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Author Topic: Can I get a break?  (Read 7830 times)
Chris
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« Reply #25 on: April 29, 2011, 06:31:03 PM »
Gotta love that barium taste! :sarcasm;
Hope test comes out good with no problems.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
bette1
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My dear daughter
« Reply #26 on: April 30, 2011, 10:54:25 AM »
Hope you get better soon. :pray;
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Diagnosed with FSGS April of 1987
First Dialysis 11/87 - CAPD
Transplant #1 10/13/94
Second round of Dialysis stated 9/06 - In Center Hemo
Transplant  #2 5/24/10
Brightsky69
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« Reply #27 on: April 30, 2011, 12:40:02 PM »
Freedom!! My creatinine dropped to 2.0 and they let me go....everything else came out clean. Doc said I may have gotten a little dehydrated.  They are going to do labs again on Monday.
I wasso scared it was going to be rejection.
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
Chris
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« Reply #28 on: April 30, 2011, 12:48:17 PM »
That's great!
How did you feel beforehand? When I get deehydrated, I do not feel so good and that's when I am admitted.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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My two beautifull granddaughters

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« Reply #29 on: April 30, 2011, 01:32:21 PM »
 :bandance; :cheer: :bandance; :cheer:

Let's  :beer1;  to this diagnosis!

 :wine;

I'm soooooo glad that it was nothing serious!  :2thumbsup;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile
« Reply #30 on: April 30, 2011, 04:30:37 PM »
 :yahoo;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Jie
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« Reply #31 on: April 30, 2011, 04:37:47 PM »
This is the best one can hope for. If dehydrated, the BP should be low and it should be dizzy when standing up from sitting.
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Sax-O-Trix
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« Reply #32 on: April 30, 2011, 05:26:00 PM »
 :cheer: :clap; :2thumbsup; :yahoo;  Great news!

At 4.5 weeks post transplant, I have found my creatinine levels are affected by how much water I drink.  If I do not drink between 2000 and 2500ml of water a day, my creatinine goes up on average .20 points. Post transplant, I am finding it almost sickening to drink that much of anything in a day, let alone water. :banghead;  I have to consciously force myself to drink that much water even though I drank bottled water like a fish before the transplant.  Go figure.
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Preemptive transplant recipient, living donor (brother)- March 2011
TexanSummer
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« Reply #33 on: April 30, 2011, 07:38:39 PM »
sooo glad to hear!!!!
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Wife of Charles --
   diagnosed with psoriasis in 2000?
   no diagnosed kidney issues until 3 weeks ago
   diagnosed with ESRD 2/24/11
   found out birth defect of kidney valve was cause 2/28/11
   started dialysis  3/1/11
   I still have a level head....most of the time
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #34 on: May 01, 2011, 12:44:43 AM »
Quote from: Brightsky69 on April 30, 2011, 12:40:02 PM
Freedom!! My creatinine dropped to 2.0 and they let me go....everything else came out clean. Doc said I may have gotten a little dehydrated.  They are going to do labs again on Monday.
I wasso scared it was going to be rejection.
:pray; :2thumbsup; :cheer: :cheer: :cheer: :cheer: Yayyy! Good news! Love it!!  :beer1;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #35 on: May 01, 2011, 03:07:11 AM »
Peep's - Covered (and on clearance :rofl; )
"Can I get a break?" - How about a Kit Kat Bar now after all that? ;D
« Last Edit: May 01, 2011, 03:08:16 AM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
carol1987
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« Reply #36 on: May 01, 2011, 05:01:35 PM »
 :clap; :clap; :clap; so happy
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #37 on: May 01, 2011, 10:35:42 PM »
BSky I hope you get out of the hospital soon!!! I am glad it wasn't a rejection!!

xo,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Brightsky69
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« Reply #38 on: May 02, 2011, 05:41:49 AM »
Thanks for all the support.  :grouphug;
The doc also said I need to stay off the salt. Shame on me....I have been partaking on some salty things lately. I have been "in love" with hot dogs lately. No more!!
It's been hard to drink a ton of water. It's getting hot outside and my office has some messed up AC. It's 63 degrees in here now.....burrrrr.
The temp makes it hard to drink my ice water. So I am drinking cups of hot tea.
Jie - I was finding my BP was on the low side....And I was geting out of breath and dizzy when I treid to do anything....like take a shower. I figured it was my anemia. Once I was hydrated again...my H&H came back up some.
Logged
Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
Chris
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« Reply #39 on: May 02, 2011, 03:01:23 PM »
Brightsky, don't say no more to hot dogs, just moderation. Or when you do, drink more fluids than normal. I like fry's, but Most places over salt the suckers, so I don't get those to often.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Brightsky69
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« Reply #40 on: May 03, 2011, 06:16:10 AM »
Thanks !   :)  I am drinking and staying off the salt. Now I need to get my butt off the couch and excercise some.  ::)
Logged
Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
Des
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« Reply #41 on: May 03, 2011, 06:30:14 AM »
I am SO glad it is going better with you.

Don't excercise !!!!! Just think of it as "repetative movements"   :cheer:
« Last Edit: May 03, 2011, 06:32:15 AM by Des » Logged
Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Brightsky69
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« Reply #42 on: May 03, 2011, 06:47:34 AM »
I'd love to get a dog. But the Bf is highly allergic.  ::) I had a big doggie once and she was great.....never let me miss a walkie. I would get home from work and about an hour later she would bring me her leash.  ;D I could not resist that cute face and big brown eyes.
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
edersham
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« Reply #43 on: May 03, 2011, 10:26:48 AM »
Dogs are perfect companions. BF's, well maybe.

Ed
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Brightsky69
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« Reply #44 on: May 03, 2011, 11:31:05 AM »
Quote from: edersham on May 03, 2011, 10:26:48 AM
Dogs are perfect companions. BF's, well maybe.

Ed

True   ;D
Logged
Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #45 on: May 13, 2011, 03:17:42 PM »
Quote from: Brightsky69 on May 03, 2011, 11:31:05 AM
Quote from: edersham on May 03, 2011, 10:26:48 AM
Dogs are perfect companions. BF's, well maybe.

Ed

True   ;D


lol :)
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Brightsky69
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Posts: 960
« Reply #46 on: May 16, 2011, 06:43:41 PM »
go in for labs on Thursday....fingers crossed.
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
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