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Author Topic: An update from our member peleroja  (Read 28569 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: November 08, 2011, 10:59:27 AM »
I received this note from peleroja:

Thanks For thinking of me.

As you know, the first half of this year was rough for me.  Sadly, the second half was worse.  In July I fell, for no apparent reason, crossing my kitchen, and since my speech was confused, they took me to the hospital and diagnosed a mini stroke.  While in the hospital I complained of abdominal pains I had been having, and two endoscopies later they discovered I have carcinoid tumors in my stomach.  They wanted to remove the stomach, but I refused.  I have gotten weaker and weaker, and it seems all I do is go to dialysis M-W-F, try and rest the other days (when I’m not seeing doctors), and wondering why I never put Kevorkian’s number on speed dial!  I haven’t been on IHD as I don’t have the strength to sit and read posts.

So there you have it in a nutshell.  Taking it one day at a time.

Karol, as administrator, feel free to post this or reply to anyone who asks.  They can also reach me at peleroja @ ca.rr.com.  Thanks!

Hugs, Jenifer
.....................................

 :grouphug; :grouphug; :grouphug;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
thegrammalady
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« Reply #1 on: November 08, 2011, 03:03:16 PM »
i'm sitting here crying and i just don't know what to say. hard to believe huh? thanks karol for letting us know.
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Lead me not into temptation, I can find it myself.

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cariad
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« Reply #2 on: November 08, 2011, 03:43:33 PM »
Oh, I am just so sorry to hear this, Jenifer. You have always been so sunny and upbeat, your avatar pickie always makes me smile.

Take care, and I sincerely hope that things improve for you quickly. Thinking of you! :grouphug;
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tyefly
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« Reply #3 on: November 08, 2011, 03:57:16 PM »
peleroja.....   Hope life turns around from you .....it so hard to face all of that....  I wish you the best..... 
Logged
IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
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« Reply #4 on: November 08, 2011, 04:17:13 PM »
I am so sorry to hear this news concerning our Peleroja.  My caring thoughts and prayers are with her.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
galvo
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« Reply #5 on: November 08, 2011, 04:20:34 PM »
My love to her.
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Galvo
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« Reply #6 on: November 08, 2011, 05:05:14 PM »
Big love, peleroja. 
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
looneytunes
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Wishin' I was Fishin'
« Reply #7 on: November 08, 2011, 05:17:50 PM »
 :pray; for you. 
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del
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del and willowtreewren meet
« Reply #8 on: November 08, 2011, 06:14:00 PM »
 :flower; :flower; :grouphug;
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Don't take your organs to heaven.  Heaven knows we need them here.
boswife
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us and fam easter 2013
« Reply #9 on: November 08, 2011, 06:51:34 PM »
This just made me cry.. It hurts :(   I was missing her and just hate to hear that she is not well.  Thanks for sharing, i will write her..   :pray;

I just tried to write to where she offered to write her... is it an e mail addy?  it wont go through
« Last Edit: November 08, 2011, 06:58:04 PM by boswife » Logged
im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Jean
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« Reply #10 on: November 09, 2011, 12:40:49 AM »
How strange, that as I signed on, I thought, I am going to check her status when I get on, as I have not seen her post in a long time. So very sorry to hear of this. Hope that things turn around for you and you can get some of your strength back. Hugs and Love.
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One day at a time, thats all I can do.
kristina
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« Reply #11 on: November 09, 2011, 05:11:09 AM »

Hello, Jenifer,

I wish you lots of strenghts and I am thinking of you.

Best wishes from Kristina.  :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
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                                          ...  Oportet Vivere ...
Henry P Snicklesnorter
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« Reply #12 on: November 09, 2011, 07:39:27 AM »
.
« Last Edit: October 21, 2013, 07:51:31 AM by Henry P Snicklesnorter » Logged
Rerun
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Going through life tied to a chair!
« Reply #13 on: November 09, 2011, 07:43:22 AM »
I'm so sorry to hear this.  I would not let them take out my stomach either.  Prayers coming your way.

                :grouphug;
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Henry P Snicklesnorter
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« Reply #14 on: November 09, 2011, 07:44:26 AM »
.
« Last Edit: October 21, 2013, 07:50:21 AM by Henry P Snicklesnorter » Logged
boswife
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us and fam easter 2013
« Reply #15 on: November 09, 2011, 10:54:02 AM »
thanks HenryP.... mail sent  ;)
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
monrein
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Might as well smile
« Reply #16 on: November 09, 2011, 11:35:50 AM »
So very sad to read this..I've always admired peleroja's spunky just-live-life attitude and her independent spirit...sending good thoughts her way and many hugs.
 :cuddle; :cuddle; :cuddle; :grouphug;
« Last Edit: April 06, 2012, 05:14:14 AM by monrein » Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
MooseMom
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« Reply #17 on: November 09, 2011, 11:50:12 AM »
It's in times like these that you feel rather useless, sitting at a computer and trying to find the right words.  I'm very sad to hear about this, and I hope she will find her way through this.  I hope that knowing we care is of some use.
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« Reply #18 on: November 09, 2011, 01:26:09 PM »
Thinking of, and praying for you, Jennifer...

Life's NOT fair, is it???.....

Love and best wishes....

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #19 on: November 09, 2011, 02:17:13 PM »
Quote from: Henry P Snicklesnorter on November 09, 2011, 07:39:27 AM
Quote from: boswife on November 08, 2011, 06:51:34 PM
This just made me cry.. It hurts :(   I was missing her and just hate to hear that she is not well.  Thanks for sharing, i will write her..   :pray;

I just tried to write to where she offered to write her... is it an e mail addy?  it wont go through

It is an email address, but she has put a space each side of the @ so the spambots can't use it. Take out the spaces and it will work.   :)

Thanks Henry, yes, I should have said: I purposely spaced out her email address so spambots would not detect it.
« Last Edit: November 10, 2011, 07:00:48 PM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Desert Dancer
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« Reply #20 on: November 09, 2011, 11:01:31 PM »
peleroja, I am so sorry.  :cuddle; :cuddle;  I hope this turns around for you.

I don't know what else to say.
Logged
August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
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« Reply #21 on: November 10, 2011, 02:16:23 PM »
One Strong Lady she is!  Sending hugs and prayers to you!  Thanks for letting us know!  Get back soon and your ole self!

lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Henry P Snicklesnorter
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« Reply #22 on: November 10, 2011, 04:27:53 PM »
.
« Last Edit: October 21, 2013, 07:46:43 AM by Henry P Snicklesnorter » Logged
boswife
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us and fam easter 2013
« Reply #23 on: November 10, 2011, 04:47:16 PM »
just going to update that as well HenryP :)  Bless her heart,,, i want her and everyone needing to get well to just get feeling better.  Bless ya all
Logged
im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
natnnnat
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« Reply #24 on: November 11, 2011, 04:19:53 AM »
Quote from: Rerun on November 09, 2011, 07:43:22 AM
I would not let them take out my stomach either. 

me either!!!!
Logged
Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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