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Ken Shelmerdine
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« on: January 26, 2007, 05:33:52 AM » |
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Since I started visiting this site I have never read any posts refering to a certain problem which is an issue as far as my clinic is concerned. Perhaps it's not a problem elsewhere or the reason it is not discussed is because its's too personal. I'ts something that is created by PD and the effect is to inhibit fluid drainage. What am I refering to? CONSTIPATION!! I seem to get consantly asked by my home sister (whose young enough to be my daughter) how often I pooh! How enbarrassing! Is it an issue in the US and Canada. Just reply yes or no, I'm not asking people to go into detail.  |
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Ken
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Bette
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« Reply #1 on: January 26, 2007, 06:02:06 AM » |
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They ask me this too, but I don't have that problem...
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del
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« Reply #2 on: January 26, 2007, 06:18:27 AM » |
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When hubby started PD 9 years ago they told him to take stool softeners if he needed them. Not to use harsh stuff like exlax or anything like that. Told him that most people on PD needed to take them. Once he started hemo didn't need them anymore. When you are on dialysis be prepared to answer personal questions!!
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Don't take your organs to heaven. Heaven knows we need them here.
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goofynina
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« Reply #3 on: January 26, 2007, 02:55:37 PM » |
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Constipation can be a problem (especially for those on PD) cuz it can eventually cause peritonitis, i was on a stool softener but no longer need them, if i have a problem "going" then i just heat up some prune juice and take that down, that is what is most effective for me...But definetly talk to your neph or PD nurse and let them know you are having this problem before it turns into something worse...Good luck Ken
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Chicken Little
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« Reply #4 on: January 26, 2007, 06:38:02 PM » |
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It's a problem for me. I got my tube put in Monday, but we haven't been able to drain. They xrayed me today and my catheter is pointed up at my right shoulder being held there by (ahem) poo. They are hoping the catheter will settle down to the bottom when the softener/laxatives start working. I hope so. I'm going to be really bummed if they have to redo it.  |
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angela515
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« Reply #5 on: January 26, 2007, 06:51:51 PM » |
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lol... Yes Constipation happens with PD. I took a stool softner once aday and when things went normally, i stopped... when I noticed I needed a little extra help I started taking them once a day again.  |
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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mallory
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« Reply #6 on: January 26, 2007, 07:08:19 PM » |
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Yes, they ask me too. And they made me stop taking iron pills because they said it could cause constipation and that would already be a problem for me. So far, it hasn't been, but you're right, they do ask a lot of embarrassing questions. That gives me an idea for another thread.....
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
- Jerry Garcia
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Rerun
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« Reply #7 on: January 27, 2007, 03:21:53 AM » |
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Well there ya go! A good reason to be on hemo. I have the runs! Imodium is my friend! I would not mind being plugged up for a few days!
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renal30yrs
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« Reply #8 on: January 27, 2007, 03:43:27 AM » |
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Its actually better to have more than a good regular run. The center nutritionist suggest I should use mild laxative and guess what my phosphorous count plummeted. Remember especially for those of us who don't urinate all that much its very important to get things out anyway we can.
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libran925
Newbie
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Gender: 
Posts: 7
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« Reply #9 on: January 27, 2007, 08:24:09 AM » |
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Well, here's something I've never been asked! I'm on PD and have not had "that" problem at all. More fiber?? How about strong coffee in the morning? That usually does it for me. This brings up something I've wondered for a long time: how can medical personnel stand others' BODY FLUIDS?!! Oh, well, stream of consciousness -- I just remembered that when I was on hemodialysis, some elderly patients had problems with controlling their sphincter and the result was called by the techs "Code Brown."  |
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Nan
Jr. Member
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« Reply #10 on: January 27, 2007, 10:51:10 AM » |
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No matter how your heart is grieving....as long as you keep believing, the dream that you wish will come true!
Diagnosed with PKD in 1994
Started HEMO dialysis June 2006
Started Home Dialysis on cycler February 2007
Had Live donor transplant February 2008
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glitter
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« Reply #11 on: January 27, 2007, 02:34:08 PM » |
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yep-now everyone knows wayyyy to much about each other!! Just kidding-this is an excellent place for a frank discussion.
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER
caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
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Zach
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« Reply #12 on: January 27, 2007, 09:39:07 PM » |
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How about the opposite?
How about having the runs for months following a transplant? Anyone experience that?
