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Author Topic: Johns Hopkins or Cleveland Clinic  (Read 1784 times)
dstevens
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« on: January 27, 2012, 09:36:44 AM »
Has anyone had any experiences at either Johns Hopkins or the Cleveland Clinic they'd like to share? I'm looking into both for a transplant and was wondering how they treated people. I had a really bad experience in Pittsburgh and was looking into other centers. Any thoughts are much appreciated. Thanks so much!
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sparklelady
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« Reply #1 on: January 27, 2012, 10:37:38 AM »
dstevens, just wondering, what happened in Pgh? I had a transplant at UPMC Montifiore, was that where you were? ( I apologize if this question is too personal, I'm just curious)
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dstevens
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« Reply #2 on: January 27, 2012, 11:45:29 AM »
Not too personal at all Sparklelady. I actually posted my whole story in the post right above this one (I think). It's titled "Denied a transplant without dialysis". It's pretty lengthy though just to forwarn you. I did have my transplant at Montifiore and it was an awful experience.
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rsudock
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will of the healthy makes up the fate of the sick.
« Reply #3 on: February 01, 2012, 10:38:32 AM »
I sent you a PM with the doc info at University Hospitals in Cleveland.

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
lawphi
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« Reply #4 on: February 03, 2012, 05:14:37 PM »
My husband received his kidney at Johns Hopkins and we had the best experience. 

We have our nephrologist's email and home phone number. 
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Girl meets boy with transplant, falls in love and then micromanages her way through the transplant and dialysis industry. Three years, two transplant centers and one NxStage machine later, boy gets a kidney at Johns Hopkins through a paired exchange two months after evaluation.  Donated kidney in June and went back to work after ten days.
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