pd

[jonn r]

so what do people think about pd.....and the other kind of dialysis for home....they want me to do home but i want to know what people think


EDITED:  Moved post to proper section - Goofynina/Admin.

[goofynina]

Hi John,   I was on Hemo for about 2 1/2 years, never wanted to know anything about any other type of dialysis cuz i was still in denial,  well, after gaining so much weight (on a weekly basis) my dietician talked to me and told me about PD, the way he explained it to me made me very interested, so i watched the video,  talked to my neph, set me up an appt with the surgeon to see if it was possible for me (due to my size)    and within 2 days, i was in surgery for my catheter and have been on PD ever since and I LOVE IT...  the diet isnt AS restricted and the fluid isnt AS restricted either     and another good thing is i stopped gaining weight and i am slowly losing it, SLOWLY, but its coming off   that is my    on PD... 

[charee]

Hi John,   I was on Hemo for about 2 1/2 years, never wanted to know anything about any other type of dialysis cuz i was still in denial,  well, after gaining so much weight (on a weekly basis) my dietician talked to me and told me about PD, the way he explained it to me made me very interested, so i watched the video,  talked to my neph, set me up an appt with the surgeon to see if it was possible for me (due to my size)    and within 2 days, i was in surgery for my catheter and have been on PD ever since and I LOVE IT...  the diet isnt AS restricted and the fluid isnt AS restricted either     and another good thing is i stopped gaining weight and i am slowly losing it, SLOWLY, but its coming off   that is my    on PD... 

Why do you gain weight when on hemo ?

[KidneyMommy]

When my son was 4 days old he started PD...We were told it was the only option, because newborn veins wouldn't be able to tolerate hemodialysis-- and that was fine....as goofynina said, the diet isn't as restricted as hemo, and we really liked that Gavin was only hooked up at night...the rest of the day he was free to be a normal baby (well, AS normal as possible, given the situation).  Our biggest issue was finding a place to store a month's worth of dialysate at a time--once that problem was solved, there really wasn't much of an issue.  We ended up meeting a family later on who had done both PD and Hemo with their baby, and would have given ANYTHING to go back to PD but couldn't because of an infection...

Anyway, sorry to ramble!  Hope this helps a bit!

[goofynina]

Hi John,   I was on Hemo for about 2 1/2 years, never wanted to know anything about any other type of dialysis cuz i was still in denial,  well, after gaining so much weight (on a weekly basis) my dietician talked to me and told me about PD, the way he explained it to me made me very interested, so i watched the video,  talked to my neph, set me up an appt with the surgeon to see if it was possible for me (due to my size)    and within 2 days, i was in surgery for my catheter and have been on PD ever since and I LOVE IT...  the diet isnt AS restricted and the fluid isnt AS restricted either     and another good thing is i stopped gaining weight and i am slowly losing it, SLOWLY, but its coming off   that is my    on PD... 

Why do you gain weight when on hemo ?

Hi Charee,  I was gaining weight on a weekly basis because i was always exceeding the amount of fluid allowed.  I would go in 5, 6, 7, even 8 kilos over each and every time,  they would take off as much as they could but of course they wouldnt take it all off so needless to say, they had to up my dry weight almost on a weekly basis as well,  thank God for my dietician leading me the way to PD, Lord knows where i might be if i hadnt started PD,  I just hope it lasts for a long time. 

[charee]

Hi John,   I was on Hemo for about 2 1/2 years, never wanted to know anything about any other type of dialysis cuz i was still in denial,  well, after gaining so much weight (on a weekly basis) my dietician talked to me and told me about PD, the way he explained it to me made me very interested, so i watched the video,  talked to my neph, set me up an appt with the surgeon to see if it was possible for me (due to my size)    and within 2 days, i was in surgery for my catheter and have been on PD ever since and I LOVE IT...  the diet isn't AS restricted and the fluid isn't AS restricted either     and another good thing is i stopped gaining weight and i am slowly losing it, SLOWLY, but its coming off   that is my    on PD... 

Why do you gain weight when on hemo ?

Hi Charee,  I was gaining weight on a weekly basis because i was always exceeding the amount of fluid allowed.  I would go in 5, 6, 7, even 8 kilos over each and every time,  they would take off as much as they could but of course they wouldn't take it all off so needless to say, they had to up my dry weight almost on a weekly basis as well,  thank God for my dietitian leading me the way to PD, Lord knows where i might be if i hadn't started PD,  I just hope it lasts for a long time. 

