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Author Topic: Hi fromWhite Plains NY!!  (Read 1883 times)
jbs149
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avFistula-2/10,ICHD-4/11,transplant listed,pkd
« on: May 04, 2011, 12:13:49 PM »
Hi Everyone :waving;, I am a 44 years old  female. I have ESRD  caused by Polycystic kidney disease. I just started in center hemo 17 days ago.I have an av fistula.   I work at a college and this is my first week back to work!! :clap; I am very  wiped out, but hope that it gets better with time. I am very happy to  meet you all and  I am encouraged and enjoy reading your posts! I have had four donor hopefuls but no matches once all tests were submitted, but I am still hopeful!
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JBS149 :-)
Making lemonade with these lemons!!
Poppylicious
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« Reply #1 on: May 04, 2011, 01:17:55 PM »
 :welcomesign; jbs149! Hope you feel less exhausted as you get used to juggling work with dialysis. 

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: May 04, 2011, 02:01:39 PM »
Hi, JBS!

 :welcomesign;

Attitude is everything!  :flower;

I'm hoping that you will start feeling the benefits of dialysis. If you are REALLY wiped out, they may be drawing off too much fluid. That is not unusual for PKD patients since you probably still have some function so aren't building up as much fluid.

Try talking with them about not removing so much fluid to see if it helps you feel better!  :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Rerun
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Going through life tied to a chair!
« Reply #3 on: May 04, 2011, 02:09:13 PM »
Hello JBS and welcome to IHD.  I'm so glad you joined us.  Keep hoping and hang in there.  Your turn will come.  I hope you can keep working.  It gets hard.  Come here often to vent or just learn.  We are here for you.

Rerun, Moderator           :welcomesign;
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peleroja
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I have 16 hats, all the same style!
« Reply #4 on: May 04, 2011, 03:01:56 PM »
Welcome to the group, jbs149.  Lots of good information and friends here.  Glad you found us!
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galvo
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« Reply #5 on: May 04, 2011, 10:40:44 PM »
G'day, jbs, and  :welcomesign;.  :ausflag;
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Galvo
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