beneteau20
Newbie
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Posts: 4
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« on: October 04, 2011, 02:13:42 PM » |
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Hi everyone . I have been dialyzing for 4 years. One year on PD and 3 years on home hemo with Nxstage. I have just started nocturnal home hemodialysis. I am glad to be trying this. I am not really a candidate for transplant. I have a full time job and I am very thankful to be well enough to do this. I look forward to meeting others on dialysis.
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MooseMom
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« Reply #1 on: October 04, 2011, 02:20:35 PM » |
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Thank you soooooo much for joining; I am heading toward dialysis and am hoping to eventually do nocturnal home hemo on NxStage. I would be ever so grateful if you could tell us a lot more about your experience with this modality. Has your clinic been suppportive of you? Oh please, tell me more! There is a forum for home/NxStage/nocturnal dialysis, and I hope you will go there and post more.
I hope you will find us to be supportive and entertaining! Thanks again for joining! I hope you are doing well.
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
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Razman
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« Reply #2 on: October 04, 2011, 02:55:29 PM » |
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Its great that you joined. I think that you'll find that IHD is a great place to share concerns and questions with others and I hope that you will visit often.  |
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willowtreewren
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« Reply #3 on: October 04, 2011, 03:05:39 PM » |
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Glad to see you here! Aleta
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.  |
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thegrammalady
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« Reply #4 on: October 04, 2011, 03:55:00 PM » |
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glad to have you join us
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s
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If you can smile when things go wrong, you have someone in mind to blame.
Lead me not into temptation, I can find it myself.
Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Some mistakes are too much fun to only make once.
Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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looneytunes
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« Reply #5 on: October 05, 2011, 06:28:09 AM » |
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Hi beneteau and welcome to IHD! My hubby is also a NxStage user and we are considering "extended hours" with it here at home. Glad you joined our community. |
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"The key to being patient is having something to do in the meantime" AU
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Poppylicious
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« Reply #6 on: October 05, 2011, 08:11:26 AM » |
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beneteau!
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CebuShan
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« Reply #7 on: October 05, 2011, 10:01:28 AM » |
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to the family!
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Think GOD doesn't have a sense of humor?
HE created marriage and children.
Think about it! LOL!
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renalwife
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« Reply #8 on: October 05, 2011, 12:00:57 PM » |
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:welcomesign;To the group
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Ang
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« Reply #9 on: October 08, 2011, 09:43:35 PM » |
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live life to the full and you won't die wondering
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pitagory
Full Member
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Gender: 
Posts: 129
Sorry guys for my spelling and punctuation
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« Reply #10 on: October 09, 2011, 09:27:44 AM » |
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welcome and I hope you let us know more about your experience.
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"I dont need easy, I just need posible"
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tbarrett2533
Full Member
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Gender:
Posts: 371
Me licking my kidneys from my birthday kidney cake
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« Reply #11 on: October 10, 2011, 06:48:17 PM » |
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list
Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
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Desert Dancer
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« Reply #12 on: November 09, 2011, 10:48:43 PM » |
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Hi everyone . I have been dialyzing for 4 years. One year on PD and 3 years on home hemo with Nxstage. I have just started nocturnal home hemodialysis. I am glad to be trying this. I am not really a candidate for transplant. I have a full time job and I am very thankful to be well enough to do this. I look forward to meeting others on dialysis.
Hi, beneteau! I'm guessing you're a sailor? Are you doing nocturnal on the NXstage or have you gone to a different machine for nocturnal? I do nocturnal on a Fresenius Baby K. Hope you stick around; there aren't too many nocturnal folks here! |
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10: Began dialysis through central venous catheter
8.25.10: AV fistula created
9.28.10: Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!
Good health is just the slowest possible rate at which you can die.
The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.
The early bird may get the worm but the second mouse gets the cheese.
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