Hi Thanks for that I need to loose heaps of weight and the thought of putting on more due to hemo is abit of a scary thought ! I can't do pd had scans done and the kidneys and liver are way to big not enough room so it looks like i will have to watch my fluid when i start.

[angieskidney]

I too am gaining weight steadily on HD when I didn't really on PD. I mean I did because of the Dextrose but not steadily like I am on my short time on HD.

I liked PD. Yes there is a lot of supplies you need room for but with the diet being less limited and the amount of fluid you can drink being less limited I really wish I was still on it!! 

Children always get put on PD as it is safer for kids that don't know not to move during Hemodialysis.

I am not sure of the youngest age allowed for Hemo but I have seen teens on HD.

I found when I was on PD I had soooo much freedom! More than I have on HD but HD for home is not yet available in my city and even when it is my apartment manager won't let me make any alterations to plumbing. With PD there are no alterations needed.

** I am not that clear of what alterations are needed for home Hemo (I know NxStage doesn't need any as far as I heard) but I could be wrong so please correct me if I am wrong! Thanks! **

[KidneyMommy]

Angie~ When PD wasn't an option for a baby (due to an infection in his abdomen) at the University of Minnesota, they did hemodialysis...he was just 4 months old, and stayed on hemo until he got his transplant at age 1.

[angieskidney]

Angie~ When PD wasn't an option for a baby (due to an infection in his abdomen) at the University of Minnesota, they did hemodialysis...he was just 4 months old, and stayed on hemo until he got his transplant at age 1.

Wow! Did they do a chest catheter? How did they prevent the baby from pulling it out?

edit: Actually .. don't answer that here but if you have the link to that story or any info I would be interested in reading it. Maybe make a new thread about it and PM me the link? Thx  

[angela515]

I was on hemo in 1999 for 7 month's, and I didn't enjoy it much, however I was 19 then and could handle it better I think.. idunno. I then was on hemo again in 4/2004 until 6/05 when I changed to PD. To me hemo was hell, I felt sick and "icky" all the time, I was constantly feeling like I was dying of thirst due to the fluid restrictions, and I was weak, no energy.. always feeling as if I was going to throw up, always cramping on the machine, hated sitting there for 3 hours and my RLS would act up I felt like I would scream if they would just get me off this damn machine. I also had access problems, I couldnt get an access in my arm to work due to my viens, so I had a perma-cath which I hated and I missed taking a shower so bad.

Finally, I find out about PD online, and I demand my doctor talk to me about it and let me be evaluated to see if I could switch to it. I went and seen the dr and they scheduled me for my PD cath insertion and I did my CAPD training and switched to CCPD after a week or 2. After starting the cycler I felt a whole lot better than I ever have felt since starting dialysis in 2004. I started having more energy, feeling stronger, not as thirsty due to less fluid restrictions, and more freedom since I do dialysis while I sleep everynight instead of 3 hours 3 times a week. So less toxins, and better dialysis for me anyways, and it was a great feeling to feel better. Yah, I still feel sick a lot cuz I am on dialysis but it's a great big difference then from hemo.

 

[angela515]

Angie~ When PD wasn't an option for a baby (due to an infection in his abdomen) at the University of Minnesota, they did hemodialysis...he was just 4 months old, and stayed on hemo until he got his transplant at age 1.

Wow! Did they do a chest catheter? How did they prevent the baby from pulling it out?

edit: Actually .. don't answer that here but if you have the link to that story or any info I would be interested in reading it. Maybe make a new thread about it and PM me the link? Thx  

I would like to read about it also.

[KidneyMommy]

Yes, he had a hickman catheter in his chest...his mom sat by his bedside the entire treatment and a lot of times they had to restrain him so he wouldn't move too much, but for the most part he was too sick to really be that active--he was on 4 hour treatments 5 days a week....

I'll start a new post with the link to the newspaper article that ran about this little guy...let me see if I can find them.

[angieskidney]

Yes, he had a hickman catheter in his chest...his mom sat by his bedside the entire treatment and a lot of times they had to restrain him so he wouldn't move too much, but for the most part he was too sick to really be that active--he was on 4 hour treatments 5 days a week....

I'll start a new post with the link to the newspaper article that ran about this little guy...let me see if I can find them.

OKay thanks!  I had only seen babies and small children on PD but that was in Toronto Canada. I am looking forward to your post!