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Author Topic: My life changes today  (Read 7324 times)
wbdoug
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« on: August 03, 2011, 08:11:39 AM »

This is it! Today at 2:00 I get my pd cath installed. This is the day I was not looking forward to but I knew was in my future. No more procrastination, no more whining (I’ll still whine but it won’t do any good) ,no more swimming and no more denial.
Tbarrett: Thank you for the day by day updates on your new pd experience. You have inspired me and scared the hell out of me at the same time but at least I have an idea of what to expect in the next few days.
Thanks to all and I'll see some of you in Vegas.
Bill
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8/3/2011 PD Cath installed
Life keeps interfering with my plans
cariad
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What's past is prologue

« Reply #1 on: August 03, 2011, 08:25:43 AM »

Good luck, Bill, and I will indeed see you in Sin City.
:bestwishes;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

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MooseMom
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« Reply #2 on: August 03, 2011, 11:43:58 AM »

There's nothing wrong with a good whine; I've made it into a fine art!  You just come to IHD and whine all you want.  We can take it.  That's what we're here for.  Leave your angst with us so that you can enjoy your "real life".

I know exactly what you are feeling today.  Getting your access created, whether it's a fistula or a PD cath, is a truly enormous, tectonic step.  I'm looking forward to hearing from you once it is all done and dusted.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #3 on: August 03, 2011, 02:50:08 PM »


Tbarrett: Thank you for the day by day updates on your new pd experience. You have inspired me and scared the hell out of me at the same time but at least I have an idea of what to expect in the next few days.
Thanks to all and I'll see some of you in Vegas.
Bill

YEA!! I got mentioned in a post!!!! YAYAYAYAYAY!!!!! :cheer: :cheer: :flower;

Bill get ur buns with your new PD Cath right on over to the "home dialysis" thread and tell all of us what you are experiencing.. you just might be able to help someone!!!
Oh yea and Bill.... I friggin love PD so far!! I feel so GREAT and I love being in this much control!!!! The freedom is CRAZZZZYYY to... I love it!!! :cheer: :2thumbsup;
Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
jbeany
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Cattitude

« Reply #4 on: August 03, 2011, 06:55:52 PM »

And bless you both for sharing to help anyone who is still lurking and needs the info!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #5 on: August 03, 2011, 08:00:01 PM »

And bless you both for sharing to help anyone who is still lurking and needs the info!

This was my main goal........ I was on the fence about PD for over 6 months and I wished that someone had did a thread about their complete experience b/c I think i would have choose it sooner had I known more

you know what else I am going to do..........  When I searched on Youtube for videos on PD the only things that showed up were cyclers, (CCPD)  so guess what?? you are going to see me on YouTube doing an excahnge  :2thumbsup; 

B/C again I really, really very badly wanted to see a video and read as much as I could prior to deciding on PD as my treatment option or not so I know that if I wanted it, someone else will too  ;D
Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
Riki
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WWW
« Reply #6 on: August 03, 2011, 09:57:11 PM »

That's a GREAT idea!!  It'll be good to see younger people doing dialysis too.  Most of the stuff that I've seen involved people who were at least in their 50s.  It made it seem that young people don't do dialysis, which isn't true, considering I started when I was 12, and I know others who started younger
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
billybags
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« Reply #7 on: August 04, 2011, 06:09:34 AM »

Thinking of you to-day.You will be fine.
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lmunchkin
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"There Is No Place Like Home!"

« Reply #8 on: August 04, 2011, 06:04:27 PM »

How did it go Bill?  Thinking of you and hope all went well!

lmunchkin     :kickstart;

P.S.  "I'll pull clutch in and give you a loud Rev from my bike for a positive procedure"
Logged

11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #9 on: August 05, 2011, 05:22:49 AM »

That's a GREAT idea!!  It'll be good to see younger people doing dialysis too.  Most of the stuff that I've seen involved people who were at least in their 50s.  It made it seem that young people don't do dialysis, which isn't true, considering I started when I was 12, and I know others who started younger

and good looking... you forgot to say good looking geez  :lol; :rofl;

Kidney failure does not discriminate thats for sure  :boxing;
Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
wbdoug
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« Reply #10 on: August 05, 2011, 08:29:39 AM »

