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Author Topic: Can I get a break?  (Read 7638 times)
Brightsky69
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« on: April 28, 2011, 09:54:15 AM »
 :'( :'(  I had labs done this morning and less than an hour ago I get a calll from my transplant clinic saying that my creatinine was up to 2.8 ,  my H&H was really low and that there was protien in my urine.  And that they were going to have to put me back in the hospital for a few days. I felt like someone took all the air out of my sails.   :'(
I felt completely defeated. They even told me they had a bed waiting for me.
I was driving home to get my netbook and a pillow for my stay. My doctor called me and said they hadn't gotten my prograf level back yet. He said if my prograf level was high then they would just lower my dose and check me again by Monday or tuesday....with NO hospital stay. Whew! :pray;   BUT he said if my prograf level was good and me with a high creatinine level then thats bad and they would have to put me in the hospital.
So...I am waiting on his phone call and prey that they only want to drop my prograf level.  :pray;
« Last Edit: April 28, 2011, 09:55:46 AM by Brightsky69 » Logged
Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
willowtreewren
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« Reply #1 on: April 28, 2011, 10:18:26 AM »
 :grouphug; :grouphug; :grouphug;

It is so very difficult to get news like this.

I'm thinking of you.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Brightsky69
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« Reply #2 on: April 28, 2011, 12:07:07 PM »
Thanks Aleta, I stillhaven't gotten a phone call fromthe Doc yet. No news is good news......right?
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
Brightsky69
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« Reply #3 on: April 28, 2011, 12:57:13 PM »
 :'( Not so good news. The clinic nurse said that my prograf level is fine and to get a good night sleep tonight (HA!)  they will admit me tomorrow morning.   :'( :'(
I am just getting over a UTI so I am preying that is what messed me all up...and it's all fixable.  :pray;
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
willowtreewren
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« Reply #4 on: April 28, 2011, 01:12:12 PM »
Let's keep that good thought!

There is no need to "borrow trouble" as my mother used to say. Soooooo, until you have other news, it is just some left over from that UTI. This is what I am hoping for. Something that you don't need to really worry about and will take care of itself or the docs can easily handle. I am continuously amazed at the powers of modern medicine.

 :pray; :pray;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Brightsky69
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« Reply #5 on: April 28, 2011, 01:20:51 PM »
I am trying to keep it positive. I just called a co-worker to let her know what is happening. My bosses already know. I joked with her about me complaining earlier this week about how I needed a vacation....I joked "God...I didn't mean it like this!!"  ;D

Be careful what you wish for.
« Last Edit: April 28, 2011, 01:22:19 PM by Brightsky69 » Logged
Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
boswife
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us and fam easter 2013
« Reply #6 on: April 28, 2011, 01:47:06 PM »
So sorry but at least they're on it!  glad you'll be able to keep in contact with us  ;) and will be waiting for news.  Take their advice and get some good rest/sleep as you know they'll keep ya up as much as their able once your there.  Best of good wishes to you.... :flower;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Sax-O-Trix
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« Reply #7 on: April 28, 2011, 02:00:57 PM »
I agree, at least your team is on it and is being proactive in treating you.  Keep positive and take it easy tonight (as much as you can.) :grouphug;
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Preemptive transplant recipient, living donor (brother)- March 2011
TexanSummer
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« Reply #8 on: April 28, 2011, 02:03:23 PM »
 :grouphug;  :grouphug;  :grouphug;

It's all I have at the moment....but at least I made you laugh earlier!!!  ;D
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Wife of Charles --
   diagnosed with psoriasis in 2000?
   no diagnosed kidney issues until 3 weeks ago
   diagnosed with ESRD 2/24/11
   found out birth defect of kidney valve was cause 2/28/11
   started dialysis  3/1/11
   I still have a level head....most of the time
Brightsky69
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« Reply #9 on: April 28, 2011, 02:04:32 PM »
Thanks  :) I will get to bed early and I will have my netbook in the hospital. I'll try to keep you guys updated via my phone....the hospitals wifi won't let me on IHD.  ::)
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
Chris
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« Reply #10 on: April 28, 2011, 06:35:11 PM »
Sorry to hear Brightsky. Hope it's just a med change and some fluids. At least you have time to prepare to go in is a positive spin on things. Now you will have your netbook, pillow and extra clothes and toiletries than using hospital issued.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
-Lady Noir-
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« Reply #11 on: April 28, 2011, 06:56:52 PM »
Good luck luv!! Thinking of you!  :cuddle;
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Expose yourself to your deepest fear. After that, fear has no power, and the fear of freedom shrinks and vanishes. You are free

..Nik..

