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Author Topic: Hello From Nepal....  (Read 2600 times)
Dhangsong
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« on: June 28, 2011, 07:29:49 AM »
Hello This is Pasang Lama from Nepal.I hope most of you have heard about my country Nepal.Its small and under developing Asian country.I had my kidney problem since my childhood.I had to go through my Right kidney nephroctomy(take out right kidney)at age of 14 because it was badly damaged.Since then i was with single kidney for 10 years.But my only single kidney also failed on 2004 and i had my transplant on april2004,my mom was my donor.But my transplanted kidney rejected after 4 and half years of transplantation.So from august 2008 i am again on haemo dialysis.Life is really tough for me but i am still keeping my hope.My family is already on debt because of me.They have spent huge amount for my treatment till now.But now i am feeling that they are really pissed off with that they some time hesitate to give me money.Its natural because my parents are not rich person.Now i see my chances of living very rare because of financial burden.Is there any why out????????Please assist me through....I am 32 years old now and a jobless guy.
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MooseMom
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« Reply #1 on: June 28, 2011, 01:45:59 PM »
Of course I've heard of Nepal!  I know it is very beautiful with spectacular mountain scenery.

Most of us with chronic kidney disease have the same financial and employment problems that you do.  Even in a country as rich as the USA, many chronically ill people suffer from money worries because our ability to pay our medical bills is tied to insurance subsidized by our private employer, but if you are too sick to work, then you often cannot pay those bills.  I am really sorry to hear that this type of thing is happening to you.

I have never spoken with a dialysis patient in Nepal, so I am very curious about your treatment.  How often do you dialyze?  Are your doctors and nurses trained there in Nepal?  Do you get any assistance at all from the government to help you pay for your dialysis?  How did you pay for your transplant?

I am very glad you have posted, and I hope that we can help you with any questions you may have about dialysis.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Dhangsong
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« Reply #2 on: June 29, 2011, 07:07:33 AM »
hello there!!! I am doing dialysis twice a week and ofcourse our doctors and nurses are very well trained.My transplant payment was made by my parents from their whole life savings and all patients are not lucky enough to get assistance from government.Those who got is also not enough for this expensive kidney treatment.
I am so thankful to you for your post.I hope i will learn a lot from this site....
Quote from: MooseMom on June 28, 2011, 01:45:59 PM
Of course I've heard of Nepal!  I know it is very beautiful with spectacular mountain scenery.

Most of us with chronic kidney disease have the same financial and employment problems that you do.  Even in a country as rich as the USA, many chronically ill people suffer from money worries because our ability to pay our medical bills is tied to insurance subsidized by our private employer, but if you are too sick to work, then you often cannot pay those bills.  I am really sorry to hear that this type of thing is happening to you.

I have never spoken with a dialysis patient in Nepal, so I am very curious about your treatment.  How often do you dialyze?  Are your doctors and nurses trained there in Nepal?  Do you get any assistance at all from the government to help you pay for your dialysis?  How did you pay for your transplant?

I am very glad you have posted, and I hope that we can help you with any questions you may have about dialysis.
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MooseMom
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« Reply #3 on: June 29, 2011, 03:29:14 PM »
I know you will learn a lot here.  There are a lot of generous people on this site who would be very happy to answer any questions you may have about dialysis and who would gladly share their experiences with you.  Please feel free to read through the posts and see how our members have helped in sharing information.  I'm very glad you've joined us.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Cordelia
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« Reply #4 on: June 29, 2011, 03:54:47 PM »
My stepfather has been to Nepal, he has done a lot of treking there-on your famous mountain-Mt. Everest   :)

Welcome to the site   :welcomesign;

