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Author Topic: first day of pd  (Read 4863 times)
rileysmom
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« on: January 10, 2012, 01:57:21 PM »
well today i did my first offical day of dialysis, no more flushes it was the actual dialysis and went pretty good. my pd nurse is awesome so i am thinking that training will go smoothly.  :2thumbsup;
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MooseMom
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« Reply #1 on: January 10, 2012, 04:08:53 PM »
Oh, that is such good news!  This must be such a relief for you!  Well done!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
lmunchkin
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"There Is No Place Like Home!"
« Reply #2 on: January 10, 2012, 04:15:35 PM »
Awesome!!!!  You will find PD very natural to do.  Just be Sterile, and you will be fine!

Congrats, Rileysmom!  So happy for you.  Remember, to ask questions here if you need to know anything.  IHD is full of information!

God Bless,
lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Joe
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« Reply #3 on: January 10, 2012, 05:39:39 PM »
Congratulations RileysMom! As lilmunchkin said, just keep things clean and you will do fine.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
rileysmom
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« Reply #4 on: January 10, 2012, 06:07:55 PM »
thanks everyone. and yes i definitely plan on trying to be as sterile and clean as i can especially after some of the stories my pd nurse told me today. some were so gross and unbelievable i asked if she was making them up.
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natnnnat
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« Reply #5 on: January 11, 2012, 01:41:51 AM »
Oh my, a comment like that might encourage people to share their gross stories too, and then where will be be?   :o
Meanwhile, Rileysmum, its great to hear that things are going well.  Here's to an easy, simple, trouble free dialysis career for you and your family.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
billybags
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« Reply #6 on: January 11, 2012, 05:22:48 AM »
You will do fine on PD, it wont take you long to get in to the swing of it. Always remember "Do not cut corners"
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highway61
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« Reply #7 on: January 11, 2012, 04:52:36 PM »
Quote from: rileysmom on January 10, 2012, 01:57:21 PM
well today i did my first offical day of dialysis, no more flushes it was the actual dialysis and went pretty good. my pd nurse is awesome so i am thinking that training will go smoothly.  :2thumbsup;

YAY You!  I hope things go well. Like others have said, keep things clean and sceptic and you will be fine.   :cheer:
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rileysmom
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« Reply #8 on: January 11, 2012, 06:00:19 PM »
thanks everyone, well today i got to practice on the "dummy" and was able to do all the steps with out  a hitch. my nurse feels i should be good to go by myself by saturday and then next week start learning the cycler. i just dont know how i am going to feel walking around all day feeling so full.
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MaryD
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« Reply #9 on: January 11, 2012, 06:51:14 PM »
You'll get used to walking around all day feeling full.  After two days you don't even notice any more - at least as long as you don't catch a glimpse of yourself in the mirror.  Looking at me front to back I look the way I've always looked.  Looking at me sideways on I might be slightly pregnant.

I also found on day one that I developed a backache.  I suspect it was just that my centre of gravity had changed.  It has never been back since then.
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cath-hater
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« Reply #10 on: January 11, 2012, 10:18:57 PM »
.
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Currently on PD using Fresenius.
PD for 9 years.
1 failed transplant in 2010 due to FSGS - donor kidney still inside and still producing urine (weird), but spilling alot of protein.
Off all immunosuppressants.
Currently not active on any list (by choice).
cath-hater
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« Reply #11 on: January 11, 2012, 10:22:16 PM »
Quote from: rileysmom on January 11, 2012, 06:00:19 PM
thanks everyone, well today i got to practice on the "dummy" and was able to do all the steps with out  a hitch. my nurse feels i should be good to go by myself by saturday and then next week start learning the cycler. i just dont know how i am going to feel walking around all day feeling so full.

Believe it or not.  After you're on PD for a while, you're gonna get so use to having solution in you, that when you don't have it in you...you're gonna feel "empty".  You'll start to feel "right" when the solution is IN YOU, instead of OUT OF YOU.  Other PD veterans here should know what I'm talkin about.
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Currently on PD using Fresenius.
PD for 9 years.
1 failed transplant in 2010 due to FSGS - donor kidney still inside and still producing urine (weird), but spilling alot of protein.
Off all immunosuppressants.
Currently not active on any list (by choice).
highway61
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« Reply #12 on: January 12, 2012, 05:00:54 PM »
I am far from a veteran of PD, but I do not feel too much different when I am full. But then again, I am a portly fellow and a few extra pounds doesn't really impact much. Especially since I have lost 20 pounds in excess fluid I was carrying around before PD. I am feeling better on PD than I did before PD.
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beachbum
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« Reply #13 on: January 16, 2012, 09:17:13 AM »
Quote from: rileysmom on January 11, 2012, 06:00:19 PM
thanks everyone, well today i got to practice on the "dummy" and was able to do all the steps with out  a hitch. my nurse feels i should be good to go by myself by saturday and then next week start learning the cycler. i just dont know how i am going to feel walking around all day feeling so full.

I was worried at first about feeling so full. It's funny because 1000cc used to really bother me now I don't even notice. I still feel pretty full after 2000cc and I've had to adjust my nightime dwell so I can sleep but I am getting used to it. Congrats on everything going well!
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Joe
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« Reply #14 on: January 16, 2012, 01:34:44 PM »
I do 2000cc fills in the afternoon and have about that much when I come off in the morning. I've noticed my back bothering me a little bit, but not unmanageable.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
rileysmom
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« Reply #15 on: January 16, 2012, 05:42:46 PM »
during the day i am doing 2000 ml"s but at night my pd nurse is now having me do 1500ml's to see how that goes. i was having a hard time sleeping at night with 2000ml's , i was feeling so full and my chest was hurting when i was laying down trying to sleep. soo uncomfortable , so we will see how tonight goes with 1500.... hopefully by next week i will be on the cycler. has anyone ever felt nauseous while doing a fill or right after ( iactually wound up throwing up, luckily i had a garbage bag next to me)? i did last night and this afternoon when i was filling, when i was doing 2000ml's but tonight when i did 1500 i felt fine.
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