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Author Topic: NxStage v. PD? Especially for travel...  (Read 2947 times)
misslynette
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« on: July 01, 2011, 07:19:39 PM »

Hi people ~

Here I am with yet another question about home dialysis. A couple of weeks ago, Mike had decided to do PD at home. Went to see the surgeon, but in the meantime, started thinking maybe home hemo with NxStage might be a better option.

Worry #1: Catheter v. Fistula. Our goal is to be able to travel as much as possible, especially to our house in Mexico. A fistula seems like it might be a little better in terms of infection risk?

Worry #2: Supplies... I'm sure we can get a lot of what we need in Merida, as it's got good quality medical care. Most people in Mexico do PD, so I don't know if the fluids for NxStage would be available there.

Worry #3: How portable is that NxStage thing? Someone told me 70 pounds, also said it had to have a dedicated water supply, which would probably be very difficult in our little beach house.

Worry #4: I don't know, just generalized anxiety about the whole thing. The PA who talked to Mike in clinic a few days ago was so negative, on everything, really. It was quite discouraging. He was against transplants, against PD, against home hemo. Ugh.

Okay. Any thoughts appreciated. I know everyone's got a favorite system, so open to experiences with travel, portability, outcomes re overall health with either method.

Gracias ~ lynette*

*who wants to at least VISIT her little house in Mexico for a couple of weeks a year  :'(
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Kong
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« Reply #1 on: July 02, 2011, 12:28:47 PM »

I've been doing PD for a few months now and only traveled once. It was only a few days and we traveled by car so I brought everything with me. The Baxter cycler is small enough to fit in a medium sized suitcase and all the supplies fit into a duffel bag for the trip.
 I have yet to have any problems with infection. If you keep the exit site clean and change the dressing everyday there shouldn't be any problems with that. Remembering to hook everything up aseptic will help reduce any chance of infection internally. If he decides to go the PD route he will learn all of that in training.
My numbers have been great except for blood sugars doing PD but that is being worked on right now.
I hope this helps a little and good luck with whatever way you choose to do.
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MooseMom
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« Reply #2 on: July 02, 2011, 01:45:15 PM »

You may want to check out the NxStage Users forum:

http://www.nxstageusers.com/forum/forum.php

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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Atooraya
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« Reply #3 on: July 02, 2011, 05:17:49 PM »

I can tell you about the baxter pd. I've been on it for a year and travel with it throughout the us. Easy. I watch aseptic practices and cleanliness. Play racquetball twice a week. Pd has been good to me.
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PatDowns
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Celebrating 60th B'Day. 12/26/15

« Reply #4 on: July 02, 2011, 05:30:38 PM »


Worry #4: I don't know, just generalized anxiety about the whole thing. The PA who talked to Mike in clinic a few days ago was so negative, on everything, really. It was quite discouraging. He was against transplants, against PD, against home hemo. Ugh.


What were the reasons your husband's PA gave against transplantation, PD and home hemo?  Conversely, does he extoll incenter dialysis?  Does your husband's nephrologist share his views?
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Frank Moiger aka (previously) NoahVale and now PatDowns, the name originally chosen by a good dialysis mate who died in 12/2013.  I started in center hemodialysis as a 22 y.o. in 1978.  Cadaver transplant in 1990 and then back to in center hemodialysis in 2004 (nocturnal shift since 2011) after losing my transplant.  Former Associate  Director/Communications Director of the NKF of Georgia, President of the Atlanta Area AAKP Chapter, and consumer representative to ESRD Network 6.  Self-employed since 1993.

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Sun-Tue-Thur - 6 hours per treatment
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Jie
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« Reply #5 on: July 02, 2011, 09:15:02 PM »

Worry #1: Catheter v. Fistula. Our goal is to be able to travel as much as possible, especially to our house in Mexico. A fistula seems like it might be a little better in terms of infection risk?

For PD, infection risk should not be a big problem. If one follows the procedure, the infection risk is very low for PD, especially for the cycler.
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