I'm so glad you posted too and I look forward to getting to know you   :grouphug;
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Diagnosed with Polycystic Kidney Disease at age 19.
Renal Failure at age 38 (2010) came about 2 hrs close to dying. Central line put in an emergency.
Began dialysis on Aug 15, 2010.
Creatine @ time of dialysis: 27. I almost died.
History of High Blood Pressure
I have Neuropathy and Plantar Fasciitis in My Feet
AV Fistula created in Nov. 2011, still buzzing well!
Transplanted in April, 2013. My husband and I participated in the Living Donor paired exchange program. I nicknamed my kidney "April"
Married 18 yrs,  Mom to 3 kids to twin daughters (One that has PKD)  and a high-functioning Autistic son
kellyt
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« Reply #5 on: June 29, 2011, 04:11:09 PM »
 :waving;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Ang
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« Reply #6 on: June 29, 2011, 05:36:53 PM »
 :welcomesign;
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live  life  to  the  full  and you won't  die  wondering
willowtreewren
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« Reply #7 on: June 29, 2011, 05:38:44 PM »
 :welcomesign;

You will meet many supportive folks here.  :2thumbsup;

And if you have questions about dialysis, you have come to the right place!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
lmunchkin
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"There Is No Place Like Home!"
« Reply #8 on: June 29, 2011, 07:16:55 PM »
Welcome!  You have come to an excellent site, with a boat load of information!  I am a caregiver to husband who has ESRD.  Agree, it is very expensive!  Never been to Nepal, but understand it is a beautiful  country with very gracious people!

lmunchkin      :flower;      :cheer:
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Jie
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« Reply #9 on: June 29, 2011, 08:52:17 PM »
 :welcomesign;

ESRD from a developing country is much more difficult for a family to handle than those in the developed world. Hope that your family can manage to deal with it...
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Dhangsong
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« Reply #10 on: June 29, 2011, 11:58:59 PM »
Thanx all ...I am learning a lot from this site.
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Rerun
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Going through life tied to a chair!
« Reply #11 on: June 30, 2011, 04:15:43 AM »
Hello Dangsong and welcome to IHD.  You only go 2 days a week?  For how long?  Two days a week at 4 hours is not long enough for you to feel well.  I go 3 nights a week for 8 hours each night so my blood is clean enough for me to feel well. 

In your country do you have to pay for each treatment? 

I'm so glad you joined us.  We can learn from each other.

Rerun, Moderator      :welcomesign;
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Dhangsong
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« Reply #12 on: June 30, 2011, 09:36:40 PM »
HELLO Rerun!!!... Yeah i am doing 4 hours twice a week dialysis because our dialysis center provide maximum 4 hours only in one session and we have to pay for each and every dialysis here.I know its not enough to clear my blood but what to do i can't afford thrice a week or more dialysis.Paying for twice a week dialysis has also became a too much for me because there is no source of income with me.My Parents already have taken lots of loan to pay my medical bills.Life is just like that here what to do.
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lmunchkin
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"There Is No Place Like Home!"
« Reply #13 on: July 02, 2011, 05:36:40 PM »
dhangsong, Im so sorry that money enters into your situation!  It's a very sad reality you are facing!  Some here in this country are getting disability payments if they have ESRD.  It is the one disability that the government acknowledges here no matter the age!  You don't get any disability there? Surely you get some money from other entities other than your family's life savings!

We complain about alot of things in this country, but we really are Blessed in these United States of America! Wish you could come here to get your treatments!

Don't know what to tell you! Just know that your family loves you and they are doing the best they can!  That is all anyone can do: Is their Very Best!
I will be praying for you and your family!  That the Lord comfort you in these times!  Bring Peace to You!

lmunchkin      :flower;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Dhangsong
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« Reply #14 on: July 03, 2011, 03:19:16 AM »
Hello Imunchkin, I really appreciate your beautiful words.Yeah my parents are great and because of them i am alive till now. My mum donated kidney for me but it was my bad luck that it didn't run long. We don't have any disability program here from government coz our government is poor itself. yeah once i got some help from my community living in America.I got little relief then but that was 2 years ago and again i am facing that sort of burden.
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Bajanne
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« Reply #15 on: July 04, 2011, 08:09:08 AM »
Welcome to our community!  I am so sorry to hear about your situation.  I recently went to my home courtry for two weeks and had to pay for the sessions while I was there (although dialysis is free for residents) because I am considered a visitor.  I could not do that for very long.  Too expensive.
My caring thoughts and prayers are with you.  I hope you find a workable solution quickly.





Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
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