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Author Topic: So........Who here tweets?  (Read 2531 times)
Stu
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Oooooooh yeah!
« on: September 03, 2012, 08:25:30 PM »
As the title says, I'm always looking for interesting people to follow on twitter

So....do you tweet? If so under what name?
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47 Fluid Control Suggestions for Dialysis Patients
Haemo 3 x a week, Ico bags overnight
Joker, smoker, midnight toker....
Tweet me at @AngryDXGuy if you dare
MommyChick
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Me & my precious Miracle !!!
« Reply #1 on: September 03, 2012, 08:28:14 PM »
I facebook,  :rofl;  :rofl;  does that count?
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~ Hello All, My names Marna ~

- 1995 - 12 yrs old found out my kidneys were both failing
- 1996 - Dec. 3 I received my 1st kidney transplant at age 13, after 7/mths on the waiting list
- 2005 - In Aug. transplant failed after 9.5 years, had to have a nephrectomy due to being very ill & massive hypertension
           - End of Aug. 1st time on dialysis
- 2006 - Had my fistula placed & ready to go
- 2010 - My little Miracle was born 6/mths into the pregnancy, weighing 2.4 lbs & 13.25 in long
          - Found out my PRA is 100% & I have antibodies that CAN'T be decreased
- 2013 - Oct. 2nd  *** I finally received my kidney!!! ***
          - Dec. 3rd I had 3.5 parathyroids removed, due to them interfering w/my new kidney.
Fatkidney
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« Reply #2 on: September 03, 2012, 09:04:45 PM »
I'm a tweep.  I'm now following you.  @lookawinder
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June 2004 diagnosed with PKD
April 2012 Listed for transplant
November 2012 3rd and finally successful fistula placement, left basilic vein. Yay, it worked!
GFR down to 10.
Deceased donor transplant August 24, 2013.  Perfect match. So far so good!
okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #3 on: September 03, 2012, 11:14:08 PM »
I tweet for IHD - @ihatedialysis
And for myself and my daughter's kidney FB page - @okarol
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #4 on: September 03, 2012, 11:14:40 PM »
Quote from: Stu on September 03, 2012, 08:25:30 PM
As the title says, I'm always looking for interesting people to follow on twitter

So....do you tweet? If so under what name?

And you?

UPDATED

Oh I found it in your profile! You're one of my tweeps!
« Last Edit: September 03, 2012, 11:16:38 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #5 on: September 22, 2012, 07:36:59 PM »
No tweets, just chirps.  :rofl;
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
deniferfer
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My nickname is princess
« Reply #6 on: September 23, 2012, 01:48:29 AM »
I tweet @deniferfer (yes that is my name for most everything) Lol  I don't tweet a lot but hey I have one....I Facebook too if anyone wants to add me there


 https://www.facebook.com/jennifer.mcclung81?ref=tn_tnmn
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1981-1995: Perfectly fine
1996: November, started feeling sick
1997: April, creatine at 17 and began dialysis    
1997: May Place on PD
2006: Had to replace PD tube
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