Fiancee to Mike
Mikes 'history'....
Born September 12 1983
Seizure July 2003 [Unrelated to kidney]
Diagnosed with 'Polycystic Kidney Disease' July 2003 (Wrong diagnosis)
Diagnosed with  IgA Glomerulonephritis April 2004
On active transplant waiting list 2006
Hyperparathyroidism developed gradually
Parathyroidectomy May 2009 (Affected kidney function)
Hospitalized for hyperkalemia June 2009
Catheter inserted June 2009


Started CAPD June 2009
Stared APD September 2009

ABO Incompatible transplant 01 December 2010
Donor = Mikes father Greg
Brightsky69
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« Reply #12 on: April 28, 2011, 06:59:48 PM »
Thanks everyone....It's nice to be able to talk about it with people who know what I am going thru and have been where I've been.
Your my peeps!!  ;D   :grouphug;
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
Chris
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« Reply #13 on: April 28, 2011, 07:07:06 PM »
Sorry, I should have bought some peeps so you could have more peeps with you on your stay Brightsky ;D :rofl;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
boswife
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us and fam easter 2013
« Reply #14 on: April 28, 2011, 07:27:06 PM »
hope your sleeping but.......... just kinda funny to hear about not being able to get into ihd..  while training one day (for nxStage), i went out to my computer to find something to show them and it wouldnt let me in there either.. harummp!! 
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Brightsky69
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« Reply #15 on: April 29, 2011, 04:02:07 AM »
watching the wedding and dreading the phone call to come.
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
Chris
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« Reply #16 on: April 29, 2011, 04:41:47 AM »
Well I hope you get a room with a view and hopefully your hospital is a one bed room facility. Good Luck Brightsky, hope you get out by Sunday.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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Posts: 6928


My two beautifull granddaughters

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« Reply #17 on: April 29, 2011, 04:43:19 AM »
Thinking of you today!  :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
natnnnat
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« Reply #18 on: April 29, 2011, 06:20:48 AM »
fingers crossed for you brightsky.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
carol1987
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« Reply #19 on: April 29, 2011, 06:33:36 AM »
Thinking of you and hoping for good news!!   :cuddle;
Logged
Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
Brightsky69
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« Reply #20 on: April 29, 2011, 08:18:01 AM »
It's 11:14am and they still haven't called. Not that I am complaining. Chris....  ;D
Thankfully the kidney wing of the hospital is all one bed rooms.
I am sure it's all going to be ok.   :thx;
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
willowtreewren
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My two beautifull granddaughters

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« Reply #21 on: April 29, 2011, 09:27:07 AM »
We need a fingers crossed emoticon!

 :clap; :clap;

 :cuddle; :cuddle; :cuddle;
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
TexanSummer
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« Reply #22 on: April 29, 2011, 10:15:16 AM »
Quote from: willowtreewren on April 29, 2011, 09:27:07 AM
We need a fingers crossed emoticon!


I actually HAVE one of those!! just need to figure out who to send the clip art to....any ideas?
Logged
Wife of Charles --
   diagnosed with psoriasis in 2000?
   no diagnosed kidney issues until 3 weeks ago
   diagnosed with ESRD 2/24/11
   found out birth defect of kidney valve was cause 2/28/11
   started dialysis  3/1/11
   I still have a level head....most of the time
Brightsky69
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« Reply #23 on: April 29, 2011, 05:49:12 PM »
Iam in my room and already looking to get out by sunday or monday. They have me drinking barium stuff for a cat scan
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
willowtreewren
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My two beautifull granddaughters

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« Reply #24 on: April 29, 2011, 06:07:29 PM »
 :grouphug; :grouphug;

And here is to everything being just hunky dory!  :2thumbsup;

Get some rest....

Aleta
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
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