Everything went very well. I was at the hospital by 12:00 and out by 5:00. The only issue I have is the pain in my right shoulder. It’s more of an ache than a pain. Could someone explain to me why this should hurt like it does???
Other than being uncomfortable get up from the couch or bed I don’t have any problems in the area where the catheter was placed and so far not having any problems sleeping. Have not needed the pain pills yet.
I went to the dialysis center on Thursday to get my cath flushed and was very pleased with how well everything worked. No problems and no pain up to this point. I sure hope it stays this way.  My first impression of the center was a good one. This is the first time I have ever set foot inside a dialysis clinic.
I will start a new thread in the home dialysis area and post more updates as they happen.
Bill
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8/3/2011 PD Cath installed
Life keeps interfering with my plans
tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #11 on: August 05, 2011, 11:56:55 AM »


I will start a new thread in the home dialysis area and post more updates as they happen.
Bill

I can't wait to hear your updates.... Bill just think you may not even know it yet, but your posts may help someone else :)

as for the shoulder pain.... very random, I did not have that issue, but I am sure that someone on here has or knows someone who has......

Good luck Bill and although it def sucks Welcome to Dialysis.......  :welcomesign;
Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
Ang
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« Reply #12 on: August 06, 2011, 01:05:21 AM »

and it will change again when the transplant comes your way
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live  life  to  the  full  and you won't  die  wondering
kporter85db
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« Reply #13 on: August 06, 2011, 01:20:19 AM »

Everything went very well. I was at the hospital by 12:00 and out by 5:00. The only issue I have is the pain in my right shoulder. It’s more of an ache than a pain. Could someone explain to me why this should hurt like it does???

Bill, the shoulder pain is from gas. When they do the catheter surgery they inflate your peritoneum with gas to give them room to work in there. The pain is from leftover gas that migrated up to your shoulder.

I hope everything else is well.
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May/2010 Sulfa based antibiotics killed my already weakened kidneys, almost
Feb/2011 PD catheter placed
July/2011 Started Peritoneal Dialysis
Nov/2013 Started NxStage 5 days/week

Ken
lmunchkin
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"There Is No Place Like Home!"

« Reply #14 on: August 08, 2011, 07:44:44 PM »

Bill, have you settled on CAPD or CCPD?   I agree with Tbarret, on the home D.  It does give you more control over your health and the treatment thereof!  This is a good modality, Bill, you will see!  Just follow their training and you will do fine!  Now when you get your first set of supply's, you are going to think, OMG what did I get into?  But you will figure out over time that alot of that can be dewindled down!

I cant wait to read your experiences!  I have thoroughly enjoyed reading T.Barretts.  They have really helped people inquiring about PD!

lmunchkin     :kickstart;    :flower;
Logged

11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #15 on: August 10, 2011, 01:45:40 PM »

Bill, have you settled on CAPD or CCPD?   I agree with Tbarret, on the home D.  It does give you more control over your health and the treatment thereof! 

I cant wait to read your experiences!  I have thoroughly enjoyed reading T.Barretts.  They have really helped people inquiring about PD!

lmunchkin     :kickstart;    :flower;


YAY  :flower;

I wish I knew how to post pics on here so I could post my set up..... HOD aka: Ron told me but I still don't understand it.... you do not need as big as space as I first thought so I really think showing my set up would help someone see that PD will not be laying around your house  :2thumbsup;
Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
wbdoug
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« Reply #16 on: August 14, 2011, 10:52:34 AM »

Bill, have you settled on CAPD or CCPD?   I agree with Tbarret, on the home D.  It does give you more control over your health and the treatment thereof!  This is a good modality, Bill, you will see!  Just follow their training and you will do fine!  Now when you get your first set of supply's, you are going to think, OMG what did I get into?  But you will figure out over time that alot of that can be dewindled down!

I cant wait to read your experiences!  I have thoroughly enjoyed reading T.Barretts.  They have really helped people inquiring about PD!

lmunchkin     :kickstart;    :flower;
I will probably do the machine since I am still working. Just started a new tread in home dialysis. I will be getting my supplies on 8/15, cleaned out the closet and some other areas in anticipation. Oh joy!
Bill
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8/3/2011 PD Cath installed
Life keeps interfering with my plans
billybags
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« Reply #17 on: August 16, 2011, 02:00:03 AM »

How did the delivery go? Was you surprised how much you received!!!!
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lmunchkin
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"There Is No Place Like Home!"

