Quote from: angieskidney on November 25, 2006, 10:06:25 PMThere was a lady in the dialysis unit yesterday from out of town who loved to talk to everyone. She told me that she had been on Prednisone a LOT in her life and everytime when the dose was finally lowered and she was off her moon-face would go away. But she told me it is different when you are older. She said her face didnt spring back like always and infact her face hung (extra skin) and the doc even thought she was really sick cuz of how she looked. !! That's just great. I'll finally get off the Prednisone and I'll end up looking like a bloodhound...
There was a lady in the dialysis unit yesterday from out of town who loved to talk to everyone. She told me that she had been on Prednisone a LOT in her life and everytime when the dose was finally lowered and she was off her moon-face would go away. But she told me it is different when you are older. She said her face didnt spring back like always and infact her face hung (extra skin) and the doc even thought she was really sick cuz of how she looked. !!
I have a hate/love relationship with prednisone. I hate it for what it can and does do to ya... but I love it b/c how it helps ya at the same time... Crazy. We have a lot in commin, being sick at such a young age and blah blah, however our kidney failure is from different things, too bad we didn't know each other when we were kids, woulda made my teenage years easier to actually know another teenager going through it also...
Quote from: mallory on November 28, 2006, 10:00:10 AMQuote from: angieskidney on November 25, 2006, 10:06:25 PMThere was a lady in the dialysis unit yesterday from out of town who loved to talk to everyone. She told me that she had been on Prednisone a LOT in her life and everytime when the dose was finally lowered and she was off her moon-face would go away. But she told me it is different when you are older. She said her face didnt spring back like always and infact her face hung (extra skin) and the doc even thought she was really sick cuz of how she looked. !! That's just great. I'll finally get off the Prednisone and I'll end up looking like a bloodhound... Everyone has different side effects (if any) to prednisone... just because one person's looks came out a certain way, does not mean yours will also
Why cant you get off Prednisone? I was on it since I was 12 years old, and once weened down to the 5mg a day in 2004, I stopped it.. no prob... After 14 years of taking Prednisone and being on very high doses to very small doses... to IV prednisone VERY high doses... I had no problem stopping it...What happens when you stop it?
they strated weaning my daughter off from predisone since nov..it has been a rough ride...i remerber when she on high doses...lol i didnt want to be around her....they got 2.5 mg every other day....they want her adernal glands to start working......i want to know more about the prednisone regime.....i think im going to talk to this with her doc.....Does anybody have any information
Quote from: angela515 on February 07, 2007, 07:13:19 PMWhy cant you get off Prednisone? I was on it since I was 12 years old, and once weened down to the 5mg a day in 2004, I stopped it.. no prob... After 14 years of taking Prednisone and being on very high doses to very small doses... to IV prednisone VERY high doses... I had no problem stopping it...What happens when you stop it? Joint pain, muscle weakness, lack of Appetite, fatigue. I think my adrenal galand is not functioning properly. Your adrenal gland naturally produces 7.5mg of "whatever" is like prednisone and so when you go off of Prednisone your adrenal gland should kick back in. Mine is sluggish.
Angie, don't they have any other hormonal replacement other than Prednisone for you?
I've been taking prenidzone since I was 13 years old. Without 7.5mg a day I cannot even walk.
I've been suffereing from the nastiest form of gout since late 1970's. At this point they tell me the only medication they can safely? use is prednisone.
Seems like gout is a relatively a common condition for renal paients. Are you taking anything to control your gout pain?
I started a new thread here...http://ihatedialysis.com/forum/index.php?topic=2638.msg37338#msg37338 regarding Gout.
Quote from: renal30yrs on February 09, 2007, 03:31:55 AMI've been taking prenidzone since I was 13 years old. Without 7.5mg a day I cannot even walk.Well... Prednisone helped me walk also, cuz I have RA.... however, Prednisone also caused me to NOT walk... b/c being on it for so long, and high doses at times, it deteriorated the bones in my ankles, both of them... and I had to have both ankles fused.... and when your 15/16 years old and told that when fusing ankles, you will no longer be able to walk again... it's just horrifying. Luckily for me again, I had the best Orthopedic Surgeon at the time... he was the O. Surgeon for the Jacksonville Jaguars the first couple of years when they first became a team. He did the surgery so well, I CAN walk... first one hes ever had that could walk again still.... he even had me sign a consent to be able to use my story and experiences in a book of his. To give hope to others that it CAN happen... So yah, theres always a bad effect that can happen from the Prednisone causing good... Damn that medicine