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Author Topic: Hello from Alaska  (Read 2091 times)
Gryphon
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« on: July 20, 2011, 04:28:37 PM »
Hi every one, obviously I'm new to this site. I have been on in center hemo since march 31st of 2011. I have BP related ESRF. This coming Friday will be my last day of work. I tried to keep working but with all the time I miss do to my illness, I don't get enough hours to make ends meet.

I'm looking forward to making new friends here and sharing info.

Gryphon
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Rerun
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Going through life tied to a chair!
« Reply #1 on: July 20, 2011, 04:43:10 PM »
Hi Gryphon and welcome to IHD.  I'm so glad you found us.  I had to quit work too.  That was a sad day for me.  I'd rather be working.  But, I do okay.  I volunteer a couple of different places and that keeps me feeling productive.

I hope you like our site.  Please come back.

Rerun, Moderator        :welcomesign;
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Annig83
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« Reply #2 on: July 20, 2011, 05:26:35 PM »
 :welcomesign;
Always wanted to go to Alaska, heard it's beautiful there.  What part are you from?
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*~Annie~*
Any change, even a change for the better, is always accompanied by drawbacks and discomforts.
Arnold Bennett
Even though I have gone through so much with ESRD, my son is my inspiration to keep going.  He was delievered at 28 weeks weighing 1 lb 12 oz and today he is a fun-loving 1 year old, whom I love with all my heart!

Diagnosed with Nephrotic Syndrome Age 13- 1996 Unknown Cause. 35% functioning of both kidneys.
Stable until Age 27; complications with pregnancy, loss of 25% function. (Current functioning is between 5-7%).
December 3, 2010- PD Catheter Placed on Left Side
March 2011- PD Catheter Removal (Due to malfunction)
April 2011- PD Catheter Placement on Right Side
April 2011- Surgery to adjust Catheter and "tacking of fatty tissue"
May 2011- CCPD Started
October 2012- Infection of PD catheter.  PD Cath. removal surgery. Perma-Cath. Placed for Hemodialysis.
Hemodialysis started October 12, 2012.
January 16 2013- First Fistula
On Transplant List in Indiana, awaiting 1st Transplant at IU Health in Indianapolis.
willowtreewren
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My two beautifull granddaughters

WWW
« Reply #3 on: July 20, 2011, 05:35:57 PM »
Hi, Gryphon!

 :welcomesign;

You've come to a good place for support and information.

I'm sorry about your job.  :'(

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #4 on: July 20, 2011, 09:55:27 PM »
quit my job too in January...trying to find something part time...we'll see. WELCOME!!! Hang in there!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Gryphon
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« Reply #5 on: July 20, 2011, 10:18:29 PM »
Quote from: Annig83 on July 20, 2011, 05:26:35 PM
:welcomesign;
Always wanted to go to Alaska, heard it's beautiful there.  What part are you from?

I'm in Anchorage, but only for another 2 weeks, then I'm going down to Seattle for approx 6 weeks to visit family and get worked up for a possible transplant someday at the university hospital. Seattle is the closes place that does transplants. then in Sept. i will be coming back to Alaska to settle in a little coastal town called Homer.  If you have see the TV show "Deadliest Catch" Homer is where the Time Bandit docks and calls home. I have met the guys from that boat, pretty nice people.

Thanks to  everyone for the welcomes also... I have been reading this site for a couple weeks now and have already learned a lot and in the future hope to be able to offer help from my own experiences.
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kporter85db
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« Reply #6 on: July 20, 2011, 11:24:49 PM »
Welcome to the best site for ESRD support and information.
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May/2010 Sulfa based antibiotics killed my already weakened kidneys, almost
Feb/2011 PD catheter placed
July/2011 Started Peritoneal Dialysis
Nov/2013 Started NxStage 5 days/week

Ken
Ang
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« Reply #7 on: July 21, 2011, 12:24:14 AM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
jbeany
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Cattitude
« Reply #8 on: July 21, 2011, 06:55:51 PM »
 :welcomesign;

Wow!  long way for a transplant work-up!  Hope you are successful with it, and soon.

jbeany, Moderator
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Poppylicious
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WWW
« Reply #9 on: July 22, 2011, 11:50:01 AM »
 :welcomesign; Gryphon!

Sorry about the loss of job. But Yay! for the transplant work up!

I've always wanted to go to Alaska too, but I'm in England so can say that about most American states.

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
looneytunes
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Wishin' I was Fishin'
« Reply #10 on: July 23, 2011, 08:04:28 AM »
Hi Gryphon and welcome!   :welcomesign;   This is a great place to interact with others in the renal failure world and get the straight scoop from patients and caregivers.  I'm looking forward to seeing your posts.

BTW:  Deadliest Catch is my fav show and the Hillstrands are the best!   

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"The key to being patient is having something to do in the meantime" AU
lmunchkin
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"There Is No Place Like Home!"
« Reply #11 on: July 25, 2011, 06:48:39 PM »
Welcome Gryphon! So glad you have joined us!  The people here are full of info that may be benificial to your situation!  Don't just come to tell of your experiences but come ask questions about anything.  I have found that if we are told by doctors that this and that has to happen, I come to this site and inquire about it and have found out more about things that I never would have known!  This coming from people who have been through it!

Personally, anything regarding health issues, I come and ask here about it, and generally someone on this site has either gone through or knows someone who has gone through it.  IHD is here for you!  The creator of this site was a genious! He had his ducks in a row and left a powerful legacy for all to use and all while on dialysis!  Simply Amazing!

You let us know how things are going, ok?

God Bless you and hope you keep posting with us!

lmunchkin     :flower;

P.S. Husband stopped work in Jan. this year.  It really became difficult for him but he did work 6 1/2 years while dialysising! Not bad, if you ask me!
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
kellyt
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« Reply #12 on: July 25, 2011, 07:17:57 PM »
 :welcomesign;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
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