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Author Topic: Hello from Andy  (Read 5279 times)
Andy55
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« on: January 27, 2007, 10:19:01 PM »
Hi everyone, my name is Andy and I live in Indiana (originally from NJ). My PKD has finally taken its toll and the Neph says dialysis is just around the corner (weeks/months??). So as I sit here in pre-d mode I know you all have stared this beast down ahead of me. Bear with me if I ask the usual nube questions in the forums as the inevitable draws closer. My wife and I have six kids, two still at home/college...really close family. Of course they are all worried about me...mostly because the fatigue is impossible to hide...big changes ahead. I look forward to meeting you all.
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Andy

The woods are lovely, dark and deep.
But I have promises to keep,
And miles to go before I sleep,
And miles to go before I sleep.
jbeany
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« Reply #1 on: January 27, 2007, 10:48:57 PM »
 :welcomesign;

Ask away; we're happy to repeat ourselves to help someone new!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Wattle
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« Reply #2 on: January 27, 2007, 10:55:24 PM »
 :welcomesign; Andy
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Joe Paul
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« Reply #3 on: January 27, 2007, 11:23:43 PM »
Welcome Andy, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
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Sluff
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« Reply #4 on: January 27, 2007, 11:26:22 PM »
Welcome to IHD Andy and don't worry about asking questions thats what we are here for. You have a lot going through your head right now so relax read through the forums and try to absorb. Don't forget to take time for fun also.

Here's a place for caretakers to get you started. The reason I picked that section is because you and your family can learn together and read together. http://ihatedialysis.com/forum/index.php?board=33.0.

If you have any question just ask and don't worry.

Sluff, Moderator
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Andy55
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« Reply #5 on: January 27, 2007, 11:37:03 PM »
Thank you all for the warm welcome...as I sit here at 2:30am contemplating the future, I thank God I found this site!
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Andy

The woods are lovely, dark and deep.
But I have promises to keep,
And miles to go before I sleep,
And miles to go before I sleep.
Sluff
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« Reply #6 on: January 27, 2007, 11:39:12 PM »
Quote from: Andy55 on January 27, 2007, 11:37:03 PM
Thank you all for the warm welcome...as I sit here at 2:30am contemplating the future, I thank God I found this site!

And we are blessed to have you here. :thumbup;
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shay_pcb
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« Reply #7 on: January 28, 2007, 01:32:22 AM »
 :welcomesign; WOW! 6 kids...that's awesome! You must be a strong person!!
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Rerun
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« Reply #8 on: January 28, 2007, 03:33:16 AM »
Hi Andy and welcome to our site.  Don't worry, it sounds like you have a wonderful support system.  So far do any of your kids show signs of PKD? 

There are lots of members on this site with PKD.  I'm sure you will figure that out as you read more.  Hope you find this site interesting.

You will do fine.                    :welcomesign;
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Bajanne
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« Reply #9 on: January 28, 2007, 05:48:54 AM »
Welcome to our community, Andy!  We are so glad to have you with us.  I too thank God for this site.  For me, it was just the right time.  I joined just before I went on dialysis, and it is impossible for me to express how this site helped me through that period and continues to help me to this day - 17 months after.  Take advantage of all the posts here that concern what you are going through.  You will find them in General Discussion and especially in FAQ - Frequently Asked Questions.   There are thousands of posts - this is an amazingly active forum, so take you time and read as much as you can.  But at the same time, feel free to ask questions.
Please continue to post and let us know how you are doing.  Remember, we intend to go through this WITH you.  Many members can attest to the fact that this site has been a support through their many and varied challenges.  We are not just a community, we are a family here.
Welcome again.  Here is a group hug for you -  :grouphug;

Bajanne/Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
boxman55
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« Reply #10 on: January 28, 2007, 07:43:43 AM »
Welcome Andy55, Go Colts!  Boxman55
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
MJB
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« Reply #11 on: January 28, 2007, 09:13:58 AM »
Hi Andy,

Welcome to IHD. :welcomesign;

I know how you feel. I remember well when I lost my kidneys to PKD. It sounds as if you have a lot of support. I can say after the initial shock of it all, it usually calms down and you can live a pretty normal life with some limitations. Take your time into finding the right treatment choice for you. I wish you all the best.