« Reply #18 on: August 16, 2011, 05:12:53 PM »

Well, Billybags, we aint heard anything yet?  You think he was shocked with first delivery?  We remember those days, dont we?  Come on Bill, give us the scoop!

lmunchkin    :flower; :cheer: :flower; :cheer:
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
wbdoug
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« Reply #19 on: August 16, 2011, 06:32:14 PM »

Fortunately I was somewhat prepared by reading a lot of post about the amount of supplies.
I did get one large pallet of stuff but it wasn’t as bad as I thought it would be. I had spent the weekend clearing out the closet of excess clothes and found I had plenty of room for the supplies.
So far everything is good to go.
Bill
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8/3/2011 PD Cath installed
Life keeps interfering with my plans
lmunchkin
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"There Is No Place Like Home!"

« Reply #20 on: August 16, 2011, 08:00:01 PM »

Man, Bill, Im impressed!  Your supply room looks alot better than mine ever did!  Good job, my friend!!!!  How did your training go!  Did you start a day by day like tbarrett?  I found hers to be informative with alot of humor!

lmunchkin     :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
wbdoug
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« Reply #21 on: August 19, 2011, 09:34:45 AM »

Man, Bill, Im impressed!  Your supply room looks alot better than mine ever did!  Good job, my friend!!!!  How did your training go!  Did you start a day by day like tbarrett?  I found hers to be informative with alot of humor!

lmunchkin     :kickstart;
Yes I did start another thread: http://ihatedialysis.com/forum/index.php?topic=24059.0
But don’t expect as much entertainment from mine as Tbarrett’s. She is a much more prolific writer and definantly more entertaining than I am  :thumbup;

Bill
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8/3/2011 PD Cath installed
Life keeps interfering with my plans
lmunchkin
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"There Is No Place Like Home!"

« Reply #22 on: August 19, 2011, 06:39:52 PM »

I don't know about that, Bill!!!!  You got a MEAN & CLEAN supply room.  Don't know if she can beat that! Lol :rofl;

lmunchkin

 :flower;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Sax-O-Trix
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« Reply #23 on: August 19, 2011, 07:24:48 PM »

Holy Crud :o  I had no idea that the PD supplies were ample enough to be delivered on a pallet!  Is that ONE month's supply?  I can now see why some people say they don't have room for the supplies to do PD...  I am glad your surgery went well :)
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Preemptive transplant recipient, living donor (brother)- March 2011
tbarrett2533
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Me licking my kidneys from my birthday kidney cake

« Reply #24 on: September 20, 2011, 05:20:41 AM »

Man, Bill, Im impressed!  Your supply room looks alot better than mine ever did!  Good job, my friend!!!!  How did your training go!  Did you start a day by day like tbarrett?  I found hers to be informative with alot of humor!

lmunchkin     :kickstart;
Yes I did start another thread: http://ihatedialysis.com/forum/index.php?topic=24059.0
But don’t expect as much entertainment from mine as Tbarrett’s. She is a much more prolific writer and definantly more entertaining than I am  :thumbup;

Bill


thank you, thank you  :bow;
Logged

CKD since: 1981
9.22.10: Catheter surgery
9.23.10: Started in center Hemo
10.06.10: Fistula surgery
12.02.10: Started using right upper arm Fistula (15 gauge)
12.30.10: Catheter Removed
07.01.11: Laparoscopic CAPD Catheter insertion
07.29.11: Started CAPD, 2000ml, 4 exchanges (Baxter)
08.15.11: Started filling with 1500ml (instead of 2000ml), 4 exchanges
08.21.11: Back to 2000ml fills, 4 exchanges (3-2.5% & 1-1.5%)
10.12.11: 2000ml fills, 4 exchanges (3 1.5% & 1-2.5% overnight)
11.08.11: Transplant list

Dialysis works for me, I don't work for dialysis!
It's my body, my health!!
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