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Author Topic: Chicago spring meetup - date set, reservation made!!!  (Read 82365 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #75 on: January 30, 2012, 01:10:00 AM »

I am glad you all have planned a meet up and hope you'll post photos! I wish I could be there but will be in spirit. Each meeting with IHD members is a special memory for me. Have a great time!
 :yahoo;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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Cattitude

« Reply #76 on: January 30, 2012, 08:05:12 AM »

Also if you want to take the train from Ogalvie, go upstairs from Union Station to the Adams Street exit, cabs are always there, or there is bus 157 at the Canal Street exit that stops at Ogalvie, trouble is timing.
Ogilvie to Geneva (the penultimate stop on the line to Elburn) is about 1 hr 10 minutes.  If you decide to take the train all the way to Geneva, you can either get a taxi from there or you can just phone me, and I can come get you.  I am about a 2 minute drive from the station.
Take the train from Union Station to Naperville and I'll meet you there. That is the easiest way for you, just a walk around the corner (Inside the building). Or I can meet you downtown and take train back together. I can meet you at the Metra Cafe, or upstairs in the bar area by pizza hut.

I'm lost already!  It's good to know I can catch a ride from someone, though.  At any rate, if I can go, I'll get together with one of you and work out some travel plans a couple weeks ahead of time.  The 29th is the weekend AFTER exams, so I at least won't have to worry about studying!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

gothiclovemonkey
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« Reply #77 on: January 30, 2012, 09:54:22 AM »

well ill definitely ask him if hed like to do that!
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"Imagine how important death must be to have a prerequisite such as life" Unknown
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thegrammalady
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« Reply #78 on: January 30, 2012, 10:30:12 AM »

i want to come. let me look into arrangements from denver and i'll get back to you.
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......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
jbeany
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Cattitude

« Reply #79 on: January 30, 2012, 03:11:06 PM »

You might want to add the April 8th deadline to RSVP to the title of this thread, so anyone thinking of joining us later knows how long they have to decide.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

cattlekid
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« Reply #80 on: January 30, 2012, 03:55:46 PM »

Thanks jbeany!

I have also added the current list of attendees to the initial post and will continue to update as RSVPs come rolling in.   :2thumbsup;
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Chris
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« Reply #81 on: January 30, 2012, 04:18:49 PM »

I looked up address and a website.
Copper Fox Restaurant 305 West Main Street, St. Charles, IL (630) 945-3435 () ‎ · copperfoxcafe.com
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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« Reply #82 on: January 30, 2012, 04:24:22 PM »

OK, definitely know where this is at since I looked up map. Just forgot that Main Street is Route 64/ Butterfield Road. Now just have to figure out how to send to cars gps from Google.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #83 on: January 31, 2012, 11:14:30 AM »

Good Grief I have a lot to catch up on....


Moosemom what is this map you speak of?? :)

Anyway so are we eliminating April 15, 6, or 7 as a possbile date then? I know the week I picked sucks b/c it's Easter but I will bring chocolate bunnies....

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
cattlekid
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« Reply #84 on: January 31, 2012, 12:18:44 PM »

The date has been set for April 29th (Sunday).  We decided to eliminate Saturdays for those in-center and also wanted to avoid Easters (both Western Christian and Eastern Orthodox).  Hope you can make it!!   :2thumbsup;

Good Grief I have a lot to catch up on....


Moosemom what is this map you speak of?? :)

Anyway so are we eliminating April 15, 6, or 7 as a possbile date then? I know the week I picked sucks b/c it's Easter but I will bring chocolate bunnies....

xo,
R
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CebuShan
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« Reply #85 on: January 31, 2012, 12:31:27 PM »

I will definitely be there with my husband. So excited, can't wait!
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
MooseMom
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« Reply #86 on: January 31, 2012, 12:53:25 PM »

I will definitely be there with my husband. So excited, can't wait!