Keep in touch.

Mike

P.S. Da Bears!!!!! :yahoo;
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Mike

1994-1998 CCPD
1998-2002 Transplant
2002-2004 In-Center Hemo
2004-2006 Transplant
April 2006 NxStage System One
September 2006 NxStage PureFlow
paris
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« Reply #12 on: January 28, 2007, 12:23:09 PM »
Welcome, pleased to meet you!  This is a good place to come to for information, compassion, and there is always a shoulder to cry on.  Glad you are here :welcomesign;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
glitter
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« Reply #13 on: January 28, 2007, 07:38:02 PM »
hi- :welcomesign; let your wife know that she is welcome here too-my husband has no kidneys,but I am the poster.This place has taught me alot of things I need to know to help him adjust.
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #14 on: January 30, 2007, 01:09:51 AM »
Hi Andy,

 :welcomesign;  and see you around.

Tamara xxx ooo  :beer1;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
angieskidney
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« Reply #15 on: January 30, 2007, 01:16:44 AM »
What type of dialysis will you be starting? There are plenty of threads here, especially about Hemo Dialysis but I found Peritoneal Dialysis allowed so much more home time with family.

Glad you are here! Nothing can compare with more support!  :welcomesign; :grouphug;
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FREE Donor List for all Kidney Patients!

diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
Zach
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« Reply #16 on: January 30, 2007, 04:41:37 AM »
Hello Andy.  It's good to have you as part of our community!  Looking forward to your posts.
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
kelliOR
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« Reply #17 on: January 30, 2007, 08:45:12 AM »
Hi Andy! 
 We have some things in common.  I'm from NJ originally, had chronic kidney disease from PKD, and my husband and I have five kids (4 of them teenagers).  Nice to meet you!  You will find good information and camaraderie here at IHD. 

Kelli
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Shoot for the Moon.....Even if you miss, you'll end up among the Stars ........


Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
anja
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« Reply #18 on: January 30, 2007, 08:29:41 PM »
 :welcomesign;  Andy55, so glad that you have joined this site at this time in your life.  It helped me tremendously in making an educated decision as to the type of dialysis I would start.  I have been on PD for 19 months.  You will become knowledgeable as to the terminology associated with kidney failure and also learn the questions to ask the nephrologist.
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nextnoel
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« Reply #19 on: February 02, 2007, 08:26:07 AM »
Welcome to IHD, Andy55!  :welcomesign;  I'm also pre-D, and I've learned so much from others on this site - the more I know, the less I fear!   
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I can't reach the hill like I used to, but I'm not at a standstill yet!
BigSky
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« Reply #20 on: February 02, 2007, 03:02:55 PM »
Welcome
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bluedove57
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« Reply #21 on: February 19, 2007, 06:19:35 AM »
Hey Andy, I understand what your saying. Fatige is part of dialysis especially on the days you dialize. I have low blood pressure which runs in the high 70"s and low 80"s. My body isn't dialysis friendly and I'm still not use to it after 5.9 years. I have good days and bad days. I make the most of my good days which are not dialysis days. Keep your chin up. We all understand your battle for we are in the field with you.
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Andy55
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« Reply #22 on: February 25, 2007, 02:20:45 AM »
Bluedove, Thanks for the encouragement. It means a lot!  :thumbup;
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Andy

The woods are lovely, dark and deep.
But I have promises to keep,
And miles to go before I sleep,
And miles to go before I sleep.
billoggblog
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You Dialyse to Live....You Don't live to Dialyse!
« Reply #23 on: February 25, 2007, 12:19:02 PM »
:welcomesign; Andy Personally, I find more answers here, than I did in my renal unit. By reading other members posts, you will soon get the answers to most of the questions you have, and many others you didn't even think about.

Good Luck
Bill.
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Yesterday is History..........Tomorrow is Mystery..........
Today is a Gift...That's why they call it Present.
glitter
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« Reply #24 on: February 25, 2007, 12:20:54 PM »
 :welcomesign;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
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