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Dialysis: Home Dialysis
Bummer
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Topic: Bummer (Read 4386 times)
Atooraya
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Bummer
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on:
December 04, 2011, 06:52:24 PM »
Got news that my phosp is too high. Gotta take renvela......
Are there any home remedies to reduce phosph other than reducing it's intake?
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Joe
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Re: Bummer
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Reply #1 on:
December 04, 2011, 07:10:39 PM »
I have the same issue and have both Renvella and Calcium Acetate. I do the Calcium Acetate for Breakfast and Lunch, and the Renvella at dinner. Will see with my labs this month if mixing them works better than the Calcium Acetate alone.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
fearless
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Re: Bummer
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Reply #2 on:
December 04, 2011, 07:33:51 PM »
the only thing I've heard that reduces phosphorus besides binders and a low-phosphorus diet is extended therapy home hemo - that is several hours per night at a slow speed, which apparently removes phosphorus (other forms of dialysis do not)
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Kong
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Re: Bummer
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Reply #3 on:
December 08, 2011, 11:24:23 AM »
My neph has me eat three Tums with every meal to keep my phos down. Maybe this would help.
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sullidog
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Re: Bummer
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Reply #4 on:
December 08, 2011, 06:53:29 PM »
I take 5 renvella,
Another way is do nockturnal d.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
fearless
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Re: Bummer
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Reply #5 on:
December 08, 2011, 09:47:54 PM »
I think it's important to follow doc's directions regarding what pills you take. Calcium is effective at binding phosphorus, but depending on your residual kidney function, the calcium itself may become a problem (that is what happened for me) I can only use renagel, and I have to be careful to stay away from high-calcium food or pills (as well as phosphorus foods)
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Atooraya
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Re: Bummer
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Reply #6 on:
December 09, 2011, 05:17:22 AM »
Thanks for da feedback y'all. I get my test results back today on phos. Let's see what Renvella can do.
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tbarrett2533
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Me licking my kidneys from my birthday kidney cake
Re: Bummer
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Reply #7 on:
December 10, 2011, 06:59:52 AM »
first off let me say that I have NEVER took a binder (so I may be the exception here)
but I did in-center Hemo
for 8 months and I followed the renal diet so strictly that it would make your head spin!!
then I switched over to CAPD and have been doing that for almost 7 months and now I eat whatever I want, drink whatever I want and do whatever I want!!
now, my phos runs 3-4.5 EVERY month!!!
I eat chocolate, peanut butter, deli meat, nuts.... I mean I eat WHATEVER I want (drink whatever I want to..... yes alcoholic beverages too
)
but the one thing that I do not eat AT ALL, not even a taste, is DAIRY of any kind and I don't care, I think that's why my phos has never been an issue for me!!!!!!
so I am going to go with that try avoiding dairy all together!!! it could work, it could not, but I think its worth a try don't you?
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list
Dialysis works for me, I don't work for dialysis!
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Atooraya
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Re: Bummer
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Reply #8 on:
December 10, 2011, 01:09:08 PM »
Definitely. However, I use very little dairy. Occasionally a slice of cheese.
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fearless
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Re: Bummer
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Reply #9 on:
December 10, 2011, 09:19:54 PM »
For some people who still have some kidney function, and maybe haven't been on dialysis very long, phosphorus might not be a big problem yet. However, i encourage everyone who is on dialysis to avoid high-phosphorus foods. They will make staying healthy harder for you.
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billybags
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Re: Bummer
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Reply #10 on:
December 11, 2011, 09:24:29 AM »
My husband does not do dairy, no milk in his tea, no custard, no cream, no butter, no chocolate, he is so boring, but it keeps his phos down. Why don't they inform you of these things when you start going into renal failure. My husband was being assessed for 4 years before D not once did they tell him to watch his diet. As soon as he hit D it was, don't eat this don't eat that. Why the hell didn't they say that before.
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sullidog
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Re: Bummer
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Reply #11 on:
December 11, 2011, 01:57:02 PM »
I am the same way, I can't take binders with calcium, even have to be careful with the zemplar.
As for totally doing away with something in your diet, I tried that when I first got on d, I totally did away with foods with potassium, or if it did have potassium it had very little, well my k got too low and my hart didn't like it.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
amanda100wilson
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Re: Bummer
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Reply #12 on:
December 19, 2011, 06:34:47 PM »
When I was on PD the first time around, I did not have to worry about my diet because I had residual renal function. When I was on it after my transplant failed, I had no residual renal function, it was a different matter and i had to take binders and restrict my intake. That is a big factor in how easy it is to control. Now I am on short-daily using NxStage and myphosphorous hascome down considerably so when I see my doc. Next I suspect that he will reduce my binders. No-one shouldtake Tums or any other calcium binder unless ordered by their doctor since they can send serum calcium levels too high and in the long term, calcium deposition can occur in the body.
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ESRD 22 years
-PD for 18 months
-Transplant 10 years
-PD for 8 years
-NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.
Always look on the bright side of life...
Atooraya
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Re: Bummer
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Reply #13 on:
December 20, 2011, 09:55:34 PM »
Thanks for the feedback all.
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bleija
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Re: Bummer
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Reply #14 on:
December 24, 2011, 08:25:51 AM »
my dietician told me that animal phosphorus, like from dairy is absorbed soo much quicker than planmt phosphorus... dairy really gets me so now knowing that i take the binder first thne eat or drink my dairy, lol
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Atooraya
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Re: Bummer
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Reply #15 on:
December 24, 2011, 11:36:25 AM »
That's a good piece of info to have. Thanks.
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