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Author Topic: So who has young children out there?!  (Read 3352 times)
lainiepop
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« on: May 19, 2012, 12:25:46 PM »

Hi! just wondered if many others have young kids would be nice to chat from time to time.
I'm marie, am 30 , been married for almost 7 years. got 2 children, Andrew (Drew, 4) and Elena (Lainey, 10 Mths). we're from the UK!
Look forward to getting to know some people! x ;D
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: May 19, 2012, 12:47:32 PM »

Never had the chance to have kids, hope you don't mind be on this thread just to wish you, and your dad all the luck in the world with your ops

love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
lainiepop
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« Reply #2 on: May 19, 2012, 01:34:51 PM »

Aww thanks Cas, it's 10 days away now getting nervous so is dad! think it's mvm & hubby who need luck as they're with the Kids, me & dad will be relaxing with books & tv  :rofl;

and of course I don't mind you being on this thread, Im just Curious as have seen a few posters mention children & wonder how many & if similar ages to mine.

Take care x
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
YLGuy
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Posts: 4901

« Reply #3 on: May 19, 2012, 02:26:47 PM »

I am a single dad with ESRD but my children are older.  I am 49 and my children are 20, 18 & 14.  My kidneys failed 3 years ago. 
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Cordelia
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« Reply #4 on: May 19, 2012, 04:18:05 PM »

Hi there!

I have 3 kids. Twin girls, aged 13 and a son, who is 11 yrs old.
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
lainiepop
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« Reply #5 on: May 20, 2012, 12:21:56 AM »

Hey! out of interest, as your kids are older, Which do you find 'easier'? boys or girls? mine are a bit young but I've found already boys can be bit silly & Boisterous ! X x
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
YLGuy
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Posts: 4901

« Reply #6 on: May 21, 2012, 03:02:29 PM »

I do not know if my kids are a good gauge.  I am extremely lucky with my kids.  They are VERY good kids.  My oldest son is now 20.  He is at the top of his class at college.  He got in trouble once.  It was in middle school and he had detention for chewing gum.  My youngest son is 14.  He is at the age where he is pushing the limits and the biggest issue we have is bed time.  I bumped it up 30 minutes but he has to be in bed at the same time.  I just let him watch TV for the extra 30 minutes.  He is an honors student and is entering into the same Distinguished Scholars program my daughter was in. Now...my daughter.  She is 18.  She is in her 1st year at college but went in as a sophomore because of all the college classes she took in high school.  Out of the 3, she is my biggest helper.  When she saw me cooking or cleaning she would jump right in and help me without me asking.  It practically takes an act of Congress to get my boys to do the 1 job they have: taking out the garbage. 
Yes, I am very proud of how they do in school.  What I am really proud of is the fact that they can put other peoples wants and needs before their own.  Both my oldest son and daughter donate blood.  My oldest is also listed as a bone marrow donor.  He has offered to give me one of his kidneys but that is another thread all together. I guess my answer to this question would be neither are easy.  If you want your kids to be, "easy" you need to put the time and effort into raising them.  I have always been a very hands on dad.  They have always known that no matter what I am there for them.   
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Cordelia
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« Reply #7 on: May 21, 2012, 03:20:16 PM »

It's hard to say. I have one child (My son) that has a lot of special needs at school. He is high-functioning Autistic.  Being young and older has had its unique challenges. I can't say if him being younger/older is easier. I can say though, the temper tantrums are not what they used to be, so that is a good thing.         :)

One of my twins has a mild form of epilepsy and likely has inherited my kidney disease.

Having twins has its joys and challenges too.         :)
« Last Edit: May 21, 2012, 03:24:12 PM by Cordelia » Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
MaryJoe
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« Reply #8 on: May 21, 2012, 03:48:15 PM »

lainie,  Both of my kids are grown, my daughter is 37, my son is 23, (yeah, 14 years apart, it was almost like having 2 only children!) my daughter was definitely more mellow than my son.  he gave ADHD whole new meaning! :stressed;  He's still an adrenalin junkie, cave diving is his latest thing.  I call him my proof God has a sense of humor. :rofl;

MJ
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
deniferfer
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My nickname is princess

« Reply #9 on: May 21, 2012, 05:16:03 PM »

I don't have any kids of my own but my cousin is 3 and i have helped raise her, if fact I just had her yesterday and took her swimming. My nephew is 8 months and then my sister that lives with me is 20, so i don't think that she counts as a kid anymore.  ;D
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1981-1995: Perfectly fine
1996: November, started feeling sick
1997: April, creatine at 17 and began dialysis    
1997: May Place on PD
2006: Had to replace PD tube
smcd23
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The patient, the baby and the donor - October 2010

WWW
« Reply #10 on: May 21, 2012, 07:28:12 PM »

I have a (mostly) wonderful 2 and a half year old son.
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Caregiver to Husband with ESRD.

