Search:     Advanced search
532606 Posts in 33561 Topics by 12678 Members
Latest Member: astrobridge
* Home Help Search Login Register
+  I Hate Dialysis Message Board
|-+  Dialysis Discussion
| |-+  Dialysis: General Discussion
| | |-+  Lupus and kidney disease
0 Members and 3 Guests are viewing this topic. « previous next »
Pages: [1] Go Down Print
Author Topic: Lupus and kidney disease  (Read 3216 times)
Grandylori
Newbie
*
Offline Offline

Posts: 1

« on: November 27, 2012, 08:34:48 PM »

I recently happened upon this board when I found out I am in the beginning stages of Lupus Nephritis and wanted to understand more about the disease.  Because I have no insurance, I have tried my best to treat my Lupus naturally, with a lot of success...but, with Lupus you never know what's next!  My heart hurts for John and his wife, and it makes me sick how they were treated by the doctors when John chose to do things differently.  I must say that their story, as well as other's I have read, has heightened my resolve to find an alternative answer to this most frustrating issue.  I say frustrating because all this time I've been eating a diet conducive to healing the Lupus as well as my Lupus induced heart disease, and the kidney disease diet is the exact opposite of what I've been doing these last nearly four years.  Basically, one causes harm to the other and vice versa...and I can't just ignore one to care for the other, since they are the two most important organs in the body. 
Well, I have found an answer and for the last three weeks I've been taking a product called Ubiquinol, which is the bio-available form of CoQ10. I am just recently noticing significantly less pain in both of my kidneys, though I still have a lot of water retention.
There has been a double blind study done that shows CoQ10 can reverse Kidney disease, even in the end stages.  I am posting the better of the sites that talk about CoQ10/Ubiquinol so that you may read them for yourselves, in order of  their significance.  These are available to the public and are not copyrighted.
I wish the best to all of you and hope  this helps at least some of you.  :pray;

http://www.rejuvenation-science.com/n_coq10-kidney_failure.html

http://www.annieappleseedproject.org/coqbenforenr.html

http://digitalnaturopath.com/treat/T89577.html

http://www.livestrong.com/article/499771-ubiquinol-dosage/

http://vitamins-minerals.knoji.com/the-health-benefits-of-coenzyme-q10/

Edited: Moved to General Discussion - okarol/admin

Grandylori,
Please make a post in the "introduce yourself" section.
Thank you.
« Last Edit: November 27, 2012, 09:12:03 PM by okarol » Logged
jeannea
Elite Member
*****
Offline Offline

Gender: Female
Posts: 1955

« Reply #1 on: November 28, 2012, 08:04:54 PM »

Nothing can reverse end stage renal disease. Some people are able to stop dialysis because the disease they had was able to be treated. Don't tell us that taking some nutritional supplement will keep us off dialysis. It's not kind.
Logged
Lillupie
Sr. Member
****
Offline Offline

Gender: Female
Posts: 665


wedding 12-10-11

WWW
« Reply #2 on: November 28, 2012, 08:23:39 PM »

I agree. I have heard stories though about lupus patients going through a few sessions and their kidneys kicked back in. That has not happened to me and it will not. i think your lupus has to be active to the point of it attacking your kidneys to the point of you needing dialysis and after a few treatments you no longer need dialysis. I believe if that happens that is considered as acute renal failure, not chronic. There is nothing we can do to reverse. If there was, we would of all done it by now. Nothing is going to replace an organ without a actual organ.

Sorry,
Lisa
Logged

Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
Pages: [1] Go Up Print 
« previous next »
 

Powered by MySQL Powered by PHP SMF 2.0.17 | SMF © 2019, Simple Machines | Terms and Policies Valid XHTML 1.0! Valid CSS!