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Author Topic: I think TODAY is finally the day...  (Read 8511 times)
brandywine
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« on: April 03, 2012, 06:25:55 AM »

As soon as I started dialysis, my brother stepped up to the plate to be a donor. We were a perfect 6/6 match, but his high blood pressure prevented him from donating. Thank God, he didn't. It's a year later, and he just had a stint put in a 100% blocked artery (which was only 30% blocked last year). He himself is now on disability from various autoimmune diseases (that we share).
So, I have gone a year, with no hope of a donor, and in December a complete stranger volunteered. This sweet 67 year old lady offered me one of her kidneys when she met my husband by chance, and he shared my story. Because of her age, I never thought Mayo would give her the time of day but they did. Her O- is compatible with my O+ and they scheduled her for the work-up in the middle of February. Three weeks later!!! my donor got so upset about not hearing anything that she pestered them until she got someone on the phone. It turns out, they hadn't heard my case yet, because they were waiting on mammogram, pap, and colonoscopy results for tests they never gave, nor did they tell her to get. That set us behind another 2-3 weeks, while she scrambled to get things done. So, finally, last Tuesday, the committee met. AND.....the 24 hour urine didn't match the blood work. She would have to redo it. Apparently, she peed in the middle of the night in the toilet (because she was sleepy) instead of the jug, and it threw off the numbers. Her function is at 84% according to the bloodwork, but it was in the 60s on the urine test. She drove up Thursday (an hour) to get her jug, immediately started the collection, and drove back up and hour to deliver the sample on Friday-all so that our case can be heard again TODAY!
So, prayers...that TODAY is the day that I find out that I have a new kidney.
As soon as I find out, I will share.  :pray;
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IgA Nephropathy Diagnosed Feb 2009
Transplant List Nov 2010
Peritoneal Dialysis Dec 2010
cassandra
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When all else fails run in circles, shout loudly

« Reply #1 on: April 03, 2012, 07:51:14 AM »

wow good luck brandywine. keep us informed

love Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: April 03, 2012, 08:12:40 AM »

 :2thumbsup;

I understand about that 24 hour urine test....I failed it.... twice!  :rofl;

I hope this is the one for you!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
lainiepop
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« Reply #3 on: April 03, 2012, 10:49:52 AM »

Hi Im new here but just wanted to say i hope this works our and u get your transplant!! My dad is donating to me at the end of May (my function is 8.8% am hoping to hold off dialysis til transplant) but he is 66 and i originally thought my parents were too old to be donors but they said its their health not age that matters. Im not sure dad's function but we were told they work better than expected for someone his age as the function would indicate he's in his 40s not 60s, and they both work 50/50 so that's good for me! Just shows how someone older can be healthier than someone younger doesn't it! Tons of luck hope u get results soon xx
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
MooseMom
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« Reply #4 on: April 03, 2012, 11:24:37 AM »

I'm hoping to hear good news from you. :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
brandywine
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« Reply #5 on: April 03, 2012, 12:09:56 PM »

Willow...let's hope SHE doesn't fail twice. :P
LaniePop-welcome to the forum, it was a lifesaver for me my first year on dialysis
MM-So you're partying, eh?  :yahoo;  MIA for a couple of days and everyone freaks out. LOL Glad you are back and off your bender. :rofl; Tee hee.
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IgA Nephropathy Diagnosed Feb 2009
Transplant List Nov 2010
Peritoneal Dialysis Dec 2010
jeannea
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« Reply #6 on: April 03, 2012, 01:04:21 PM »

Crossing my fingers for you. She sounds like an amazing woman.
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Poppylicious
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« Reply #7 on: April 03, 2012, 01:56:27 PM »

Really hoping that you get the news you want!

*huggles*
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- wife of kidney recepient (10/2011) -
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JustDee
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« Reply #8 on: April 03, 2012, 04:48:14 PM »

Obviously all Angel's don't live in heaven....we have some right here on earth.  I have my fingers, toes and eyes crossed that you get your new kidney!!!!!
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Lillupie
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« Reply #9 on: April 03, 2012, 05:07:07 PM »

wow that is really cool that they will allow for someone that age. THey told me at Universty of Michigan that the donor has to be between the ages of 18-65.


