Hello Fellow Dialysis Haters!

[Kammie]

Hello to All!  I am new here and found this place by simply sitting at my computer, feeling very frustrated, and typed in I HATE DIALYSIS! LOL!  Imagine my surprise when I found this site! 

Heres my story...I had kidney failure in 1997.  They have never been able to tell me why my kidneys failed.  When they did the biopsy to see, my kidneys were so atrophied, there was nothing really left to biopsy!  My Nephrologist seems to think it was undiagnosed High Blood Pressure.  Anyway, because I have such a great family, several members were ready and willing to donate.  My brother proved to be a great match and I had my transplant in 1998.  In 2004, I had a really bad rejection episode..They were able to save my kidney but it did great damage.  My 'New' Kidney has been slowly failing since then..

In August 2011, I had the port put in and was placed on Peritoneal Dialysis.  Due to what I've read here..I hesitate to complain at all..Let me just say that some of your stories are heartbreaking.  But also know that, never having been on dialysis before my transplant..I had no idea what was involved.  Now that I know..I am SOOOO thankful to have a place to vent, listen, and learn!

While so very grateful to be able to do this at home, while I sleep, I am simply miserable more than half the time!!  My stomach looks like I'm about to give birth, I have developed Neuropathy, and I have constant drain issues! UGGGH!  Because I have so many BP issues, I have to vary my solution strenghts almost every day.  It seems my whole life revolves around DIALYSIS..Labs, EPO, Supplies, (Soooo many supplies!), etc..

I am currently on the Transplant List, but realize I will be on for an indeterminable amount of time..While I wait, I now have somewhere to come to when it all overwhelms me and I feel all alone in this!  Thanks!!

[boswife]

  and always nice to get 'the story' of why your here    Your 'finding' of IHD is hystaricle and pretty familiar to me.  I found it pretty much the same way...lol  soooo, enjoy, you've found yor self a great place!    gottA GO,,, gotta unhook hubby from his machine  ... Were on NxStage

[Bajanne]

Welcome to our community, Kammie!  So glad you found us!  This is just the place for you to be - lots of information ,support and encouragement.  Looking forward to hearing more from you. But tell us, are you a boy or a girl.  You can go to your profile and let us know!
You are now part of a tremendous family - full of genuinely caring and sharing people.  Just keep reading and keep posting.





Bajanne, Moderator

[Rerun]

Hi Kammie, and welcome to IHD.  I too found this place by typing "People who hate dialysis".  LOL

I'm so glad you found us.  Keep reading.  Suffering is relevant.... if it is happening to you it sucks!

                   

Rerun, Moderator      

[willowtreewren]

Hi, Kammie!

 

I'm so sorry that you needed to find us, but glad you did! 

You can share your laughs, frustrations and tears.... anything and everything. Welcome to the community.

Aleta

[lmunchkin]

Hello Kammie.  A fantastic intro by the way! Yes this is a dreadful disease, but we are here to hopeful make it easier for you in some sort of way.  Hope you come here often and post.  We are here for you and want you to feel very welcomed!
Iam wife to one who has this disease and found this site while training for home hemo.  I am so very blessed to have come across this site also!  Glad to have you aboard!

Again Welcome & God Bless,
lmunchkin
 

[Poppylicious]

  Kammie!

[billybags]

Kammie    to the family. You will get lots of support from here. If you feel like venting "do it" if you want questions answered "ask We are all in this together.

[Lillupie]

welcome here. i looked at your profile because i thought you were my age (like 30). you look really good for your age.

Lisa

[lmunchkin]

Both of you are lovely ladies!

lmunch

[Lillupie]

Both of you are lovely ladies!

lmunch

Aw you are so sweet Imunch

[Kammie]

Thanks for warm welcome Guys!  I look so forward to getting to know all of you & yes, venting, too! LOL!

Thanks too, lmunchkin & Lillupie, for the compliment - thats not really me, though, it's my younger, sweeter, sister!  LOLLOL!  Naaah..JUST KIDDING! It's really me, taken last summer, pre-dialysis..there's now 10 more lbs of me!

[lmunchkin]

10 more to love in my opinion!  You are a very lovely young (Im old) lady.

lmunch

[conchman]

Welcome Kammie, I searched dialysis about a year ago, a found IHD, kinda' dumb luck... Lurked around for the last year, just trying to learn what everyone here stood for, and it seemed like they stood tall.  I research the heck out of things before I try/join/buy, but I am now looking forward to the up coming years hanging around people who will know what I will be up against.

[RichardMEL]

Kammie, Welcome to IHD!!!

First of all, I love your note about sitting there frustrated and typing in I HATE DIALYSIS into google. You know, our founder EpoMan (RIP) would be loving that. Guess what Epo, your dream is truly getting out there. Brilliant!

Your intro was delightful to read, and it's lovely you have so much empathy for others, but don't put your own experiences down... your story is just as important as anyone's here... sure your experiences are different, but so what? We all share this evil disease, whatever the cause, and you're part of our community now! So there.

Welcome again to IHD!

RichardMEL, Moderator

[looneytunes]

Hi Kammie and welcome to the group!      I am a care partner to my hubby who has been on D since 2007 and we also HATE dialysis.  But, though life changed with the big D, there is life, just a little different.  Glad you joined and I'm looking forward to seeing your posts. 

[cariad]

Kammie!

I know what you mean about feeling grateful after reading all the stories on here. However, renal failure adds a new dimension to life that the uninitiated usually cannot understand, so we are happy to offer support for problems big and small, no explanations required about why you cannot eat or drink something, why you need time for exchanges, why you might look absolutely fine (you are stunning for any age!) but really not feel well. IHD really has helped me cope. It's a great group of people and I hope you continue to avail yourself of all this site has to offer.

I look forward to getting to know you better.