lost my fistula yesterday

[Rain]

my fistula c,otted lsst night.  waiting to get a line in.

[Grumpy-1]

They going to be able to re-open it?

[Rerun]

I hope they can get in there and fix it.     

[Rain]

They can't fix it .. the doctor took a look at it..

Tomorrow i am getting a chest catheter in and then waiting to see the surgeon to get another fisula or graft..

Please keep me in your prayers since I need to get another fistula..

[Cordelia]

Oh, no, Rain, I'm so sorry to hear this.                  

You are in my thoughts and prayers hoping that everything goes ok.                Please keep us posted.         

[MomoMcSleepy]

I'm so sorry, Rain, that's awful.  I hope everything goes well from here on out.  Take care, and we'll be praying for you. 
 

[Rain]

Has anyone ever had multiple fistulas?   I just don't want to a graft..

[BobN]

Rain, I'm working on my second fistula and it has held up well for over six years.

Choose your vascular surgeon carefully.  The quality of the operation will go a long way toward determining the successful functioning of the vessel.  Ask your neph who he/she recommends.

Thoughts and prayers your way.

[newgrl]

Has anyone ever had multiple fistulas?   I just don't want to a graft..

Rain,

I have had two fistulas that clotted.  The first was in my left lower arm.  And the second was in my left upper arm.  I could have tried again for a fistula but I did not want to move to my right (dominate) arm.  So I chose the graft because they were able to put it in my left upper arm.  I have been told that the graft won't last as long as a fistula would.  But I am really trying to get a transplant so I am hoping this graft will last me long enough.  Why do you want to avoid the graft?

NewGrl

[kitkatz]

I hate access problems.  Bane of our existence.  Good luck with all of it.

[Rain]

The reason I don't want a graft is my mom had 4 and I saw her get infections in each one.  I know every case is different but still.

[MaryJoe]

rain - I understand your concern about getting a graft in light of what happened toyour mom.  I hope you are able to get another another fistula soon.  Try not to worry (easy for me to say!)   

[dharam85]

y not consider a permanent catherer  a permenant catherer has less chance of infection and u wont need 2 stick needles anymore

[Rain]

i do not want a catheter I will  get temporary one but not permanent since I like swimming and other activities.  I just started training for a mini triathlon and I guess i have to take a break from that for awhile.

[dharam85]

can one tell me wht are pros or cons of permanent catherer actually my doc had said tht which they way they put permanent catherer chances of  infection is very negligable

[dharam85]

one more request i wanted 2 know chances of a person surviving on dialysis
my mom had a sucuessful transplant which lasted for 15 years last year she had a stone operation doc changed her medicines n forgot 2 mention an imp kidney medicine  which has resulted in kidney damaged and she again needs dialysis chances of geeting a new kidney seems diff as of now it might take 4-5 years 2 get one

[MooseMom]

Rain, I'm sorry to hear this and hope you get it all sorted very soon.

[Riki]

That sucks, Rain.. I've had 2 fistulas over the years.  The first one was in my left wrist, and was put in as a backup in case something happened where I couldn't do PD.  It was removed a year after my first transplant, and was never used.  I have a second one now, upper left arm, and it works great.  I think they'll keep putting fistulas in, as long as they appear that they will work with the veins, as long as you want one.  I know people who've had fistulas in upper legs.

[okarol]

y not consider a permanent catherer  a permenant catherer has less chance of infection and u wont need 2 stick needles anymore

What's a permanent catheter? Is it like a HERO graft?

[Riki]

y not consider a permanent catherer  a permenant catherer has less chance of infection and u wont need 2 stick needles anymore

What's a permanent catheter? Is it like a HERO graft?

I was wondering that too.. it's not something I'd want, though

[dharam85]

for many patients developin fistula is not pissible as their veins are thin or damaged for those patients paermanent catherer is used
permanent catherer just requires a surgery where 2 blocks are put 2 elimate chances of  infection though is not as easy as fistula  but many patients need it

if everythin goes on properly a permanent catherer will work for life

[sullidog]

Just wondering did your doc do any autrasound or fistulogram on your existing fistula or did he just look at it and just said nope I can't fix it.

[stringbandbeth]

Perma caths are never recomended for long term use . They are commonly used as a bridge for patients waiting for fistulas to mature and in patients where there is no possibility of a fistula or graft. The chance of infection/complications is much higher than any needle access. We have had lots of experience with perma caths . Pretty sure NO doc would suggest a patient plan on keeping one in as their long term dialysis access if there was any other place to make an access (leg/groin). As for it working for life I guess it depends on how long your life is or if you get a transplant but I've never heard of any patients using a cath for any long term. By long term I'm talking 5+ yrs.

[sullidog]

I once knew a patient who had a permcath for 10 years, not the same one but not sure why he said he never got a fistula.

[Lillupie]

y not consider a permanent catherer  a permenant catherer has less chance of infection and u wont need 2 stick needles anymore

How? How and where would you get a permanat cathater? For hemo? Or are you talking about PD???

Never heard of a permanat cath. If there is such a thing, im switching to NxStage.

Lisa