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Author Topic: Welcome to Camp D  (Read 3970 times)
wbdoug
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« on: October 03, 2011, 01:03:22 PM »

This past weekend I escaped from my pd machine and literally took my dialysis into the middle of the desert. No power, no ac, no bathrooms. Just me and my little trailer out in the tumble weeds and dirt.

 Welcome to Camp D.

As with most of us just starting out with this life changing thing we call dialysis, there is this big fear of the unknown. A lot of the things we take for granted or things that we enjoy doing are either drastically changed or eliminated but with some determination we can add some of those things back into our lives.

When I was told that dialysis was in my near future, I just figured that this type of camping that I truly love to do would be a thing of the past, once again fear of the unknown. But after starting pd and getting a handle on what I need to do on a daily basis I started to think about what I would need to do to get back out there in the dirt. With some minor effort and a few precautions it was not difficult at all and everything worked out as I had planned. Space was an issue but I managed to take everything that I needed.

There has been a lot of discussion about how to heat the bags of solution while traveling. Several people mentioned putting the bag on the dash to heat it up and that would work well on a warm middle of the day exchange but not too good at night or for the first exchange in the morning.   My fix for that was using a small cooler, a standard heating pad and a power invertor plugged into the battery on the jeep. I found that I was able to leave it turned on to the low setting all night and still have plenty of power to start the vehicle in the morning ( yes, I brought jumpers just in case!). The bags were nice and warm in the middle of the night and in the morning.

That was my weekend and I can’t wait for the next outing.  One more thing, I did manage to get the jeep really really dirty in between exchanges ;D

Bill

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8/3/2011 PD Cath installed
Life keeps interfering with my plans
Rerun
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Going through life tied to a chair!

« Reply #1 on: October 03, 2011, 01:10:02 PM »

How did you wash your hands or did you just use gloves?  I am glad you had fun.
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wbdoug
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« Reply #2 on: October 03, 2011, 01:33:13 PM »

How did you wash your hands or did you just use gloves?  I am glad you had fun.

I used a jug of distilled water with a spout (purchased at your local grocery store) with ani-bacterial soap and plenty of hand sanitizer.
Pics of Camp D to follow.

Bill
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boswife
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us and fam easter 2013

« Reply #3 on: October 03, 2011, 01:43:35 PM »

Aww, this made me smile. Im a dirt lover :)Can't wait for pics :)
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #4 on: October 03, 2011, 02:28:48 PM »

Way to go!  :2thumbsup;

Fit dialysis into your life, and don't let it define you.  :yahoo;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
wbdoug
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« Reply #5 on: October 03, 2011, 07:34:21 PM »

Here are a couple of pics showing how I did my exchanges. I just want to show that if you use a little caution, it can be done in some out of the way places. Notice everything is in ziplock bags.
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wbdoug
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« Reply #6 on: October 03, 2011, 07:37:16 PM »

And some more...........
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tyefly
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This will be me...... Next spring.... I earned it.

« Reply #7 on: October 03, 2011, 08:58:27 PM »

Yea  buddy..... thats my kind of living..... I wish I could of done PD.....I camp and fish lot .....   but with hemo I had to come home often..... sometimes I could take the RV with generator..but  the places I like to go....well   one does not take a RV.....if you know what I mean....

Yes  go more   go often......and let us know about your stories and experiences..... there are many people who could learn from your experiences..... we dont have to sit at home....

I love the pictures.........
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
monrein
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Might as well smile

« Reply #8 on: October 04, 2011, 05:42:23 AM »

Great photos and even better attitude.  Life really requires ingenuity.  Looks like fun.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Joe
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« Reply #9 on: October 04, 2011, 06:54:36 AM »

Way to go Bill! And great photos. Keep it up.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
looneytunes
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Wishin' I was Fishin'

« Reply #10 on: October 04, 2011, 07:55:09 AM »

Camp D looks like a great place!  Glad to see you are fitting D into your life, not allowing D to be your life.   :clap;
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"The key to being patient is having something to do in the meantime" AU
Cordelia
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« Reply #11 on: October 04, 2011, 08:58:27 AM »

That's really awesome!   :2thumbsup;   :clap;

Did you worry even just a tiny little bit of infection?
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
boswife
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us and fam easter 2013

« Reply #12 on: October 05, 2011, 06:36:47 PM »

love the pics and love knowing how great it felt to bee there to take those pictures...  Sooooooooooooooo glad you braved it and will do again  :2thumbsup;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
wbdoug
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« Reply #13 on: October 05, 2011, 11:24:00 PM »

That's really awesome!   :2thumbsup;   :clap;

Did you worry even just a tiny little bit of infection?

Only every time I connected or disconected!!!
But seriously I took every precaution I could. The last thing I wanted was to get infected and have all the naysayers tell me "I told you so."
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teachwalking
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« Reply #14 on: October 06, 2011, 01:27:01 AM »

Oh those photos! Thanks so much. I spent yesterday thinking we probably won't be going anywhere anymore, but you busted that myth (hopefully). We live in Joshua Tree and as my partner begins dialysis, I was afraid that vacations would be out for us. Thanks for not letting me get negative. Your photos are some of the best I have ever looked at and you aren't exactly my relative. I like this new "family." :bandance; :bandance; :bandance;
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wbdoug
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« Reply #15 on: October 06, 2011, 07:57:44 AM »

Oh those photos! Thanks so much. I spent yesterday thinking we probably won't be going anywhere anymore, but you busted that myth (hopefully). We live in Joshua Tree and as my partner begins dialysis, I was afraid that vacations would be out for us. Thanks for not letting me get negative. Your photos are some of the best I have ever looked at and you aren't exactly my relative. I like this new "family." :bandance; :bandance; :bandance;

Thanks for the compliment. As you can see I am also very new to dialysis and this site and I was going though the same thought process and also figuring that a lot of things I enjoy doing would be over but I am slowly finding out that I can fit them back into my life, with a few changes of course.
I have gotten so much hope and inspiration from so many people on this forum, it really makes my day when I can be of help to others.
 
The attached picture shows the gps track that we took. As you can see, Camp D was right in your back yard! I hope to meet you both sometime.

Bill
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tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #16 on: October 06, 2011, 11:29:12 PM »

umm I love this right here!!!  :2thumbsup;
What's the point in living if we cant do the things that we love to do!!!!!! 

WE were in an antique bottle show and sale about a 2 hour drive from our house so I did my exchanges in the car!!!!

I look at it like this.... I am going to go wherever I want when I want, while I was on Hemo, Dialysis and kidney failure ran my life then PD came and well I will quote Houseofdialysis....... "Dialysis works for me, I don't work for it."
So I say pack up the supplies and go camping as much as you can stand!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! and while you are doing that I will be running to every Antique shop in the country with my PD supplies  ;D


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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
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