Fantastic!!!  I'm so glad your husband is interested in coming, too.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
gothiclovemonkey
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« Reply #87 on: January 31, 2012, 03:17:16 PM »

sorry to ask this on this thread, but it involves this so...

would it be rude of me to ask my bf to do this on his bday?? i feel like it would be rude... ?
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"Imagine how important death must be to have a prerequisite such as life" Unknown
HemoDialysis since 2007
TX listed 8/1/11 inactive
LISTED ACTIVE! 11/14/11 !!!
cattlekid
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« Reply #88 on: January 31, 2012, 03:29:42 PM »

why would it be rude?  You can always celebrate his birthday on another day or later in the day.  We won't be partying all day (or will we?)   :yahoo;
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cattlekid
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« Reply #89 on: January 31, 2012, 03:30:10 PM »

Awesome!  I have added you to the list of attendees.   :clap;

I will definitely be there with my husband. So excited, can't wait!
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CebuShan
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« Reply #90 on: January 31, 2012, 04:02:10 PM »

We looked it up and we are going N on 47 to 64 then heading E. My husband is familiar with the area; one of the bakeries his company services is in that area.
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
jbeany
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« Reply #91 on: January 31, 2012, 06:51:38 PM »

sorry to ask this on this thread, but it involves this so...

would it be rude of me to ask my bf to do this on his bday?? i feel like it would be rude... ?

Why not celebrate the b-day with a whole day in Chicago, with just a stop off for lunch with the IHD crowd?  Surely there's something he'd like to do that evening in such a big town for his birthday as well? 
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

Chris
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« Reply #92 on: January 31, 2012, 10:36:47 PM »

Took awhile with tech support from Ford  :stressed;  but finally was able to get Google and Mapquest maps sent to my car. What a pain technology is when they make a mistake. There shouldn't be 3 different websites associated with functioning all these new tech gadgets on ones car, one website is all that should be needed :banghead;
 
So I'm set as long as I wake up in time.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
MooseMom
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« Reply #93 on: January 31, 2012, 11:26:47 PM »

sorry to ask this on this thread, but it involves this so...

would it be rude of me to ask my bf to do this on his bday?? i feel like it would be rude... ?

Tell him we will make a big fuss over him!  LOL!  Seriously, if he were to accompany you, we would know that he was kind and supportive of you, and we would take extra pains to make him feel special.  This meet up is not just for IHD members but also for the partners who mean so much to us and work so hard to make us happy despite all of this crap.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
thegrammalady
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« Reply #94 on: February 01, 2012, 09:28:39 AM »

if i decide i can come, what airport do i fly into? is there even more than 1? can i get to the meet location conveniently or should i just skip it and save for vegas?
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
cattlekid
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« Reply #95 on: February 01, 2012, 10:03:48 AM »

You could either fly into O'Hare or Midway.  From Denver, I would suggest O'Hare.  It is also closer to the meet location than Midway.  As far as convenience, it's not terribly close.  You would need to rent a car.  There are hotels very close to the meetup site - St. Charles/Geneva are beautiful small towns around the Fox River. 

if i decide i can come, what airport do i fly into? is there even more than 1? can i get to the meet location conveniently or should i just skip it and save for vegas?
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thegrammalady
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« Reply #96 on: February 01, 2012, 10:08:47 AM »

You could either fly into O'Hare or Midway.  From Denver, I would suggest O'Hare.  It is also closer to the meet location than Midway.  As far as convenience, it's not terribly close.  You would need to rent a car.  There are hotels very close to the meetup site - St. Charles/Geneva are beautiful small towns around the Fox River. 

if i decide i can come, what airport do i fly into? is there even more than 1? can i get to the meet location conveniently or should i just skip it and save for vegas?

in general i don't mind renting a car. on the other hand i've gotten to the point i don't even like driving at home. gives me something to think about. thanks.
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s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Chris
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« Reply #97 on: February 01, 2012, 10:20:59 PM »

There is a train system that can take you to Union Station and possibly Ogalvie train station. I see them advertise that option when I take the train at Union station, but do not know the route or if there is a transfer. I will be going back to Chicago next week and if I'm not running late (last two times I have), I will look at the wall display so I can look it up.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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« Reply #98 on: February 07, 2012, 04:25:02 PM »

While in Chicago today Ipicked up a schedule for transit from O'Hare airport to Union Station and Amtrack information from Southern Illinois and oter stops. Some drop you off in Naperville which is closer to the meeting point. I will have to look at them later tonight after I rest for a bit, I just got home.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paris
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« Reply #99 on: February 07, 2012, 05:49:45 PM »

Always a great time when IHD'ers meet up.   It will be fabulous!
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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