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Author Topic: So many new people on here!  (Read 3968 times)
Lucinda
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Life is great!

« on: August 23, 2011, 10:22:00 PM »

Hi Guys.  It has been a very long time.  It is good to see the same familiar faces around but also so many newbies.  Everything is great with me - just frantic with work.  Very fit and healthy and nearly three years on dialysis has not slowed me down at all.  I ignore any glitches in the system - I never know whether they are coming from dialysis, menopause or old age so just keep going and hope for the best they will go away - which they normally do.

Otherwise I have absolutely no complaints.  Very sad about Karen247.  So young.  I am still not interested in going down the transplant path.  Too healthy on dialysis and a great believer in why fix something that ain't broke.  I know I am in the minority and I absolutely respect everyone else's position in relation to transplant but its not for me. 

Anyhow, just thought I would pop in and say hi.   Love, Lucinda  :grouphug;
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jbeany
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Cattitude

« Reply #1 on: August 23, 2011, 10:42:38 PM »

Hi!  We're growing in leaps in bounds around here - over 6000 members in time for year 6!

Nice to see you check in!

 :flower;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: August 23, 2011, 11:18:57 PM »

 :bandance; Hey Cindy!
Great to see you.
 :-* :-* :-*
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #3 on: August 23, 2011, 11:45:31 PM »

Great to see you here again!  :cuddle;  Please don't stay away that long!  We need all our family members  :grouphug;  I think I share your feelings concerning a transplant, but I am not very vocal about it.
« Last Edit: August 23, 2011, 11:46:50 PM by Bajanne » Logged

"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
RichardMEL
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« Reply #4 on: August 24, 2011, 01:50:45 AM »

Always great to know you're going well - as always - Cindy!!

Thanks for dropping by and reminding everyone still on D that you can do amazing things despite the machine!!

 :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup; :2thumbsup;

I'll wave when I'm flying through Sydney in 2 weeks :)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
monrein
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Might as well smile

« Reply #5 on: August 24, 2011, 04:25:24 AM »

 :waving;  hi Cindy.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Meinuk
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« Reply #6 on: August 24, 2011, 04:51:01 AM »

 :grouphug; Cindy!

Glad that you are doing well!  IHD has a Vegas event in October.  I can't even think about Vegas without thinking of you.  That Elvis wedding really was a once in a lifetime event.  Just thinking about Susie standing there with Sluff... it was all because of you. Thank you for making it happen.

Thanks for checking in.  You are missed.

xoxo

Anna
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
Desert Dancer
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« Reply #7 on: August 24, 2011, 05:23:09 AM »

I am still not interested in going down the transplant path.  Too healthy on dialysis and a great believer in why fix something that ain't broke.  I know I am in the minority and I absolutely respect everyone else's position in relation to transplant but its not for me. 

Hi, Lucinda!  :waving; I feel the same way, 'if it ain't broke, don't fix it'! Glad to see I'm not the only odd duck around here in regard to transplant!
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
paris
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« Reply #8 on: August 24, 2011, 06:51:00 AM »

Hi Cindy!  It is so good to hear from you.  I am thrilled you are doing so well.

Like Meinuk,  one of my favorite memories is of the Elvis wedding,too.  I woud have never had that experience without you making it happen.  Sluff getting married, Goofynina standing up with him, Elvis singing.  It was quite the night!  And we all kept thanking you for being the fairygodmother who gave us this fun event.  Thanks, again.     :cuddle;

Come back and keep us updated.  Us oldies miss you.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
brandi1leigh
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« Reply #9 on: August 24, 2011, 08:22:12 AM »

I'm not sure I feel the same way about a transplant, but I'm also not sure I want one either. Most people (including my parents who I'm very close to) just seem to assume that I would want one, but I think it's much more complicated decision than most people assume.
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del
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del and willowtreewren meet

« Reply #10 on: August 24, 2011, 09:02:05 AM »

Hi Lucinda!!  Hubby feels the same way don't fix it it it's not broke and he's been on dialysis for 14 years!!
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Don't take your organs to heaven.  Heaven knows we need them here.
HILINE
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« Reply #11 on: August 24, 2011, 01:43:29 PM »

I am too old and too ugly for a transplant  :) :)
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Jean
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« Reply #12 on: August 25, 2011, 12:38:39 AM »

Nice to see you Lucinda. Yes, there are lots of newbies here, but they soon become oldies.
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One day at a time, thats all I can do.
RichardMEL
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« Reply #13 on: August 25, 2011, 02:18:07 AM »

I am too old and too ugly for a transplant  :) :)

so am I mate, but that didn't stop me.

and Lucinda is FAR from ugly (or old :) ).
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sluff
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« Reply #14 on: August 28, 2011, 06:32:33 PM »

Hi Guys.  It has been a very long time.  It is good to see the same familiar faces around but also so many newbies.  Everything is great with me - just frantic with work.  Very fit and healthy and nearly three years on dialysis has not slowed me down at all.  I ignore any glitches in the system - I never know whether they are coming from dialysis, menopause or old age so just keep going and hope for the best they will go away - which they normally do.

Otherwise I have absolutely no complaints.  Very sad about Karen247.  So young.  I am still not interested in going down the transplant path.  Too healthy on dialysis and a great believer in why fix something that ain't broke.  I know I am in the minority and I absolutely respect everyone else's position in relation to transplant but its not for me. 

Anyhow, just thought I would pop in and say hi.   Love, Lucinda  :grouphug;

Great to see my girl on here again. glad you are doing well and I totally agree with you on the transplant reasoning. Take care... :-*
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Lucinda
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Life is great!

« Reply #15 on: August 29, 2011, 04:14:35 PM »

So nice to hear from you all.  Nice to see young Richard is still an incorrigible flirt and nothing has changed on that score!  Where are you off to Rich?  It is probably on here so I should just go look.  I am going to try and be a good girl and pop in every week.  In fact, if I ever sell my website, which I hope to do at the five year mark, some of that money is going to have to go to IHD.  I was having trouble getting the forum to work so I showed my web guys IHD and told them to have a forum with a similar layout.  Yours is far better but now I have changed it did encourage people to post on the site a lot more.  Now I have nearly 5,500 members so when I sell it down the track, I will definitely throw some money IHD's way to help support this site. My site is www.stratalive.com.au.  It is all about apartment living and building regulations and legislation.  There are stories about interior design, storage in apartments, maintenance, legal and financial advice and much more.  Currently just in my state NSW but we are going National before the end of the year.

Anyhow, all the best to everybody and I will see you again soon.

Love, Cindy.   
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RichardMEL
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« Reply #16 on: August 29, 2011, 09:07:54 PM »

shoot the sooner you get to Vic the better. I totally need that stuff given I've just been through a nasty bathroom leak issue that is costing me.... well... some $$$ to fix. lol.

It's wonderful of you to want to help us out in your own way :)

and woot, you called me young :)  :rofl;

 :shy;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Rerun
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Going through life tied to a chair!

« Reply #17 on: August 29, 2011, 09:28:50 PM »

Thanks for dropping by!  Your furbaby has gotten so big!  I wish you well.   

                   :waving;
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