I guess every center is different

Lisa
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
Mr. B 123
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« Reply #10 on: April 03, 2012, 09:56:12 PM »

Good luck, hope all works well for you!
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Honor God, work hard, and keep show'in up.
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Traveller1947
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« Reply #11 on: April 04, 2012, 01:59:48 AM »

I'm praying for you, brand wine.  All the best to you and your angel.
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brandywine
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« Reply #12 on: April 04, 2012, 07:17:22 AM »

My angel just called. We had already decided, whether it was good news or bad, that we would meet face to face when she shared the news with me. We are meeting at 12:30 today, where I will get the news. Thanks for the prayers. :)
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IgA Nephropathy Diagnosed Feb 2009
Transplant List Nov 2010
Peritoneal Dialysis Dec 2010
brandywine
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« Reply #13 on: April 04, 2012, 03:40:00 PM »

 :bandance; :cheer: My donor was approved!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Yes. Yes. Yes.
The earliest date available for surgery is June 5th. I am so excited. I can't wait!!!
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IgA Nephropathy Diagnosed Feb 2009
Transplant List Nov 2010
Peritoneal Dialysis Dec 2010
MooseMom
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« Reply #14 on: April 04, 2012, 04:26:05 PM »

That's just such wonderful news!  Oh, you're going to have a brand new life, and it will be grand!  Best of luck to you both, and please give your donor a special hug from the rest of us who would love to have an angel of our own.  June is not that far away!  Congratulations!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
adairpete
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Me and Karl

« Reply #15 on: April 04, 2012, 11:09:14 PM »

That's such good news!  :cheer: I've been wishing you good thoughts all day and am so glad your donor was approved! You'll have to let us know when the date is set!
Congrats!
 :flower;
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Diagnosis: distal renal tubular acidosis with medullary sponge kidney
3/4/2010 started hemo via sub-clavian catheter
6/15/2010 listed for kidney (on hold)
8/2/2010 started CAPD
3/20/12 on active wait list for kidney
lainiepop
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« Reply #16 on: April 05, 2012, 01:42:07 AM »

Yay thats wonderful news!!!  :bandance; Your op is a few says after min
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
jeannea
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« Reply #17 on: April 05, 2012, 12:47:39 PM »

That's amazing! I'm so glad it worked out. :bandance;
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cassandra
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When all else fails run in circles, shout loudly

« Reply #18 on: April 05, 2012, 02:25:11 PM »

fantastic!
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
bleija
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« Reply #19 on: April 10, 2012, 07:22:46 PM »

super mega excited for you!!!  :yahoo; :2thumbsup; :clap;  :bandance;  :bestwishes;  :flower; :beer1;  :cheer:  my brother wants to donate to me, and hes o neg and im o pos, i have been callling them everyday waiting for my financial clearance to go throgh... i told my brother to do the same, eventually they will have to give us a date so we will quit bugging them. he hasnt even started his testing yet, what all does it entail for the donor? just curous, i know all the testing we have a as recipients but is it more extensive for the donor?



Edited : fixed smiley error - paris, Moderator
« Last Edit: April 19, 2012, 06:59:54 PM by paris » Logged
jeannea
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« Reply #20 on: April 10, 2012, 08:49:10 PM »

There's some different testing for the donor. EKG, chest xray, blood work, 24 hr urine are similar. Donor also needs a renal arteriogram and maybe IVP. The arteriogram is a little sucky. I stayed with my mom after to keep her company.
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bleija
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« Reply #21 on: April 12, 2012, 11:30:33 AM »

ok i am working with shands in gainesville, and they told my brother that he would have all the testing in one, will tnhat include the renal arteriogram... is there any special things he needss to ddo to prepare, i told him take someone with him and have any question he has ready
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highway61
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« Reply #22 on: April 19, 2012, 06:44:06 PM »

Yeah! I am happy for you BrandyWine! Please keep us posted.

I just got a new kidney about a month ago. When you get yours lets talk and compare notes. :-)
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paris
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« Reply #23 on: April 19, 2012, 07:05:49 PM »

Best of luck. I am 19 months post ---- yes, I still count the months!!  And you will still be this excited when you are at this point.  Every day I wake up, I thank my donor for saving me.   

Happy for you     :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
jeannea
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« Reply #24 on: April 21, 2012, 10:38:37 AM »

I don't know of anything he needs to do to prepare. They'll tell him if he needs to fast. I think he just has to get through it. Lots of deep breathing.
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