PD solution and rip in membrane!

[tbarrett2533]

Hello everyone!

First I would like to say hello and that I have been so busy this summer with camping trips and enjoying the warm weather that I have not been on and I am sorry for that.  I hope my fellow IHD friends are all doing well 

I recently noticed that there was a rather large bulge above my belly button associated with severe heartburn and terrible trouble with drain pain and fill pain (I do CAPD) most days I would be lucky to do 2-3 treatments a day and that was at 1500ml fills (normal for me is 2000ml)  so I told my PD nurse and Neph as which point they told me they thought it was a Hernia so off to Utrasound I went.  come to find out I do not have a Hernia, but I have a pocket of PD soulution that is buliding up in this spot where they thought this Hernia was and I have a rip in my peritnium. 

The PD nurse said she dose not know how or why I am having such terrible heartburn but will call in a script for something.  The Neph does not know what to do with this issuse and does not seem to worried about it............ I on the other hand am not even able to get 1000ml of solution in at most treatment times due to the pain level/bloating even during my dwells.   therefore I am skipping more and more of my treatments because of it yet I am not to worry about this?

so my question to you all is has anyone ever come accross this issue? if so what can be done? what options do I have?
Please do not tell me this is it for my round of PD b/c I refuse to go back to Hemo and that is all that is left for me at this point if PD fails

thank you all in advance for your feedback
 

[Joe]

Tracy, I haven't heard of that particular problem. Sorry that it hurts so much, I do know how bad drain pain can be. Ive had it wake me in the middle of the night. Here's hoping your Neph comes up with an answer soon.

[tbarrett2533]

Thanks Joe, hope things are going well for you

[billybags]

tbarrett2533, that sounds awful and painful. How long will you have to wait for a solution to this? Surly they can not leave you to muddle through, it is not right. Get back on to your nurse or neph.