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.  I make films. Just the facts: 70.0 kgs. (about 154 lbs.) Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk Dialysate flow (Qd)=600; Blood pump speed(Qb)=315 Fresenius Optiflux-180 filter--without reuse Fresenius 2008T dialysis machine My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day. "Living a life, not an apology." |
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renal30yrs
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« Reply #13 on: January 27, 2007, 10:44:46 PM » |
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How about the opposite?
How about having the runs for months following a transplant? Anyone experience that?
Yes. Many immunosuppressive drugs that were used in the past and present are known to manifest major GI disorders. |
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shay_pcb
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« Reply #14 on: January 28, 2007, 01:40:48 AM » |
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I had a problem with constipation when I was full 24/7, but now that I'm dry during the day I don't ahve that problem anymore, thankfully!! lol Good topic, though!!
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Ken Shelmerdine
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« Reply #15 on: January 28, 2007, 08:31:53 AM » |
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 Well! that got that out in the open then! Thanks for all your posts. Prune Juice; Goofynina I'll definately try that. Trust me to bring things down to the lowest common denominator lol! EDITED: Fixed Thumbs Up Icon - Sluff, Moderator
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« Last Edit: January 28, 2007, 08:35:32 AM by sluff »
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Ken
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goofynina
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« Reply #16 on: January 28, 2007, 05:31:26 PM » |
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Well! that got that out in the open then! Thanks for all your posts. Prune Juice; Goofynina I'll definately try that.
Trust me to bring things down to the lowest common denominator lol!
EDITED: Fixed Thumbs Up Icon - Sluff, Moderator I hope it works for ya Ken, I find that when i heat up about 8 oz. (prune juice) and then drink a little bit of water to really get it in my system is most effective Good Luck Buddy |
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« Last Edit: January 28, 2007, 06:47:39 PM by goofynina »
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Epoman
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« Reply #17 on: January 28, 2007, 11:49:20 PM » |
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So then I shouldn't get upset when people tell me "You're full of shit" But honestly Ken, talk about what ever you want on this forum. We have even had people talk about "people on dialysis using the service of prostitutes" Here is the link: http://ihatedialysis.com/forum/index.php?topic=138.0Basically nothing is "Taboo" on this site. - Epoman Owner/Admin |
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- Epoman
Owner/Administrator
13+ Years In-Center Hemo-Dialysis. (NO Transplant)
Current NxStage & PureFlow User.
Please help us advertise, post our link to other dialysis message boards. You
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MyssAnne
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« Reply #19 on: March 05, 2007, 03:02:55 PM » |
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My problem is the exact opposite! I do drink coffee, which certainly keeps me 'regular'
but I have NEVER had a problem with constipation, but I have with the runs! It's very
irksome, too!
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livecam
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« Reply #20 on: March 06, 2007, 08:33:50 AM » |
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Zach...no.
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angela515
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« Reply #21 on: March 06, 2007, 11:08:20 AM » |
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How about the opposite?
How about having the runs for months following a transplant? Anyone experience that?
No, but I am on a stool softner and a phosphorus supplement which is a laxative, so sometimes my stool softner has to be stopped or cut back. |
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
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carla13
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« Reply #22 on: August 08, 2008, 02:07:58 PM » |
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Here in the UK they're OBSESSED with bowel movements! As a PD patient I had to take 4 senna tabs every day and also some hideous medicine called lactulose. I'm on HD at the moment, but hoping to get back onto PD soon, but I 'm not missing the grilling you get every time you see one of your team about 'How often?' and questions about consistency!!! Seems like this is less of an obsession in the US!!!!
xx
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Ken Shelmerdine
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« Reply #23 on: September 25, 2008, 06:39:47 AM » |
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'How often?' and questions about consistency!!! Seems like this is less of an obsession in the US!!!!
xx
After reading all the posts this is exactly the impression I get. Does our beloved NHS have a pooh obsession? and yes not only do they ask how often I then have to discuss the consistency with them. Jesus give me a break! lol.  |
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Ken
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monrein
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« Reply #24 on: September 25, 2008, 06:47:02 AM » |
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 Perhaps you could type out a full report to take in to them so they could just slip it in your file. Get creative. One month you could do it in ye olde English, another time in cockney slang and so on. A variety of fonts could also contribute to the reader's pleasure and some months you could attach an appendix of photos. You do need to give this the full respect it's obviously due.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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