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Author Topic: On Hemo for awhile  (Read 3414 times)
JLM
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« on: September 21, 2012, 04:19:37 PM »

I had a hernia operation on the 17th and now it's Hemo until I heal.  The first time on the 19th went bad then got worse.  The catheter inserted at my chest was  not working and the tech had to cut stitches and unkink the tubing, there were alarms after alarms, until it finally started to work.  Then there were more alarms, but finally it was doing what it was suppose to do.  There I told them I wasn't feeling well and had to throw up.  I heard the tech say that my Blood Pressure was 70 over something (I didn't catch the number).  They pumped fluid back into me and a while later I got sick again, again low fluid.  After getting me stable the session was ended early.  On leaving the unit I ask that we not have so much fun The next time I come.  SECOND TIME  After getting hooked up there were so many alarms I lost count,  THEN my blood clotted in the machine.  They had to restart everything except the time and things were going smoothly.  My neph has told me that they were only going to clean the blood and not take off any fluid.  WELL guess what? They were taking off a liter of fluid and I crashed .  The top number went from 150 to 96 in about 10 or 15 minutes.  This time it only was the dry heaves.  The treatment was finally over.  The third one is tomorrow,  The tech said it was going better, the 1st time I was sick twice and the 2nd time was only once.  I still don't want to have so much fun.  PD is a breeze!!!!!!!!!
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I'm just where God wants me to be, not one step ahead nor one step behind.
natnnnat
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« Reply #1 on: September 21, 2012, 07:22:58 PM »

I hope you get a clear run tomorrow, this sounds terrible.  Sounds like  you better double check they aren't taking fluid off from now on, especially if you encounter different staff tomorrow.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Sydnee
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« Reply #2 on: September 22, 2012, 01:13:50 PM »

I hope there were not problems today.
How did it go?
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After a hard fight to not start I started dialysis 9/13
started on PD
hoping for home hemo starting to build a fistula 1/14
cause PKD diagnosed age 14

Wife to Ed (who started dialysis 1/12 and got his kidney 10/13)
Mother to Gehlan 18, Alison 16, Jonathan 12, and Evalynn 7. All still at home.
www.donate2benefit.webs.com
JLM
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« Reply #3 on: October 07, 2012, 11:14:43 AM »

THIRD session:  They start to flush the catheter and I had so much pain in my right shoulder that went all the way down to my wrist.  My right shoulder had been useless since the surgery and I was forced to become a lefty.  Anyway, they could not flush the catheter and stopped and brought me back to my room.  Then I went to Radiology to have a new catheter inserted above and closer to my neck than  the previous one.  There was no orders to take the first one out.  Back to the Dialysis center and it went very well after that.  The nurse got orders to remove the first catheter.  My neck area on my right side looks like I was in a cat fight now!  With CCPD I hardy never had fluid gain, but I sure did with the Hemo.  There were times I thought they were out to kill me, but us female cowboys are tough!!!!!!!  I'm home now, back on PD and working to remove the extra fluid I had gained while in the hospital.  The last week I was there I was on Oxygen because my saturation was 88 instead of my usual 98.  I had a 93 so I didn't have to come with oxygen on me.  Friday night was rough.  Nine thirty at night I blew chunks after not eating since lunch and a small Frosty on the way home about 3 pm.   Please God keep my body on PD until You want it back.......
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I'm just where God wants me to be, not one step ahead nor one step behind.
cassandra
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When all else fails run in circles, shout loudly

« Reply #4 on: October 07, 2012, 02:55:49 PM »

I'm sorry to here about all that misery you had to go through. And very glad you're home now.
I hope you're soon back to your previous self.

take care Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
lmunchkin
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"There Is No Place Like Home!"

« Reply #5 on: October 07, 2012, 03:58:45 PM »

JLM, been thinking of you all day.  I sure hope things get smoothed out soon.  Hang in there!  When my John couldnt do PD anymore and went in-center hemo, we hated it because we were so use to being home.  Fortunately, there was NxStage!  We are home again.

Keep us posted on how it is going.

God Bless,
lmunchkin :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
JLM
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« Reply #6 on: October 07, 2012, 04:24:38 PM »

I am home with a speedy recovery from the hernia surgery.  Three weeks instead of the projected 4 weeks.  .  God is good!
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I'm just where God wants me to be, not one step ahead nor one step behind.
lmunchkin
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"There Is No Place Like Home!"

« Reply #7 on: October 07, 2012, 04:28:49 PM »

Yes maam, HE IS.

lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
JLM
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« Reply #8 on: October 11, 2012, 07:49:05 AM »

I have been having a nagging little cough at night and couldn't stay in bed.  I would got to bed, then later get up and kick back in the recliner for a while, then back to bed, then back in the recliner.  Last night, on my own, did a "traffic light" treatment.  One RED, one GREEN and one YELLOW.  At least that is what I called it.  Had a restful night and slept until after 8 am.  My ankles looked normal this morning.
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I'm just where God wants me to be, not one step ahead nor one step behind.
Joe
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« Reply #9 on: October 11, 2012, 10:39:19 AM »

Way to go JLM!  We folks that do PD have that kind of control over our treatment. It's one of the reasons I like PD so much.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
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