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Author Topic: Today marks 1 year......................  (Read 3078 times)
tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« on: September 23, 2011, 10:40:57 AM »
today marks 1 full year on dialysis and I just want to say that I think I hate it more now then when I first started  >:(
yes I am thankful to be alive, but that does not make me hate it any less!!!!!!!!!!!!!!!
today will be a sad day for me and in fact every 9-23 will be sad, until transplant  :(

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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
mcclane
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« Reply #1 on: September 23, 2011, 11:32:01 AM »
hopefully the transplant will happen soon !  :thumbup;

you're not alone, i hate dialysis a whole lot too.  I would rather walk across scalding hot coals slowly than do dialysis.  :rofl;
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jeannea
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« Reply #2 on: September 23, 2011, 11:47:06 AM »
I hate dialysis too. Pretty much every night. Luckily I can't remember the day I started dialysis. I was in a coma. But I miss my life before dialysis.
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lmunchkin
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"There Is No Place Like Home!"
« Reply #3 on: September 23, 2011, 07:48:18 PM »
Tbarrett, it doesnt seem like its been a year.  Seems like you just started! Sending hugs to you  :grouphug;

lmunch

 :flower;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #4 on: September 23, 2011, 11:12:18 PM »
 :cuddle;
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
billybags
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« Reply #5 on: September 24, 2011, 07:05:10 AM »
 :grouphug;
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tbarrett2533
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Me licking my kidneys from my birthday kidney cake
« Reply #6 on: September 25, 2011, 09:04:57 PM »
Quote from: jeannea on September 23, 2011, 11:47:06 AM
I hate dialysis too. Pretty much every night. Luckily I can't remember the day I started dialysis. I was in a coma. But I miss my life before dialysis.

Me too!!
I refer to my life in terms of before kidney failure and after kidney failure
God, I hate Kidney failure and what it has done to my life!!!  :'(
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CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
MooseMom
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« Reply #7 on: September 25, 2011, 09:13:30 PM »
It's a brutal way to live.  I watched my mom struggle through it, and I'm soooo not looking forward to it myself.

Yeah, I know, it keeps you alive, but gosh, at what a cost!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Dannyboy
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« Reply #8 on: September 26, 2011, 06:55:34 AM »
Congratulations Tracy.  A good milestone, despite everything.


I think your 'attitude' is great, will help in coping.


 :clap; :beer1; :thumbup; :bandance;


---Dan
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ESRD Summer 2011
Started using NxStage September, 2011
"Everything is funny as long as it is happening to Somebody Else"--Will Rogers

Alcoa and Reynolds are in a bidding war to buy my serum Aluminum.
mcclane
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« Reply #9 on: September 29, 2011, 08:54:15 AM »
Quote from: MooseMom on September 25, 2011, 09:13:30 PM
It's a brutal way to live.  I watched my mom struggle through it, and I'm soooo not looking forward to it myself.

Yeah, I know, it keeps you alive, but gosh, at what a cost!

you're not kidding.  with dialysis, there is really no such thing as life balance.  It is pretty much dialysis, bloodwork, hospital/dr appointments, and that pretty much sums it up.  If there is any leftover time after that, then that is all you get.
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