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Author Topic: Have Any of You Started a New Hobby While On Dialysis?  (Read 5743 times)
Cordelia
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« on: November 12, 2011, 09:26:56 AM »

Have any of you started on a new hobby since you've started Dialysis whether at home or on the machine?

I started reading more often, in particular, I started reading one of Dean Koontz's books and I'm really enjoying it so far, it sure helps to pass the time away than just sitting watching the tv     ;D
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Rain
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« Reply #1 on: November 12, 2011, 10:50:16 AM »

I started reading al ot more and started getting more into cooking.  Every once in a while I will get a cook book out of the library and just flip through during dialysis.

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1988  Diagnosed with reflux and kidney damage
2006-  Diagnosed with Renal Failure and start dialysis in centre with catheter
2007- Fistula created and in centre hemo with fistula
2012- Fistula clotted and central line inserted
May 2014- Received Kidney from deceased donor
Cordelia
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« Reply #2 on: November 12, 2011, 12:02:24 PM »

That's a good idea, too!     :thumbup;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #3 on: November 12, 2011, 06:48:58 PM »

I don't know if this really is a hobby, but I have become obbsessed with learning/helping others about dialyiss, so I spend ALOT of my time reading up on treatment options for kidney failure...............

 ;D
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
Cordelia
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« Reply #4 on: November 12, 2011, 07:17:31 PM »

I don't know if this really is a hobby, but I have become obbsessed with learning/helping others about dialyiss, so I spend ALOT of my time reading up on treatment options for kidney failure...............

 ;D

That's really cool!    :clap;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Adam_W
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Me with Baron von Fresenius

« Reply #5 on: November 12, 2011, 07:48:02 PM »

It's not really a "new" hobby, but since I started dialysis I have gotten back into scale model building (mostly ships and trains). I hadn't done it for years, but I started working on models when I was on the machine, and I've since gotten back into it full time.
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Cordelia
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« Reply #6 on: November 13, 2011, 05:20:16 AM »

 :2thumbsup;     :clap;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Amiel
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« Reply #7 on: November 13, 2011, 06:13:25 AM »

Right now, I'm in isolation after transplant. So I'm looking for a new hobby. So far my hobby is looking for a hobby.
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Cordelia
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« Reply #8 on: November 13, 2011, 07:10:35 AM »

Hope you can find something      :cuddle;   Congrats on your transplant!      :cuddle;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Whamo
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« Reply #9 on: November 13, 2011, 01:33:50 PM »

I went to an occupy demonstration in my city.  It took me back to the early 70's when I went to anti-Viet Nam demonstrations.   
I was surprised.  I expected it to be full of college age kids.  Nope.  Middle age people, frustrated with the way America is going,
turned out in droves.  You would have thought the tea party joined occupy.
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brandi1leigh
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« Reply #10 on: November 13, 2011, 08:44:10 PM »

I've always been a big reader. But now I have more time to actually do it.  :clap;
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Cordelia
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« Reply #11 on: November 14, 2011, 04:15:04 AM »

 :2thumbsup;      :yahoo;     :thumbup;       :clap;    That's awesome!
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Subeat
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« Reply #12 on: November 15, 2011, 09:29:27 AM »

Not exactly a hobby, but I've started taking some online classes.  I figure I have a lot of reading time, and if/when I can get a transplant, I'll eventually need a good job to help pay for those meds.   :)
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Restorer
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« Reply #13 on: November 15, 2011, 09:36:54 AM »

I tried to go through some online classes. They weren't actual graded classes, but all the recorded class lectures and class material were online, so I could use it to pretend I was taking a class.  :rofl; I only made it about halfway before I lost interest.  :(
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- Matt - wasabiflux.org
- Dialysis Calculators

3/2007Kidney failure diagnosed5/2010In-center hemodialysis
8/2008Peritoneal catheter placed1/2012Upper arm fistula created
9/2008Peritoneal catheter replaced3/2012Started using fistula
9/2008Began CAPD4/2012Buttonholes created
3/2009Switched to CCPD w/ Newton IQ cycler            4/2012HD catheter removed
7/2009Switched to Liberty cycler            4/2018Transplanted at UCLA!
daveosaurus
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« Reply #14 on: November 15, 2011, 11:07:43 AM »

I'm thinking about taking up drinking.
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Cordelia
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« Reply #15 on: November 15, 2011, 02:57:36 PM »

yikes!
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #16 on: November 15, 2011, 09:50:03 PM »

Not totally a hobby - I am learning Italian online.  I work at our Cruise Ship Pier as a Multilingual Information Officer (English, French, Spanish) and we have lots of Italians coming.  I can already tell them a few of the basic things, but I want to do more.  By the way (bragging now) I got 99% in my first Stage One test!  Dialysis is a good time for me to work on it.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kristina
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« Reply #17 on: November 17, 2011, 03:50:54 AM »

I went to an occupy demonstration in my city.  It took me back to the early 70's when I went to anti-Viet Nam demonstrations.   
I was surprised.  I expected it to be full of college age kids.  Nope.  Middle age people, frustrated with the way America is going,
turned out in droves.  You would have thought the tea party joined occupy.

