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Author Topic: Fistula driven pleasure? Wtf?  (Read 3975 times)
HouseOfDialysis
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« on: November 21, 2011, 03:41:23 PM »

I have a virgin fistula. Made, never used. And when I'm in the shower and the water is hot and it hits my fistula just right from an angle, it's almost like an orgasm. Am I the only one this happens to?
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Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
sullidog
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« Reply #1 on: November 21, 2011, 06:41:49 PM »

I don't mean to lol but this is interesting, and no I don't notice that.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
ToddB0130
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« Reply #2 on: November 21, 2011, 06:43:27 PM »

Uhhhhhhhhhhhh............. excuse me while I go and take a shower ...................... HA !!!
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HILINE
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« Reply #3 on: November 21, 2011, 06:49:34 PM »

that;s sick  :Kit n Stik;
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Rerun
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« Reply #4 on: November 21, 2011, 07:30:28 PM »

I have a virgin fistula. Made, never used. And when I'm in the shower and the water is hot and it hits my fistula just right from an angle, it's almost like an orgasm. Am I the only one this happens to?

yes.
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fearless
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« Reply #5 on: November 21, 2011, 08:57:57 PM »

hey, you better be careful about that!   ha ha ha!
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The Lady
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« Reply #6 on: November 21, 2011, 10:24:50 PM »

It's probably unique nerve damage.

Consider it a bonus gift for playing the game of Life. :lol:
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Ken Shelmerdine
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« Reply #7 on: November 22, 2011, 06:16:03 AM »

erm...........(cough) does it have to be a powerful shower. Did you measure the angle. Erm..... just curious....
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Ken
Cordelia
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« Reply #8 on: November 22, 2011, 09:01:49 AM »

Oh my      :o           :shy;
« Last Edit: November 22, 2011, 09:03:11 AM by Cordelia » Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
kporter85db
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« Reply #9 on: November 22, 2011, 01:26:29 PM »

Now see, I've been on the fence about getting a fistula as a backup to my PD. This information just might push me over the fence. :yahoo;
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May/2010 Sulfa based antibiotics killed my already weakened kidneys, almost
Feb/2011 PD catheter placed
July/2011 Started Peritoneal Dialysis
Nov/2013 Started NxStage 5 days/week

Ken
jeannea
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« Reply #10 on: November 22, 2011, 01:45:21 PM »

Now I know why I read here every day. You never know what you'll learn. Dang that's an unusual effect.
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HouseOfDialysis
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« Reply #11 on: November 22, 2011, 01:57:10 PM »

It seems to be more intense when it is at a catty-corner angle. But I first discovered this about a year ago, when I first took a shower after my fistula surgery site healed up. But it's gotten more pronounced by the month. By next year, I can probably give up on that goal of self-fellatio.
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Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
mcclane
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« Reply #12 on: November 22, 2011, 01:59:57 PM »

hmmmmmm, i'm going to have to crank up the hot water, close the bathroom door, and hope to dear god I have at least an hours worth of hot water in the tanks  :rofl; :rofl; :rofl;
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Cordelia
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« Reply #13 on: November 22, 2011, 02:16:51 PM »

 :rofl;      :rofl;      :rofl;      Mcclane

Uhhhm dare I ask what a catty-corner angle is? LOL Never heard of that, that's a new phrase I've never heard of            :rofl;   
« Last Edit: November 22, 2011, 02:18:52 PM by Cordelia » Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Bill Peckham
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« Reply #14 on: November 22, 2011, 02:48:22 PM »

um ... where exactly did they place your fistula?


I guess the only down side would be the pruney skin from being in the shower so much
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
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Home Hemodialysis: 2001 - Present
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ToddB0130
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« Reply #15 on: November 22, 2011, 02:52:30 PM »

If this is really happening,  maybe there needs to be a site I *REALLY* Love Dialysis .............Mwaaaaa Haaaaaa Haaaaaaaa
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HouseOfDialysis
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« Reply #16 on: November 22, 2011, 03:08:50 PM »

HA!

Yes, I can vouch it does happen. I've experimented with cold and lukewarm water but there is no reaction. Hot water, works.

I have my fistula in my forearm about three inches from my wrist.
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Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
HouseOfDialysis
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« Reply #17 on: November 22, 2011, 03:09:30 PM »

Catty corner is perpendicular.
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Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
Cordelia
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« Reply #18 on: November 22, 2011, 03:19:24 PM »

Catty corner is perpendicular.

Ooooh!       :shy;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
kitkatz
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« Reply #19 on: November 22, 2011, 04:50:23 PM »

Oh my.  That says a lot for having a fistula!
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sullidog
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« Reply #20 on: November 22, 2011, 04:55:23 PM »

I'm sure my surgeon will get a kick out of this
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
HouseOfDialysis
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« Reply #21 on: November 22, 2011, 04:57:13 PM »

I was talking to a friend of mine about it being the already mentioned nerve damage. He asks if I wanted it corrected. I responded, "HELL, NO, I don't want it fixed. It's working just damn fine, thank you!"
Logged

Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
Cordelia
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« Reply #22 on: November 22, 2011, 05:06:42 PM »

I was talking to a friend of mine about it being the already mentioned nerve damage. He asks if I wanted it corrected. I responded, "HELL, NO, I don't want it fixed. It's working just damn fine, thank you!"

ROTFLMAO!   :rofl;       :rofl;      :rofl;     

Well, I guess pleasure is better than pain         :rofl;       :shy;       :P
« Last Edit: November 22, 2011, 05:13:43 PM by Cordelia » Logged

Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #23 on: November 22, 2011, 06:40:14 PM »

How come I can't have this problem!!!
WTF?
I swear everything about HEMO hates me  :rofl;
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
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