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Author Topic: Afraid to be denied after being listed  (Read 2041 times)
gothiclovemonkey
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« on: July 26, 2012, 01:18:55 AM »

How easily do they change their minds? ive gained some weight, but im losing again, so hopefuly THAT wont be an issue BUT
Ive been having really weird symptoms, and im a little afraid to mention them to anyone because i fear if it is something they would deny me a kidney transplant.
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
MommyChick
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Me & my precious Miracle !!!

« Reply #1 on: July 26, 2012, 07:15:00 AM »

Hello,
I know each person is different & maybe even your doctors might do things a little different, but I have always let my doctors know what was going on if I had any pains, aches or whatever it may be.
I would hate for it to effect a kidney if they went to transplant me, especially after all that time & work that goes into a transplant.....

example: The last few months I had been having really bad stomach issues to where I was in the ER several times feeling like I was going to die. Here I had ulcers so I was very glad I went to the doctor before things got worse.
Unless it has been something life threatening they have always kept me on the transplant list! Even when I was pregnant I was still accumulating time, I was just on hold till my son was born.

Good Luck  :cuddle;
Hopefully your pains are nothing serious
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~ Hello All, My names Marna ~

- 1995 - 12 yrs old found out my kidneys were both failing
- 1996 - Dec. 3 I received my 1st kidney transplant at age 13, after 7/mths on the waiting list
- 2005 - In Aug. transplant failed after 9.5 years, had to have a nephrectomy due to being very ill & massive hypertension
           - End of Aug. 1st time on dialysis
- 2006 - Had my fistula placed & ready to go
- 2010 - My little Miracle was born 6/mths into the pregnancy, weighing 2.4 lbs & 13.25 in long
          - Found out my PRA is 100% & I have antibodies that CAN'T be decreased
- 2013 - Oct. 2nd  *** I finally received my kidney!!! ***
          - Dec. 3rd I had 3.5 parathyroids removed, due to them interfering w/my new kidney.
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