1995 - Diagnosed with vesicoureteral reflux and had surgery to repair at age 11. Post surgery left side still had Stage I VUR, right side was okay. Both sides were underdeveloped.
2005 - Discovered renal function was declining, causing HBP. Regular monitoring began.

March 2008 - Started transplant evaluation for preemptive transplant due to declining function.

September 16, 2008 - Transplanted with my kidney.
September 18, 2008 - Kidney was removed due to thrombosis in the vessels in and leading to the kidney.

October 2008 - Listed in Region I

May 2009 - Started in Center Hemo
January 2010 - Started CCPD on Liberty Cycler

June 15, 2012 - Kidney transplant from a 43 year old deceased donor
June 22, 2012 - Major acute rejection episode and hospitalization began
June 27, 2012 - Nephrectomy to remove kidney after complete HLA antibody rejection. Possibly not eligible for another transplant, ever again.

Now what?
Annig83
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« Reply #11 on: May 21, 2012, 08:13:21 PM »

My son will be 18 months old in 2 days!! (Carson)  :bandance;

I have been around children my whole life and I always found boys to be easier than girls (especially when they become teenagers!!! OMG!) :)  Grateful that I have a boy, but sometimes I wish I could have another...I was an only child and sometimes I wish that Carson could have a sibling to grow up with... I always wanted one.
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
kitkatz
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« Reply #12 on: May 22, 2012, 08:35:16 PM »

My two daughters are 25 and 26.  One lives at home.  She picks me up from nocturnal dialysis Mondays and Wednesdays now so hubby can get some sleep.  The other one lives in Oklahoma and works for a mortgage company.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
gothiclovemonkey
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« Reply #13 on: May 27, 2012, 01:56:59 PM »

HEllooO!
 I have one son, aged 8! He is a handful!! He has some issues himself, due to prematurity (not to mention im not a good disciplinarian!) Im a single mother, ive been single pretty much all his life, until recently. (still not married YET but the man im with has stepped up into husband/father role) I have had help from my father though.

Im going to be very candid and say i never really wanted a child, infact for a long time i thought i didnt like kids... As it turns out, its not kids i dont like, its parents! lol (not all, but a lot of them!)
I could not love anyone more than i love my son, and i love my neice too (although shes the reason i realized its parents i dont like, not kids! because i love her to bits but she has begun to take the same route as her parents --- which is to say Oh god no help! save the babies!!!)
Children are a real pain in the backside, sometimes, but boy are they also rewarding and lovely to have around.
My son has been around a whole 8 years, and hes the sweetest kid, seems to be well liked, and his teachers tell me hes always ready and willing to help. Im very blessed. I feel bad that hes been down this health road with me, but i do believe its made him the sweetheart that he is.

If you ever want to chat, hit me up :)
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
lainiepop
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Posts: 876


« Reply #14 on: May 27, 2012, 02:06:51 PM »

Thanks everyone, looking forward to getting to know you all a bit better!

 I find the hardest thing at the moment is my life is kind of on hold & other mums have no idea how easy it is to be healthy with kids, but its made me appreciate them & stuff more & not complain so much bovt things normal mums do as it seems so trivial. actually that'S a lie I prob do but I have reason to be more tired  ;D

will reply to you all individualy but off to bed & not sure when will have time as Tuesday is the day I'm getting my dad's kidney so tomorrow am having morning  with kids then food out & cinema

will update you x
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
Cordelia
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Gender: Female
Posts: 2012


« Reply #15 on: May 27, 2012, 02:53:40 PM »

Have an awesome time!!!        :2thumbsup;

Congrats on getting a kidney!!!! I hope and pray all goes well!         :clap;

Keep us posted!            :cuddle;
Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
MaryJoe
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Gender: Female
Posts: 544


« Reply #16 on: May 27, 2012, 03:50:59 PM »

laniepop,  Enjoy your day with the kids tomorrow.  I'll be thinking of you and your dad on Tuesday.  Not sure about the time thing,  :waiting;   but I will send prayers off throughout the day. :pray;

MJ

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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
deniferfer
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My nickname is princess

« Reply #17 on: May 28, 2012, 10:12:16 AM »

Good luck today and I hope all goes well with both you and your dad. 
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1981-1995: Perfectly fine
1996: November, started feeling sick
1997: April, creatine at 17 and began dialysis    
1997: May Place on PD
2006: Had to replace PD tube
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