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Author Topic: ESRD Network: Manhattan - Staten Island Regional Patient Education Meeting  (Read 1496 times)
Meinuk
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« on: April 26, 2011, 08:34:42 AM »

http://www.ipro.org/index/siteevent-details-action/id.242

ESRD Network: Manhattan - Staten Island Regional Patient Education Meeting

Date/Location:
Thursday, July 14, 2011 from 1:00PM to 4:30PM at Phillips Ambulatory Care Center
10 Union Square – Conference Room 1, New York, NY


This will be an afternoon meeting to present: Patient roles and responsibilities, sharing important health information and discussing many pertinent issues affecting dialysis patients today; such as: phosphorous management, vascular access, what is the ESRD Network, vocational rehabilitation, exercise and much more.

Attendance at the Annual Meeting is a requirement for registered facility Patient Representatives (PAC Reps). Please encourage PAC Representatives to attend and provide any assistance you can to help them to attend. Please encourage all of your facility PAC Reps and patients to attend this very important meeting.

If your facility does not have a patient representative, this is an excellent opportunity for patients to learn about what it takes to be a patient representative, who the IPRO ESRD Network is and how we can help.

RSVP/registration is mandatory by July 5th and may be made by contacting Mr. Aaron Battle ABattle@NW2.esrd.net

Date/Location:
Thursday, July 14, 2011 from 1:00PM to 4:30PM at Phillips Ambulatory Care Center
10 Union Square – Conference Room 1, New York, NY

Audience:
The meeting is open to all patients, caregivers and family members. Facility staff members are also welcome.
 
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

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« Reply #1 on: April 26, 2011, 10:35:12 AM »

 :2thumbsup;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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