Interesting, Whamo,
I also went to have a look at our occupy-demonstration at St. Paul’s Cathedral in London
and I was surprised to find only a few College-age-kids, but mainly middle-aged and elderly man and women.

I talked to a few and noticed that every one of them was there for a different reason,
i.e.“divorced fathers with no chance to see their children”,
“divorced fathers who lost their family, their home and their job”
due to our very messy divorce-system which seems to victimize men.

I even came across voices, who, like me, found themselves without any NHS-health care
at a very vulnerable point in their life (pre-dialysis ESRF without NHS-medical care in my case etc.)

I also met people who just could not take the ongoing corruption
in our government and banks any longer.

The people I spoke to hope to be taken notice of
through their occupy-demonstration at St. Paul’s Cathedral.

I do hope their occupy-demonstration is not being exploited
because I cannot figure out who exactly initiated this movement
to occupy-demonstrate at St. Paul’s Cathedral in the first place.

I also wonder how they were able to put up their tents unchallenged etc.
and I was even more surprised to hear that St. Paul’s authorities
try very hard to “get rid of the occupy-demonstration”,
because St. Paul’s Cathedral is really supposed to give Christian Sanctuary to people
(i.e. Alexandre Dumas – The Hunchback of Notre Dame etc)...

But I am very glad I went to St. Paul’s Cathedral because it showed me
that I am not singled-out and victimized "personally".

Hopefully these occupy-demonstrations bring positive results in the future.

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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Cordelia
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« Reply #18 on: November 17, 2011, 09:01:01 AM »

Making a difference sounds really inspiring!
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
brandywine
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« Reply #19 on: November 17, 2011, 12:23:53 PM »

I read a LOT more. In fact, I think I'm halfway through the Left Behind series, which is like 15 books or something nutty like that. Oh-and I frequent some little forum called IHD.  :2thumbsup;

Btw-BrandiLeigh, I am going to see Wicked for the THIRD time when it comes to Jacksonville in January. :)
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IgA Nephropathy Diagnosed Feb 2009
Transplant List Nov 2010
Peritoneal Dialysis Dec 2010
Cordelia
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« Reply #20 on: November 18, 2011, 06:34:10 AM »

I think the secretary/clerk of our unit is bringing in a book for me to read. Souds like she's interested in letting me borrow one of hers and it sounds really good. It's about a woman who fought breast cancer using natural remedies, instead of traditional things. It sounds really interesting. Said she'd bring it in for me this week.      :)
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
Isabella13
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« Reply #21 on: November 20, 2011, 06:41:06 AM »

I also started reading much more than before. Magazines are now read from front to back and not only certain articals.
At home I do mosaic, fabric flowers and even tried my hand on crochet. :yahoo;
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PKD
Fistula & Perm Cathe 19 Oct 2010
Started Dialysis 20 Oct 2010
Received AV graft 4 March 2011
Perm cathe removed 7 July 2011
Cordelia
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« Reply #22 on: November 20, 2011, 02:51:36 PM »

what's mosaic flowers? Sounds interesting!
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
deanocank
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« Reply #23 on: November 20, 2011, 04:34:46 PM »

i read alot more than what i used to but i cant seem to stay concentrated on anything since dialysis i dont go fishing anymore and i tryd to build air fix model plane bout still got bored of that lol i have got to find something anyone got any suggestions????????????????????
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fearless
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« Reply #24 on: November 20, 2011, 09:28:00 PM »

if you mean a hobby that you do while on dialysis?  As for me, I have taken up reading again.  But you know what?  i could probably read for four hours straight at home if I found a good book, but, HAVING to be in that dialysis chair for four hours - I get tired of whatever i chose to do.  But I'm always looking for good books now because so far they're my favorite new hobby (or renewal of old one)

Interesting:  I used to love to read, but never felt I had the time.  Now, I have forced time....lesson learned.....
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