Husband 45 with no dialysis for 6 days-says he's quitting

[monrein]

    those are for you.

    those are for you, him and your family.

[johnswife]

Just an update guys. Johns still here and still the same. Just weak and sleeping. It's I think day 12 or 13 I lost count. He's a tough guy is all I know!!!

[okarol]

  Hi johnswife,
Do you have hospice helping you now?
Sending you {{HUGS}}
 

[johnswife]

 No hospice hasn't been notified. He says he's not in pain so he doesn't think he needs it.

[cassandra]

But maybe you would? and so that might help him too?

lots of love, and strength Cas



           

[kitkatz]

 

[Joe]

Keeping you in our thoughts and prayers. And I think the hospice idea is a good one, it will help you through this too. Just my 

[boswife]

   Bless these days for you.. Strength and peace...   

[Grumpy-1]

Hospice isn't just for pain.  It is for mental and physical help for the patient AND the family.  Please give them a call.  Grumpy

[boswife]

Just checking on you Johnswife  

[okarol]

Hospice helps keep the patient clean, calm and comfortable, as well as giving support to the family.

[Roxy]

Sending      and keeping your family in my prayers

[BobN]

Please encourage your husband to hang in there.  I won't say dialysis gets easier over time, but having been on for almost seven years, I can say that the side effects will lessen as you learn more about what works for you as an individual.  The treatments affect everybody differently, but once you get into a routine, it is less stressful on the body.

Please keep this community advised of your progress, you'll find a lot of caring and support here.

Bless.

[lola]

Lisa, I soooooo respect you for standing by HIS choice to stop. I pray for comfort and strength for you i do hope you have hospice come and help they r amazing.

[raidym]

Sending my thoughts and prayers to you  xxx

[MomoMcSleepy]

I'm so sorry that you all are going through this.  You are good to try to change his mind, and good to support him when he doesn't change his mind, but either way, it's a very hard thing to got through.  God bless you, sweetheart, we are all thinking of you!

[johnswife]

Sorry I haven't posted in a few days. John is now on day 16 no dialysis. Had blood work done yesterday.

Gfr 3
Bun 4.8
Blood urea nitrogen 79
Potassium 6.4

They set him up for surgery today to remove his pd catheter and his chest catheter. He's def getting weaker by the day but still hanging on.

[Deanne]

I admire the strength you show through all of this. I see your heart is breaking, and also that you're willing to allow it to be broken if this is what your husband feels is right for him.

[MomoMcSleepy]

Thank you for the update.. Have you called hospice?  My experience wasn't so great, but the nurse there round the clock was a comfort, and took care of necessary notifications, etc.  Also, I wasn't alone with my dad that way, and she checked his vitals and told me what was going on, which was a comfort of sorts.  His last nurse was actually my favorite, and like I said, I was so glad not to be alone, not to have to know what to do....and I still cleaned him up, changed his clothes, and dressed his wounds, I just had help.

I'm sorry to be morbid, it's just easier to have them there, even the company  that we hired, which I  wouldn't recommend (Vitas), had good people.   Even if he changed his mind, I think they might still help if he is extremely ill like this.  You can go in and out of hospice.

I'm so sorry.   

[Bajanne]

I hope you continue to know that you are not àlone as you go through this. Your entire IHD family around the globe is with you. Thank you for updating us. My caring thoughts and prayers are with you.

[brenda seal]

This is absolutely heartbreaking . my Mum  chose to end her treatment  ( not dialysis , she had cancer )two years ago and Iwent through this . It was the hardest thing I have ever done and I still have not recovered . May you find the courage to cope . God bless you and John . I think of you every day and hope it is over soon .

[MaryD]

 

[amanda100wilson]

WhY are they putting him through surgery?  That seems cruel and unnecessary.

[kporter85db]

WhY are they putting him through surgery?  That seems cruel and unnecessary.

My thoughts exactly!

[johnswife]

Well they didn't do the surgery. We went and when we were waiting in preop they had his dr come in and he told him he was admitting him, well he was furious. They were wheeling him up to hemo to have dialysis that he didn't want through his chest catheter that is infected. They took a culture last week and it does have an infection. They just would not listen or hear him when he was telling them I am no longer interested in dialysis. Well needless to say he had to argue with social workers, nurses, doctors all day!! They finally let him go AMA and told him he was selfish and not thinking clearly. I told then he's been very Ill for a long time and they don't know him or what he's went through and that he's thought long and hard about everything. They were so mad that he didn't listen to them that they never even took out his iv!! He had to take it out himself in the van on our way home. So he's now resting, infected catheter still in place as well as pd catheter. They couldn't believe he's not had dislysis 17 days and still walking.

I told them my husband is as strong Willed and stubborn as they come and he's going on his terms. They think he's only got a few days at most. We will see.