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Author Topic: Hello From Cary, NC!  (Read 2482 times)
packshortie
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« on: July 10, 2011, 04:21:46 PM »
So just a little about myself I was diagnosed with glomerulonephritis c1q when I was just 10 years old.  I was on PD for 11 monthes then was lucky enough to receive a perfect match transplant.  My transplanted kidney lasted 16 and half years and I am now back on dialysis. and the transplant list.  Trying to handle it the best I can but things have really changed in 17 years.  Plus I was so free for so long it is hard to conform like I should especially with the diet.  However I know just gotta take it one day at a time and not let it get me down.
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Ang
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« Reply #1 on: July 10, 2011, 06:38:04 PM »
 :welcomesign;  Aboard :thumbup;


good attitude you've got,  :thumbup;
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live  life  to  the  full  and you won't  die  wondering
jeannea
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« Reply #2 on: July 10, 2011, 07:03:38 PM »
Welcome. I'm post transplant too. Mine lasted 11 years now I'm on PD. The people here are supportive and helpful. Can you get on the list again? I whine more than you do though.  :welcomesign;
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jbeany
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Cattitude
« Reply #3 on: July 10, 2011, 08:51:10 PM »
 :welcomesign;

16 years is fabulous!  Hopefully your wait time will be short.  The diet and fluid restrictions just plain stink - but we have a whole section on here with hints, tricks and some really great rants about it, for when you are just in the mood to grumble!  Join in wherever you see a post that interests you!

jbeany, Moderator
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
packshortie
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« Reply #4 on: July 11, 2011, 01:27:40 PM »
Yes  I am on the transplant list for a second kidney.  Hope the wait will be short again but never know plus the list is my only option as no one in my family can donate due to diabetes.
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lmunchkin
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"There Is No Place Like Home!"
« Reply #5 on: July 11, 2011, 04:41:18 PM »
Welcome Packshortie!  You are amoung friends here!  Good to have you post, even under the unfortunate circumstances!

lmunchkin     :flower;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
lawphi
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« Reply #6 on: July 11, 2011, 06:11:34 PM »
I went to NCSU and thinking you might be a fan!

My husband was in a similar situation as you with a re transplant.  Good chance you guys used the same nephrology group. 
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Girl meets boy with transplant, falls in love and then micromanages her way through the transplant and dialysis industry. Three years, two transplant centers and one NxStage machine later, boy gets a kidney at Johns Hopkins through a paired exchange two months after evaluation.  Donated kidney in June and went back to work after ten days.
drgirlfriend
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« Reply #7 on: July 11, 2011, 06:48:57 PM »
Just drove thru/past Cary today! Welcome!
 :welcomesign;
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Boyfriend diagnosed with renal failure Feb. 2011. Cause unknown.
PD Catheter "installed" June 30, 2011.
Began CAPD August 11, 2011.
On transplant list 11/23/11.
Started Liberty Cycler 12/1/11.
peleroja
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I have 16 hats, all the same style!
« Reply #8 on: July 11, 2011, 08:06:53 PM »
Welcome to the group, packshortie.  Lots of good information and friends to help you through.  Glad you found us!
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Rerun
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Going through life tied to a chair!
« Reply #9 on: July 11, 2011, 09:37:16 PM »
Hi Packshortie! Welcome to IHD.  I know how it is to be saved from dialysis with a transplant and have it for 16 and a half years and then back on dialysis.  I'm on hemo Nocturnal.  What did you go back to.  PD?  Gosh, I hope you get your life back again soon.

This site is great, I hope you check in often.

Rerun, Moderator       :welcomesign;
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Poppylicious
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WWW
« Reply #10 on: July 12, 2011, 09:17:34 AM »
 :welcomesign; packshortie!

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
rufin
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« Reply #11 on: July 12, 2011, 10:51:20 AM »
Welcome from another NC resident (Bahama for me, though I work in the Triangle).
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