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Author Topic: Got our call!  (Read 9523 times)
LostWife
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« on: May 27, 2011, 08:41:40 AM »
 :flower;

So long story here.  Husband has been through a ton since that month in the hospital in December - another month in April...most weeks from Jan-now.  All but the month in April were little things - gout, fluid overload, etc.  April was SEVERE peritonitis.  REALLY awful, had to go on hemo.

Anyway, two weeks ago we got a call from our transplant coordinator that they were doing a  big paired exchange and that they had an extra kidney (I'm assuming altruistic donor?) and they were considering hubby.

Well he's in surgery now!  I'm so excited and in such disbelief.  My son will actually have a father. 

Wanted to let everyone here know as you have all been such an amazing source of support and knowledge and love!
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willowtreewren
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« Reply #1 on: May 27, 2011, 09:16:17 AM »
Wonderful, wonderful news.

Make sure he walks as much as possible to speed his recovery!

Keep us up-dated!

 :flower;

 :cheer: :cheer: :cheer:

 :grouphug;
Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Sax-O-Trix
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« Reply #2 on: May 27, 2011, 09:42:28 AM »
Great News!!!  Here's to a speedy and uneventful recovery :yahoo;
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Preemptive transplant recipient, living donor (brother)- March 2011
Darthvadar
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« Reply #3 on: May 27, 2011, 09:57:44 AM »
Great news!!!!...

Onward and upward!...

Congrats to you both....

Darth..
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
MakeMyDay
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« Reply #4 on: May 27, 2011, 10:15:46 AM »
Excellent News!  :yahoo;
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"So it's written, so it shall be done."
May 2010 : started HD
Dec 2010 : switched to PD
Jan 2011 : completed transplant eval @ Mayo Arizona
Nov 15th 2011 : Successful living donor transplant @ Mayo
billybags
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« Reply #5 on: May 27, 2011, 10:21:32 AM »
Wonderful, wonderful news, hope all goes well. :bandance; :bandance; :bandance;
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okarol
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« Reply #6 on: May 27, 2011, 10:46:59 AM »
 :clap; Wow! That is fabulous!!
Best wishes that all goes well!
 :yahoo;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
LostWife
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« Reply #7 on: May 27, 2011, 11:17:13 AM »
Honestly never thought I'd be posting here!  thank you all.

Surgeon came down and told me things look great.  beautiful kidney, he said - already working and producing urine. 

So now I need to know - what are my worries now?  eep.  Here I am still worrying over PTH levels as of the other day...just in shock I guess.
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HouseOfDialysis
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« Reply #8 on: May 27, 2011, 11:32:55 AM »
Woohoo!
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Diagnosed with Alport Syndrome in 2004.
AV fistula surgery June 9th, 2010.
PD Catheter surgery February 7th, 2011.
Began CAPD on February 21st, 2011.
Began CCPD on April 29th, 2011.
On Transplant List since June 2010.
boswife
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us and fam easter 2013
« Reply #9 on: May 27, 2011, 11:47:30 AM »
Greatest news  :bandance;   :bandance;   :cheer:  Unbleaveable!!  Im dancen for ya and theres not a smilie or happy enough icon to post here to show just how happy i am...   :flower;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
carol1987
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« Reply #10 on: May 27, 2011, 12:31:54 PM »
How Wonderful!!!   :cheer: :cheer: :cheer: :cheer: :cheer:
 :clap; :clap; :clap; :clap; :clap;
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
Poppylicious
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« Reply #11 on: May 27, 2011, 01:57:47 PM »
Awww, that is so fabulous! 

 :2thumbsup;
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Marina
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God Bless my donor family!! :)
« Reply #12 on: May 27, 2011, 02:33:56 PM »
Quote from: LostWife on May 27, 2011, 11:17:13 AM
Honestly never thought I'd be posting here!  thank you all.

Surgeon came down and told me things look great.  beautiful kidney, he said - already working and producing urine. 

So now I need to know - what are my worries now?  eep.  Here I am still worrying over PTH levels as of the other day...just in shock I guess.

  CONGRATS  to your  hubby  on   his  new  GIFT  OF  LIFE!!!!   :2thumbsup;   :cheer: 
 :pray;  for  a  speedy  and  painless  recovery!!!

May  it  bring many  yrs  of  health and  happiness  for the  entire  family!!!
I'm  So  happy  for  you  all!!!!!
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"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

*************************************************
 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
okarol
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« Reply #13 on: May 27, 2011, 03:01:41 PM »
 :bandance; :yahoo; :bandance; Happy Dance!!!  :cheer: :cheer: :cheer:
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Jelena
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« Reply #14 on: May 27, 2011, 03:50:34 PM »
Fantastic news!!! Wishing your husband (and you) a smooth recovery!  :cheer: :cheer: :cheer:
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Jelena
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« Reply #15 on: May 28, 2011, 06:34:24 AM »
This is wonderful news LostWife.   :cuddle;   Happy times for you both.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
LostWife
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« Reply #16 on: May 29, 2011, 07:07:36 PM »
 :2thumbsup;

All is looking really great- creatine at 2.8 and they said it was halfing every day.  He got a really good one!!

Thanks for the well wishes.  Off to bed.
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willowtreewren
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« Reply #17 on: May 31, 2011, 07:13:32 PM »
 :cheer: :cheer: :cheer:

Great news! Keep it coming!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Des
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« Reply #18 on: June 01, 2011, 12:27:10 AM »
I am SO happy for your whole family.!!!!!! :yahoo; :2thumbsup; :clap;
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Sluff
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« Reply #19 on: June 01, 2011, 04:25:00 AM »
That is outstanding news. Hope your husband continues to recover well. You will never stop worrying, it will just get less over time.
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LostWife
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« Reply #20 on: June 01, 2011, 10:30:42 AM »
Hi all, thanks for the kind words.

Kidney sort of halted production yesterday.  :(  they are still trying to figure out the issue.  Creatine shot up also.  They have done a biopsy and we're waiting for results.  The urine production has dropped dramatically.  I feel sick.  I also feel sad for the donor -
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okarol
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« Reply #21 on: June 01, 2011, 10:45:47 AM »
It could just be a blockage, hopefully an ultrasound will show what's up.
I pray all gets better soon.  :pray;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
LostWife
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« Reply #22 on: June 01, 2011, 02:24:15 PM »
They have ruled out a blockage, they have ruled out rejection.  they wondered if it could be the IGA repeating, but over 3-4 days seems unlikely.  I am so so so sad.  I don't know what to do now.  I'm so lost.
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willowtreewren
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My two beautifull granddaughters

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« Reply #23 on: June 01, 2011, 02:33:05 PM »
Don't give up hope. If it isn't a blockage, they may still be able to sort it out.

 :grouphug; :grouphug; :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
boswife
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us and fam easter 2013
« Reply #24 on: June 01, 2011, 02:34:11 PM »
please pray.... Weather you do normally or not, it's a good time to start... For comfort and healing... 
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
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